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SUMMARY:Revealing: Art\, Disability\, Stigma and Compassion
DESCRIPTION:Join us for a panel discussion about enhancing interactions with the healthcare system and society through art.  View the exhibit\, “one\, one thousand… Photographs by Debe Arlook” on display in the Fulginiti Pavilion lobby. \nPANEL DISCUSSION: \nDebe Arlook\nPhotographer\, Artist & Lori’s Sister\nDebe Arlook is a visual artist based in Santa Monica\, California. She received a B.A. in film and media and a minor in psychology from American University in Washington D.C. Her work is exhibited nationally and internationally including the Lishui Art Museum\, Museum of Art and History Lancaster\, Griffin Museum of Photography\, Center for Fine Art Photography\, and the San Diego Art Institute.  Learn more about Arlook’s work and view the “one\, one thousand…” exhibit. \nTracy Dixon-Salazar\, PhD\nNeuroscientist\, Geneticist\, Patient Advocate & Executive Director\, LGS Foundation\nTracy Dixon-Salazar’s desire to get her Ph.D. was inspired by her daughter\, Savannah\, who developed intractable seizures at the age of 2\, which evolved into Lennox-Gastaut Syndrome (LGS) by the age of 5. She did her Ph.D. and postdoctoral work at UC\, San Diego and it was during her research tenure\, and after 16 years of watching daily\, unrelenting seizures in her child\, that she uncovered the driver of her daughter’s illness and identified a novel precision therapy that improved her child’s life. \nGayla Elliott\, MA\, ATR\, CBIS\nCreative Arts Therapy Program Manager\, Marcus Institute for Brain Health\nGayla Elliott has almost 40 years of providing art therapy services in many clinical settings. In 2017 she began providing art therapy to active-duty military through the federally-funded program\, Creative Forces\, and in 2018 to veterans with mild brain injuries at the Marcus Institute for Brain Health. Gayla is also the parent of an adult daughter who is on the autism spectrum due to Di George syndrome. \nLori Sandler\nLife Coach\, Motivational Speaker\, Writer & David’s Mother and Primary Caregiver\nLori Sandler is a writer\, life coach and devoted caregiver of her adult son\, David. David has autism and Lennox-Gastaut Syndrome\, a rare type of epilepsy that is difficult to control and causes severe neurological impairment. In the early 2000’s\, the intensity of David’s condition and the challenges of his care spurred Lori onto a path of personal growth and spiritual inquiry. In her words\, “The lessons of surrender\, trust\, compassion\, self-knowledge and levity have been the greatest gifts I have received from walking this path with him.” \nJulie Thompson-Dobkin\, DO\nNeurologist\, President & Co-founder of the Hidden Truths Project\nDr. Julie Thompson-Dobkin is a Board-certified neurologist\, currently residing in San Francisco\, California. She previously served as an Assistant Professor in the Department of Neurology at the University of Pittsburgh and was clinical faculty at Washington University in St. Louis. She founded Hidden Truths Project in 2012\, which is dedicated to engaging and empowering individuals impacted by visible and invisible disabilities through the arts.  Dr. Thompson-Dobkin has an adult son who has lived with epilepsy for 18 years\, the inspiration for much of her work. \nHYBRID:\nIn-person at the Fulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave.  Aurora\, CO  80045\nClick for directions & parking information. \nor via ZOOM:\nhttps://ucdenver.zoom.us/j/97023996853 \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/revealing-art-disability-stigma-and-compassion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ATTACH;FMTTYPE=image/gif:https://www.lgsfoundation.org/wp-content/uploads/2023/01/Revealing-Art-Disability-Stigma-and-Compassion.gif
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
GEO:39.7454093;-104.8353839
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DTSTART;TZID=America/Denver:20221101T170000
DTEND;TZID=America/Denver:20221101T190000
DTSTAMP:20260501T104651
CREATED:20221011T063119Z
LAST-MODIFIED:20221028T044646Z
UID:10000097-1667322000-1667329200@www.lgsfoundation.org
SUMMARY:"one\, one thousand..." Photo Exhibition Reception with Discussion
DESCRIPTION:Join us in person or online to view “one\, one thousand…” and hear talks by the artist/photographer and her sister Lori\, mother of David\, who is diagnosed with Lennox-Gastaut Syndrome. \n“one\, one thousand…” is an unconventional documentary and a different kind of love story. It exposes the impact that Lennox-Gastaut Syndrome has on a mother and son’s experiences of life-long care. Debe Arlook’s intimate photos depict the inner and outer worlds of the relationship between the artist’s nephew and sister. The title references counting the length of a seizure. \n  \nUniversity of Colorado Anschutz Medical Campus\nFulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave. Aurora\, CO 80045\n  \nClick Here to Learn More \nDonate to the “one\, one thousand…” fundraiser to benefit the LGS Foundation \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/one-one-thousand-photo-exhibition-reception-with-discussion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
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