LGS Research Meeting of the Minds: Finding Disease-Modifying

Therapies for LGS

 

Meetings will be followed by the launch of the

LGS Research Meeting of the Minds Seminar Series 

Researcher Conference

September 13-14, 2021

Family Day

September 18, 2021

(for families only)
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The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and the cures for LGS.

This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress to date in understanding LGS and how we can find targeted treatments and cures for this horrible early life epilepsy. Meeting presentations will be live-streamed and may be attended by anyone. In order to maximize discussion and reach our objectives, meeting discussion groups will be kept small and will be by invitation only. 

This meeting will guide the LGS Foundation's future research funding strategy as part of our new

Finding the Cures, Together.

Our goals are ambitious, our aim high, but the future of cures for LGS starts here!

 

Join us as we begin this incredible journey toward a cure!

Organizers: 

  • Eric Marsh, MD, PhD - CHOP 

  • Heather Mefford, MD, PhD - St. Jude 

  • Ann Poduri, MD, MPH - Boston Children's 

  • Brenda Porter, MD, PhD - Stanford

  • Vicky Whittemore, PhD - NINDS

Moderators and Speakers:

  • Scott Baraban, PhD - UC San Francisco

  • Anne Berg, PhD - Lurie Children's

  • Dennis Dlugos, MD, MSCE - CHOP

  • Elaine Wirrell, MD - Mayo Clinic

Draft Agenda

September 13, 2021

 

 

Session 1:

What is LGS? The phenomenology of the disorder.

11am - 2pm EST

Session 2:

How do we advance clinical research in LGS?

3pm - 5pm EST

September 13, 2021

 

 

Research Session 1:

What is LGS? The phenomenology of the disorder.

11am - 2pm EST

Research Session 2:

How do we advance clinical research in LGS?

3pm - 5pm EST

September 14, 2021

 

 

Research Session 3:

How do we advance our mechanistic understanding of LGS?

11am - 2pm EST

Research Session 4:

Diseases Modifying Therapies:  What we know, what should we do, how do we get there?

3pm - 5pm EST

September 18, 2021

 

 

Family Session:

What does a disease-modifying therapy look like to families living with LGS?

11am - 3pm EST

Register Today.

Full Agenda coming soon!

Thank you, CZI!
This meeting is supported by the Chan Zuckerberg Initiative (CZI) as part of the Rare As One project. 

Meeting of the Minds Supporters 

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