Helpful Links

Most links provided are for resources within the United States. 

 

Council for Exceptional Children

Organization dedicated to improving the special education system.

Idea 2004 Parent Guide 

A comprehensive guide to the Individuals with Disabilities Act

 

Wrights Law 

Resources which provides case studies, information and advocacy for special education.

Special Education Advocacy

 

 

 

Education and Advocacy

Legal Services & Resources

Americans with Disabilities Act

Special Needs Advocacy

 

Future Planning

ABLE Act

Adults & LGS

Got Transition

Special Needs Planners

How to Plan for a Child With Special Needs

 

Disability Organizations / Websites:

Disability Scoop

The ARC

Family Voices

Special Olympics

The Mighty

 

 

 

Wish Granting Organizations

Make a Wish Foundation

Wishes for individuals under the age of 18 with life-threatening illnesses

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Dream Foundation

For adults with life-threatening illnesses

 

LGS Foundation Gives Kids the World Partnership

The LGSF awards one LGS family per year an all-expense paid trip to Give Kids the World Resort in Orlando, FL.

 

Epilepsy Camps

NYU FACES Camp

Epilepsy Foundation (camps are held by local affiliates)
Special Olympics

Camp Courageous

 

Open-Access Medical Journal Articles on LGS

 

Special Issue: Current Strategies for the Management of LGS

(Wheless, Pellock. Epilepsia, 2014)

 

Lennox-Gastaut Syndrome

(Cherian, et al. Medscape. Updated Feb 23, 2015)

 

Treatment of LGS: Overview and Recent Findings

(Rijckevorsel. Neuropsychiatric Disease Treatment, 2008)

 

Lennox-Gastaut: Impact on the Family & Caregivers

(Gibson, PA. Journal of Multidisciplinary Healthcare, 2014)

 

Impact of Lennox-Gastaut Syndrome (LGS) on health-related quality of life (HRQL) of patients and caregivers: Literature review (Gallop, et al. Seizure. 2009)

 

Strategies for Transitioning to Adult Care for Youth with Lennox-Gastaut Syndrome

Camfield, Gibson, Douglass (Epilepsia, 2011)

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A Team Approach to Caring for Individuals with Intellectual and Developmental Disabilities and Epilepsy

Kothare, Brown, McGoldrick, McNew, Wolf (White Paper, 2017)

 

 

 

 

 

 

 

The LGS Foundation does not endorse any one specific resource over another. If you have a helpful resource that the LGS Foundation should consider adding to this list, please email info@lgsfoundation.org

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