LGS Research Meeting of the Minds: Finding Disease-Modifying Therapies for LGS

The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS.

This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress to date in understanding LGS and how we can find targeted treatments and cures for this horrible early-life epilepsy. Meeting presentations will be live-streamed and may be attended by anyone. In order to maximize discussion and reach our objectives, meeting discussion groups will be kept small and will be by invitation only.

This meeting will guide the LGS Foundation’s future research funding strategy as part of our new Finding the Cures, Together.

Our goals are ambitious, our aim high, but the future of cures for LGS starts here! Join us as we begin this incredible journey toward a cure!

Organizers Include:

  • Eric Marsh, MD, Ph.D. – CHOP
  • Heather Mefford, MD, Ph.D. – St. Jude
  • Ann Poduri, MD, MPH – Boston Children’s
  • Brenda Porter, MD, Ph.D. – Stanford
  • Vicky Whittemore, Ph.D. – NINDS

Full Agenda Now Available

Research Meeting of the Minds Program

Meetings will be followed by the launch of the LGS Research Meeting of the Minds Seminar Series 

Research Conference (Families are Welcome)

September 13-14, 2021


Research Conference Agenda →

Family Day (For Families Only) – Registration closed

September 18, 2021


Family Day Agenda →


Thank you, CZI!

This meeting is supported by the Chan Zuckerberg Initiative (CZI) as part of the Rare As One project.

Gold Supporters:

Silver Supporters: