The Importance of Research

Our modern understanding of Lennox-Gastaut Syndrome is built upon years of effort by scientists, physicians, and other medical professionals investigating LGS. Tireless efforts of these professionals have contributed to improving treatments, quality of life, and understanding of Lennox-Gastaut Syndrome. 


However, there is still a tremendous amount of work to be done. Epilepsy is extremely underfunded and only a handful of clinical trials have ever been conducted for LGS. Due to its heterogenity (and a lack of a single cause), researchers often find LGS a difficult syndrome to study.  Therefore, it is imperative that research is advanced by efforts through the LGS Foundation, by researchers who are invested in the disorder, and by families, who are passionate to make a difference in their children's lives. 


When you support medical research, you are helping researchers build the future of medicine and unlock clues behind LGS. With the partnership of individual and corporate donors, we are able to advance medical knowledge and improve patient care.


Boy with LGS lennox-gastaut syndrome rare epilepsy seizures

Information about research for families


The LGS families are the backbone to the LGS Foundation's Research Program. Without the support of our members, the LGS Foundation would not be able to fund meaningful research and help researchers identify gaps or answer questions related to the clinical aspects, therapies, and/or causes of Lennox-Gastaut Syndrome.


There are many ways you can get involved in furthering the LGS Foundation's research program or helping researchers explore novel ideas or questions regarding LGS. Fundraising, participating in a clinical trial , or joining the Rare Epilepsy Registry are great places to start.  Click on the links below to learn more.