The LGS Foundation's members and supporters enable us to carry out our mission of providing information and education on LGS, supporting families, raising awareness, and funding research in Lennox-Gastaut Syndrome. LGS families from across the world have raised hundreds of thousands of dollars, with contributions going directly towards programs and research.

By organizing a fundraising event, you will not only directly impact research and programs in Lennox-Gastaut Syndrome,  you will also raise awareness of LGS in your community.

There are many types of exciting and fun events that you can organize. LGSF member-initiated events in the past have included workout fundraisers (Zumba, spin, Crossfit), dinners, cocktail receptions and galas, runs/walks and bake sales. We encourage you to get creative and have fun!  

Virtual giving campaigns are also a great way to raise awareness and funds for LGS, while giving you the opportunity to tell your story about LGS.  You can easily create a personal fundraising page through the LGSF, participate or start your own virtual "walk", encourage family and friends to donate during our holiday/ year-end giving campaign, and more.  

For more information on any of these ideas or for help getting started planning a fundraiser, please email





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