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DTSTART;TZID=America/New_York:20250408T200000
DTEND;TZID=America/New_York:20250408T210000
DTSTAMP:20260408T165629
CREATED:20250327T191616Z
LAST-MODIFIED:20250327T191616Z
UID:10000209-1744142400-1744146000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us on Tuesday\, April 8th at 8 pm ET.\nTopic: Spring is finally here. A time of new beginnings!\nThis has been a difficult winter for the LGS community. A lot of grief\, a lot of new families\, and as always\, a lot of seizures. During these times\, it’s more important than ever to connect with others. Join us! If you need to talk\, we’ll always listen. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250415T200000
DTEND;TZID=America/New_York:20250415T210000
DTSTAMP:20260408T165629
CREATED:20250327T194421Z
LAST-MODIFIED:20250327T194920Z
UID:10000212-1744747200-1744750800@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Join us Tuesday\, April 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T200000
DTEND;TZID=America/New_York:20250424T210000
DTSTAMP:20260408T165629
CREATED:20250327T200655Z
LAST-MODIFIED:20250328T132851Z
UID:10000215-1745524800-1745528400@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de abril
DESCRIPTION:Únase a nosotros el jueves 24 de abril a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-abril/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250426
DTEND;VALUE=DATE:20250427
DTSTAMP:20260408T165629
CREATED:20250108T212750Z
LAST-MODIFIED:20250225T152509Z
UID:10000205-1745625600-1745711999@www.lgsfoundation.org
SUMMARY:10th Annual Walk ‘n’ Wheel for LGS Research
DESCRIPTION:Save the Date & Join us for Our \n10th Annual Walk ‘n’ Wheel for LGS Research!\nSaturday\, April 26\, 2025\nThis year\, we are making LGS research history by uniting leading experts to create formal recommendations that will establish a standard of care for Lennox-Gastaut Syndrome (LGS). This consensus opinion will optimize treatment\, provide a clear roadmap for patients\, and serve as a vital stepping stone in LGS research. \nThis year’s 10th Annual Walk ‘n’ Wheel for LGS Research is more crucial than ever. Together\, we are making huge strides toward a breakthrough and shaping the future of LGS treatments! \n \n10:00am – 2:00pm ET\n\n \n \n10:30am – 2:00pm ET\n\n\n \nHelp Support LGS Research – Get Involved Now!\nLo
URL:https://www.lgsfoundation.org/event/10th-annual-walk-for-lgs-research/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2025-WalkForLGS-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T090000
DTEND;TZID=America/New_York:20250426T110000
DTSTAMP:20260408T165629
CREATED:20250410T130540Z
LAST-MODIFIED:20250410T131125Z
UID:10000221-1745658000-1745665200@www.lgsfoundation.org
SUMMARY:Orlando\, FL - LGS Walk & Wheel Color Run
DESCRIPTION:🎨 LGS Walk & Wheel Color Run – Supporting Jacob’s Journey 🎨Join us for a morning of color\, fun\, and community spirit as we run (or walk or wheel!) to support the LGS Foundation and Jacob’s Journey. \n🗓 Date: April 26⏰ Time: 9 AM – 11 AM💵 Entry Fee: $5 (All proceeds go to the LGS Foundation) \nGet ready to get colorful for a great cause! Bring your friends\, wear white\, and let’s make a difference together! \nDonate to Support Our Fundraising Efforts 
URL:https://www.lgsfoundation.org/event/orlando-fl-lgs-walk-wheel-color-run/
LOCATION:Waterleigh Sports Field\, 10697 Atwater Bay Drive\, Winter Garden\, FL\, 34787\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/04/Orlando-FL.png
ORGANIZER;CN="Tim Baker":MAILTO:tim.baker22@yahoo.com
GEO:28.4122718;-81.6438371
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Waterleigh Sports Field 10697 Atwater Bay Drive Winter Garden FL 34787 United States;X-APPLE-RADIUS=500;X-TITLE=10697 Atwater Bay Drive:geo:-81.6438371,28.4122718
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250426T110000
DTEND;TZID=America/Los_Angeles:20250426T130000
DTSTAMP:20260408T165629
CREATED:20250224T190825Z
LAST-MODIFIED:20250304T192640Z
UID:10000207-1745665200-1745672400@www.lgsfoundation.org
SUMMARY:SF Bay\, CA Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Calling All SF Bay Area Families!\nJoin us on April 26\, 2025\, at Buri Buri Park in South San Francisco\, CA\, as we Step Together for a Breakthrough.\nCome join us for the SF Bay Area Local Walk ‘n’ Wheel for LGS Research—a fun and meaningful event where families\, friends\, and community members come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk\, roll\, or cheer from the sidelines\, we’ll unite side by side to show our strength\, love\, and commitment to making a difference. \nThis event is all about building connections\, sharing experiences\, and supporting one another. It’s a chance to meet others who understand the journey of living with LGS\, find encouragement\, and be inspired by the power of community. \nLet’s walk together\, celebrate our shared hope\, and raise awareness for research that can make a real impact in the lives of those affected by LGS. We hope you’ll join us for this uplifting\, community-driven event and help us step closer to a breakthrough! \nThis event is free to all LGS community members\, donations are appreciated. We can’t wait to see you there! \n  \nDonate to Support Our Fundraising Efforts
URL:https://www.lgsfoundation.org/event/sf-bay-area-local-walk-n-wheel-for-lgs-research/
LOCATION:Buri Buri Park\, 200 Arroyo Dr\, South San Francisco\, CA\, 94080\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/02/SF-Bay-Area-.png
ORGANIZER;CN="Melanie Huntley":MAILTO:melaniehuntley@gmail.com
GEO:37.6521376;-122.4420023
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Buri Buri Park 200 Arroyo Dr South San Francisco CA 94080 United States;X-APPLE-RADIUS=500;X-TITLE=200 Arroyo Dr:geo:-122.4420023,37.6521376
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T110000
DTEND;TZID=America/New_York:20250426T133000
DTSTAMP:20260408T165629
CREATED:20250304T165156Z
LAST-MODIFIED:20250304T170431Z
UID:10000208-1745665200-1745674200@www.lgsfoundation.org
SUMMARY:Eubank\, KY Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Join us on April 26\, 2025\, at Eubank Community Park as We Step Together for a Breakthrough.\nWe’re excited to invite you to Tyler’s Walk on Wheels\, a special event supporting the Lennox-Gastaut Syndrome (LGS) Foundation. This cause means so much to us because it’s personal – our son Tyler has LGS\, and while he’s doing well with amazing doctors and care\, we’re determined to help fund the research that could lead to better treatments and\, ultimately\, a cure. \nAll proceeds from the event will go directly to LGS research. We’ll have raffles\, door prizes\, t-shirts\, and music to make it a fun\, meaningful day. Most importantly\, we’ll be walking together\, showing support for Tyler and all families affected by LGS. \nYour presence would mean the world to us as we continue the fight for a cure. Thank you for being part of this journey with us. \nThis event is free to all LGS community members\, donations are appreciated. We can’t wait to see you there! \nDonate to Support Our Fundraising Efforts \nRegister to Attend Tyler’s Walk
URL:https://www.lgsfoundation.org/event/eubank-ky-local-walk-n-wheel-for-lgs-research/
LOCATION:Eubank Community Park\, Bulldog Street\, Eubank\, KY\, 42567\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/03/Eubank-KY-.png
ORGANIZER;CN="Lisa Cook":MAILTO:lcook197040@yahoo.com
GEO:37.2782468;-84.6495077
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Eubank Community Park Bulldog Street Eubank KY 42567 United States;X-APPLE-RADIUS=500;X-TITLE=Bulldog Street:geo:-84.6495077,37.2782468
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20250426T110000
DTEND;TZID=America/Phoenix:20250426T150000
DTSTAMP:20260408T165629
CREATED:20250121T180100Z
LAST-MODIFIED:20250409T173945Z
UID:10000206-1745665200-1745679600@www.lgsfoundation.org
SUMMARY:Colorado Springs\, CO Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Calling All Colorado Families!\nJoin us on April 26\, 2025\, at Bear Creek Regional Park as we Step Together for a Breakthrough.\nThis special event is an opportunity for families and friends to come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk or roll\, we’ll unite side by side to show our strength and solidarity. \nIt’s a time to connect with others who are navigating the same journey\, to find support and inspiration\, and to build a stronger community. We’ll take a walk around the park\, then enjoy delicious food\, uplifting music\, and great company. \nLet’s create new friendships\, share our stories\, and leave with smiles on our faces and hearts full of hope. Together\, we make a difference. \nThis event is free to all LGS community members. We can’t wait to see you there! \nDonate to support our fundraising efforts  \nRegister to Attend
URL:https://www.lgsfoundation.org/event/colorado-walk-n-wheel/
LOCATION:Bear Creek Regional Park\, 2002 Creek Crossing Street\, Colorado Springs\, CO\, 80905\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/01/Colorado-Springs-CO.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.8234434;-104.8585351
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Bear Creek Regional Park 2002 Creek Crossing Street Colorado Springs CO 80905 United States;X-APPLE-RADIUS=500;X-TITLE=2002 Creek Crossing Street:geo:-104.8585351,38.8234434
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250428T200000
DTEND;TZID=America/New_York:20250428T210000
DTSTAMP:20260408T165629
CREATED:20250327T205942Z
LAST-MODIFIED:20250327T205942Z
UID:10000218-1745870400-1745874000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
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