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DTSTART;VALUE=DATE:20241101
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UID:10000184-1730419200-1730505599@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day
DESCRIPTION:Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!\nOn November 1st\, International LGS Awareness Day\, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS). \nLGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent\, often daily\, debilitating seizures\, cognitive impairment\, developmental regression\, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP). \nThere are currently no cures\, but there is a hopeful path forward with increased awareness of the devastating disorder! \n\n\n\n\nTogether\, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.\nClick here to learn more about how YOU can get involved with our awareness efforts!
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day/
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241102T180000
DTEND;TZID=America/Los_Angeles:20241102T213000
DTSTAMP:20260622T054242
CREATED:20240508T171355Z
LAST-MODIFIED:20240508T182702Z
UID:10000169-1730570400-1730583000@www.lgsfoundation.org
SUMMARY:LGS Foundation Annual Awareness Dinner
DESCRIPTION:Tickets are now available for the biggest night of the year!\nThe 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday\, November 2nd at the Harbor View Loft in San Diego\, California. The evening will feature a silent auction and cocktail reception\, seated dinner\, inspirational program\, exciting live auction\, live entertainment\, and more. \nThis memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS. \n  \nClick Here to Register Now
URL:https://www.lgsfoundation.org/event/lgs-foundation-annual-awareness-dinner/
LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241112T200000
DTEND;TZID=America/New_York:20241112T210000
DTSTAMP:20260622T054242
CREATED:20240911T200204Z
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UID:10000186-1731441600-1731445200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Nov. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 12th at 8 pm ET.\nTopic: The Holiday Season is Here!\nThis time of year can stir up a lot of feelings. Are you stressed out about having to deal with comments from family members who don’t get it? Are you struggling with ideas for gift-giving when your full-grown son/daughter with LGS still prefers toddler toys? Are you conflicted over how to support the siblings while just wanting to call the whole thing off and hide under your blankets? Or\, is this a time of year that gives you great comfort and joy? \nJoin us as we talk it out\, share\, and support one another at this family-focused time of year. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-nov-support-group-meeting/
LOCATION:Virtual
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241120T200000
DTEND;TZID=America/New_York:20241120T210000
DTSTAMP:20260622T054242
CREATED:20240911T201941Z
LAST-MODIFIED:20240911T201941Z
UID:10000188-1732132800-1732136400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Nov. Support Group Meeting
DESCRIPTION:Join us Wednesday\, November 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-nov-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241121T200000
DTEND;TZID=America/New_York:20241121T210000
DTSTAMP:20260622T054242
CREATED:20241028T132039Z
LAST-MODIFIED:20241028T132039Z
UID:10000191-1732219200-1732222800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
DESCRIPTION:Join us Thursday\, November 21st at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-noviembr/
LOCATION:Virtual
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241125T200000
DTEND;TZID=America/New_York:20241125T210000
DTSTAMP:20260622T054242
CREATED:20240912T164204Z
LAST-MODIFIED:20240912T164204Z
UID:10000190-1732564800-1732568400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Nov. Support Group Meeting
DESCRIPTION:Join us Monday\, November 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-nov-support-group-meeting/
LOCATION:Virtual
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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