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DTSTART;TZID=America/New_York:20240409T200000
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DTSTAMP:20260714T145159
CREATED:20240329T154915Z
LAST-MODIFIED:20240329T155152Z
UID:10000163-1712692800-1712696400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us on Tuesday\, April 9th at 8 pm ET.\nTopic: The “Business” of Caring for Someone with LGS.\nFrom accessing services and securing Medicaid waivers to battling with insurance over denials\, caring for someone with LGS can be a full-time job when you may already have a full-time job. \nIn the April support group\, we’ll share tips on how we’re making it work\, offer helpful resources to one another\, or just vent! \nCome join your fellow caregivers as we support\, educate\, and empower one another because nobody can do this alone. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T200000
DTEND;TZID=America/New_York:20240417T210000
DTSTAMP:20260714T145159
CREATED:20240329T160353Z
LAST-MODIFIED:20240329T160353Z
UID:10000164-1713384000-1713387600@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Join us Wednesday\, April 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240420T080000
DTEND;TZID=America/Los_Angeles:20240420T093000
DTSTAMP:20260714T145159
CREATED:20240208T152057Z
LAST-MODIFIED:20240411T221339Z
UID:10000158-1713600000-1713605400@www.lgsfoundation.org
SUMMARY:Savannah Walks a Mile for LGS Research
DESCRIPTION:Join Savannah and friends \non Saturday\, April\, 20th at 8 am PT.\nCome walk a mile with Savannah\, have some fun\, eat some donuts\, and raise funds for a great cause! \nSee Savannah’s Walk Page \nRSVP NOW
URL:https://www.lgsfoundation.org/event/savannahs-walk-for-lgs/
LOCATION:Vista Grande Elementary School\, 5606 Antigua Blvd\, San Diego\, CA\, 92124\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/02/Grassroot-Walks-Website-Banner.png
ORGANIZER;CN="Tracy Dixon-Salazar":MAILTO:TJSalazar2@gmail.com
GEO:32.8340553;-117.1082889
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Vista Grande Elementary School 5606 Antigua Blvd San Diego CA 92124 United States;X-APPLE-RADIUS=500;X-TITLE=5606 Antigua Blvd:geo:-117.1082889,32.8340553
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240420T100000
DTEND;TZID=America/Denver:20240420T120000
DTSTAMP:20260714T145159
CREATED:20240315T184742Z
LAST-MODIFIED:20240315T185505Z
UID:10000162-1713607200-1713614400@www.lgsfoundation.org
SUMMARY:Walk 'n' Roll for LGS Research
DESCRIPTION:  \nCome walk ‘n’ roll with our LGS warriors as we help raise awareness!  \nWalk\, run\, or roll around the park! This event is a great way for families to meet other LGS families! There will be food\, face painting\, music\, games\, and more!
URL:https://www.lgsfoundation.org/event/walk-n-roll-for-lgs-research/
LOCATION:Fountain Creek Regional Park\, 211 Duckwood Road\, Fountain\, CO\, 80817\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/03/Grassroot-Walks-Website-Banner-1.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.7091645;-104.7140653
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Fountain Creek Regional Park 211 Duckwood Road Fountain CO 80817 United States;X-APPLE-RADIUS=500;X-TITLE=211 Duckwood Road:geo:-104.7140653,38.7091645
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T100000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260714T145159
CREATED:20240116T221142Z
LAST-MODIFIED:20240408T200543Z
UID:10000153-1713607200-1713621600@www.lgsfoundation.org
SUMMARY:Florida - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nSaturday\, April 20\, 2024 | 10:00am ET | Tampa\, FL \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nSplash Pad\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nGames\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJOIN US IN Florida
URL:https://www.lgsfoundation.org/event/florida-walk/
LOCATION:All People’s Community Park & Life Center\, 6105 E. Sligh Ave.\, Tampa\, FL\, 33617\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.0095963;-82.3878142
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=All People’s Community Park & Life Center 6105 E. Sligh Ave. Tampa FL 33617 United States;X-APPLE-RADIUS=500;X-TITLE=6105 E. Sligh Ave.:geo:-82.3878142,28.0095963
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T103000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260714T145159
CREATED:20240116T220001Z
LAST-MODIFIED:20240415T124259Z
UID:10000152-1713609000-1713621600@www.lgsfoundation.org
SUMMARY:North Carolina - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nApril 20\, 2024 | 10:30am ET | Kannapolis\, NC \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nTrain Rides\nCarousel\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJoin Us in North Carolina
URL:https://www.lgsfoundation.org/event/north-carolina-walk/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240422T200000
DTEND;TZID=America/New_York:20240422T210000
DTSTAMP:20260714T145159
CREATED:20240329T161442Z
LAST-MODIFIED:20240329T161442Z
UID:10000165-1713816000-1713819600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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