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X-WR-CALNAME:LGS Foundation
X-ORIGINAL-URL:https://www.lgsfoundation.org
X-WR-CALDESC:Events for LGS Foundation
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DTSTART;TZID=America/New_York:20230724T200000
DTEND;TZID=America/New_York:20230724T210000
DTSTAMP:20261015T040510
CREATED:20230705T191131Z
LAST-MODIFIED:20230724T210453Z
UID:10000133-1690228800-1690232400@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS - July Support Group Meeting
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\n\nJuly 24\, 2023\, 8:00 pm – 9:00 pm ET\n\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-july-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230808T200000
DTEND;TZID=America/New_York:20230808T210000
DTSTAMP:20261015T040510
CREATED:20230728T174307Z
LAST-MODIFIED:20230728T180008Z
UID:10000134-1691524800-1691528400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Monthly Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 8th at 8 pm ET.\nTopic: The Long\, Hot Summer – How are you Managing?\nWith record-high temperatures hitting most of the world\, how have our loved ones with LGS been handling this long\, hot summer? Have any of them been able to attend a program or a camp that meets their needs? \nCome to our monthly group and share everything from your strategies and tips for staying cool and having fun – to your woes and worries about how to support someone with LGS and their siblings! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230812T200000
DTEND;TZID=America/New_York:20230812T210000
DTSTAMP:20261015T040510
CREATED:20230510T213749Z
LAST-MODIFIED:20230523T002923Z
UID:10000074-1691870400-1691874000@www.lgsfoundation.org
SUMMARY:LGS Foundation's 15th Anniversary Dance Party
DESCRIPTION:This family-friendly event is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-foundations-15th-anniversary-dance-party/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/05/15th-Anniversary-Dance-Party-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230816T200000
DTEND;TZID=America/New_York:20230816T210000
DTSTAMP:20261015T040510
CREATED:20230728T175157Z
LAST-MODIFIED:20230728T175157Z
UID:10000135-1692216000-1692219600@www.lgsfoundation.org
SUMMARY:Dad to Dad - Monthly Support Group Meeting
DESCRIPTION:Join us Wednesday\, August 16th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230828T200000
DTEND;TZID=America/New_York:20230828T210000
DTSTAMP:20261015T040510
CREATED:20230728T175845Z
LAST-MODIFIED:20230728T175915Z
UID:10000136-1693252800-1693256400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Monthly Support Group Meeting
DESCRIPTION:Join us Monday\, August 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230913
DTEND;VALUE=DATE:20230917
DTSTAMP:20261015T040510
CREATED:20230110T231229Z
LAST-MODIFIED:20230616T231344Z
UID:10000111-1694563200-1694908799@www.lgsfoundation.org
SUMMARY:LGS Meeting of the Minds
DESCRIPTION:-Save The Date-\n2023 LGS Meeting Of The Minds:\nAdvancing Clinical Research\nSeptember  14-15\, 2023: Research Conference\nSeptember 16\, 2023: Family Research Day\nThe LGS Foundation is hosting its second Meeting of the Minds to discuss how we can Advance Clinical Research in LGS. For this hybrid conference\, we will bring together patients\, families\, doctors\, researchers\, and partners to understand how we can learn from every patient and brainstorm how to find the best treatments for LGS. \nWe hope you will join us!\n  \n\n\nLearn More
URL:https://www.lgsfoundation.org/event/lgs-meeting-of-the-minds/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/11/MoM-Webpage-Banners.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230919T200000
DTEND;TZID=America/New_York:20230919T210000
DTSTAMP:20261015T040510
CREATED:20230901T175818Z
LAST-MODIFIED:20230901T180754Z
UID:10000138-1695153600-1695157200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Monthly Support Group Meeting
DESCRIPTION:Join us Tuesday\, September 19th\, 2023\nTopic: Summer’s over and school is back in session.\nThis can be a difficult time for our families as we meet new teachers\, and build new relationships in the school community. It can also be a relief for caregivers as we get back into a much-needed routine. How does fall work for your family? And if your child isn’t in school yet or has finished school\, what changes are you expecting as we head into fall? \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230920T200000
DTEND;TZID=America/New_York:20230920T210000
DTSTAMP:20261015T040510
CREATED:20230901T181307Z
LAST-MODIFIED:20230901T181425Z
UID:10000139-1695240000-1695243600@www.lgsfoundation.org
SUMMARY:Dad to Dad - Monthly Support Group Meeting
DESCRIPTION:Join us Wednesday\, September 20th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group-meeting-2/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230925T200000
DTEND;TZID=America/New_York:20230925T210000
DTSTAMP:20261015T040510
CREATED:20230901T182141Z
LAST-MODIFIED:20230901T182204Z
UID:10000140-1695672000-1695675600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Monthly Support Group Meeting
DESCRIPTION:Join us Monday\, September 25th at 8pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Betsy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231010T200000
DTEND;TZID=America/New_York:20231010T210000
DTSTAMP:20261015T040510
CREATED:20230929T200033Z
LAST-MODIFIED:20230929T200124Z
UID:10000141-1696968000-1696971600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us Tuesday\, October 10th at 8 pm ET.\nTopic: The LGS entourage!\nCaring for someone with LGS is not a one-person job and yet\, many caregivers are wearing MANY hats! These include chauffeur\, doctor\, nurse\, equipment manager\, administrative assistant\, and many more. What’s your LGS caregiver job description? Are you getting any help or doing it all by yourself? Come join our monthly support group as we discuss this topic and anything else of importance because nobody should do this alone! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231018T200000
DTEND;TZID=America/New_York:20231018T210000
DTSTAMP:20261015T040510
CREATED:20230929T201310Z
LAST-MODIFIED:20230929T201310Z
UID:10000142-1697659200-1697662800@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join us Wednesday\, October 18th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
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