BEGIN:VCALENDAR VERSION:2.0 PRODID:-//LGS Foundation - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://www.lgsfoundation.org X-WR-CALDESC:Events for LGS Foundation REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20220313T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20221106T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20230312T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20231105T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:UTC BEGIN:STANDARD TZOFFSETFROM:+0000 TZOFFSETTO:+0000 TZNAME:UTC DTSTART:20220101T000000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Denver BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20220313T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20221106T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20230312T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20231105T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20240310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20241103T080000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Denver BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20220313T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20221106T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20230312T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20231105T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20240310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20241103T080000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20220313T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20221106T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20230312T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20231105T090000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20240310T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20241103T090000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20230517T200000 DTEND;TZID=America/New_York:20230517T210000 DTSTAMP:20260404T064725 CREATED:20230421T203524Z LAST-MODIFIED:20230531T205301Z UID:10000069-1684353600-1684357200@www.lgsfoundation.org SUMMARY:Dad to Dad - Monthly Support Group DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230522T200000 DTEND;TZID=America/New_York:20230522T210000 DTSTAMP:20260404T064725 CREATED:20230421T204005Z LAST-MODIFIED:20230516T203329Z UID:10000070-1684785600-1684789200@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - Monthly Support Group DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230613T200000 DTEND;TZID=America/New_York:20230613T210000 DTSTAMP:20260404T064725 CREATED:20230531T021200Z LAST-MODIFIED:20230531T193003Z UID:10000126-1686686400-1686690000@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together – Monthly Support Group DESCRIPTION:Save the Date & Join us on June 13th\, 2023 @ 8pm ET \nTOPIC: Making the Most of Summer  \nSchool’s out and summer has begun… How do you involve your loved one with LGS in summer activities? Can he/she attend camp? Summer school? Can the family take a nice vacation? Share your summer plans or just come to talk. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230621T200000 DTEND;TZID=America/New_York:20230621T210000 DTSTAMP:20260404T064725 CREATED:20230531T204155Z LAST-MODIFIED:20230531T204636Z UID:10000127-1687377600-1687381200@www.lgsfoundation.org SUMMARY:Dad to Dad - Monthly Support Group DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group-2/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230626T200000 DTEND;TZID=America/New_York:20230626T210000 DTSTAMP:20260404T064725 CREATED:20230531T205649Z LAST-MODIFIED:20230531T205649Z UID:10000128-1687809600-1687813200@www.lgsfoundation.org SUMMARY:Caregivers of Adults with LGS - Monthly Support Group DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-monthly-support-group/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230711T200000 DTEND;TZID=America/New_York:20230711T210000 DTSTAMP:20260404T064725 CREATED:20230705T182648Z LAST-MODIFIED:20230705T182648Z UID:10000131-1689105600-1689109200@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - July Support Group Meeting DESCRIPTION:Topic: Be Kind to Your Mind\nPlease join this monthly support group and our special guest who will share some tips on mindfulness and lead us all in a guided meditation. Prepare to treat yourselves and make some space for calm in the midst of all the LGS chaos. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230715T123000 DTEND;TZID=America/New_York:20230715T170000 DTSTAMP:20260404T064725 CREATED:20230228T203743Z LAST-MODIFIED:20230607T022258Z UID:10000117-1689424200-1689440400@www.lgsfoundation.org SUMMARY:Swing "FORE" a Cure DESCRIPTION:Join Us In Dublin\, Ohio On Saturday\, July 15\, 2023 For An Afternoon Of Fun As We\nSwing FORE A Cure\nFor Lennox-Gastaut Syndrome (LGS).\n\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n\nAbout This Event:\nFormat: 4 Person Scramble \nRegistration Opens: 12:30 pm ET \nShotgun Start: 2:00 pm ET \nAwards Given: 1st\, 2nd\, and Last Place Foursomes \nSpecial Contests: Longest Drive\, Closest to the Pin\, Longest Putt \nCosts: $125 per Golfer / $500 per Foursome / $5 Mulligans (max 2 per player) \nLearn More URL:https://www.lgsfoundation.org/event/swing-fore-a-cure-2/ LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/03/2023-Updated-Swing-FORE-a-Cure-Event-Banner.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org GEO:40.0874409413;-83.173546793 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413 END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230719T200000 DTEND;TZID=America/New_York:20230719T210000 DTSTAMP:20260404T064725 CREATED:20230705T184009Z LAST-MODIFIED:20230705T184009Z UID:10000132-1689796800-1689800400@www.lgsfoundation.org SUMMARY:Dad to Dad - July Support Group Meeting DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230724T200000 DTEND;TZID=America/New_York:20230724T210000 DTSTAMP:20260404T064725 CREATED:20230705T191131Z LAST-MODIFIED:20230724T210453Z UID:10000133-1690228800-1690232400@www.lgsfoundation.org SUMMARY:Caregivers of Adults with LGS - July Support Group Meeting DESCRIPTION:Living with LGS is a marathon\, not a sprint.\n\nJuly 24\, 2023\, 8:00 pm – 9:00 pm ET\n\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-july-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230808T200000 DTEND;TZID=America/New_York:20230808T210000 DTSTAMP:20260404T064725 CREATED:20230728T174307Z LAST-MODIFIED:20230728T180008Z UID:10000134-1691524800-1691528400@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - Monthly Support Group Meeting DESCRIPTION:Join us Tuesday\, August 8th at 8 pm ET.\nTopic: The Long\, Hot Summer – How are you Managing?\nWith record-high temperatures hitting most of the world\, how have our loved ones with LGS been handling this long\, hot summer? Have any of them been able to attend a program or a camp that meets their needs? \nCome to our monthly group and share everything from your strategies and tips for staying cool and having fun – to your woes and worries about how to support someone with LGS and their siblings! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230812T200000 DTEND;TZID=America/New_York:20230812T210000 DTSTAMP:20260404T064725 CREATED:20230510T213749Z LAST-MODIFIED:20230523T002923Z UID:10000074-1691870400-1691874000@www.lgsfoundation.org SUMMARY:LGS Foundation's 15th Anniversary Dance Party DESCRIPTION:This family-friendly event is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/lgs-foundations-15th-anniversary-dance-party/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/05/15th-Anniversary-Dance-Party-1.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230816T200000 DTEND;TZID=America/New_York:20230816T210000 DTSTAMP:20260404T064725 CREATED:20230728T175157Z LAST-MODIFIED:20230728T175157Z UID:10000135-1692216000-1692219600@www.lgsfoundation.org SUMMARY:Dad to Dad - Monthly Support Group Meeting DESCRIPTION:Join us Wednesday\, August 16th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group-meeting/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230828T200000 DTEND;TZID=America/New_York:20230828T210000 DTSTAMP:20260404T064725 CREATED:20230728T175845Z LAST-MODIFIED:20230728T175915Z UID:10000136-1693252800-1693256400@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - Monthly Support Group Meeting DESCRIPTION:Join us Monday\, August 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230913 DTEND;VALUE=DATE:20230917 DTSTAMP:20260404T064725 CREATED:20230110T231229Z LAST-MODIFIED:20230616T231344Z UID:10000111-1694563200-1694908799@www.lgsfoundation.org SUMMARY:LGS Meeting of the Minds DESCRIPTION:-Save The Date-\n2023 LGS Meeting Of The Minds:\nAdvancing Clinical Research\nSeptember  14-15\, 2023: Research Conference\nSeptember 16\, 2023: Family Research Day\nThe LGS Foundation is hosting its second Meeting of the Minds to discuss how we can Advance Clinical Research in LGS. For this hybrid conference\, we will bring together patients\, families\, doctors\, researchers\, and partners to understand how we can learn from every patient and brainstorm how to find the best treatments for LGS. \nWe hope you will join us!\n  \n\n\nLearn More URL:https://www.lgsfoundation.org/event/lgs-meeting-of-the-minds/ ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/11/MoM-Webpage-Banners.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230919T200000 DTEND;TZID=America/New_York:20230919T210000 DTSTAMP:20260404T064725 CREATED:20230901T175818Z LAST-MODIFIED:20230901T180754Z UID:10000138-1695153600-1695157200@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - Monthly Support Group Meeting DESCRIPTION:Join us Tuesday\, September 19th\, 2023\nTopic: Summer’s over and school is back in session.\nThis can be a difficult time for our families as we meet new teachers\, and build new relationships in the school community. It can also be a relief for caregivers as we get back into a much-needed routine. How does fall work for your family? And if your child isn’t in school yet or has finished school\, what changes are you expecting as we head into fall? \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230920T200000 DTEND;TZID=America/New_York:20230920T210000 DTSTAMP:20260404T064725 CREATED:20230901T181307Z LAST-MODIFIED:20230901T181425Z UID:10000139-1695240000-1695243600@www.lgsfoundation.org SUMMARY:Dad to Dad - Monthly Support Group Meeting DESCRIPTION:Join us Wednesday\, September 20th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group-meeting-2/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20230925T200000 DTEND;TZID=America/New_York:20230925T210000 DTSTAMP:20260404T064725 CREATED:20230901T182141Z LAST-MODIFIED:20230901T182204Z UID:10000140-1695672000-1695675600@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - Monthly Support Group Meeting DESCRIPTION:Join us Monday\, September 25th at 8pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Betsy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231010T200000 DTEND;TZID=America/New_York:20231010T210000 DTSTAMP:20260404T064725 CREATED:20230929T200033Z LAST-MODIFIED:20230929T200124Z UID:10000141-1696968000-1696971600@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting DESCRIPTION:Join us Tuesday\, October 10th at 8 pm ET.\nTopic: The LGS entourage!\nCaring for someone with LGS is not a one-person job and yet\, many caregivers are wearing MANY hats! These include chauffeur\, doctor\, nurse\, equipment manager\, administrative assistant\, and many more. What’s your LGS caregiver job description? Are you getting any help or doing it all by yourself? Come join our monthly support group as we discuss this topic and anything else of importance because nobody should do this alone! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231018T200000 DTEND;TZID=America/New_York:20231018T210000 DTSTAMP:20260404T064725 CREATED:20230929T201310Z LAST-MODIFIED:20230929T201310Z UID:10000142-1697659200-1697662800@www.lgsfoundation.org SUMMARY:Dad to Dad – October Support Group Meeting DESCRIPTION:Join us Wednesday\, October 18th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231030T200000 DTEND;TZID=America/New_York:20231030T210000 DTSTAMP:20260404T064725 CREATED:20230929T201739Z LAST-MODIFIED:20230929T201739Z UID:10000143-1698696000-1698699600@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting DESCRIPTION:Join us Monday\, October 30th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20231031T180000 DTEND;TZID=America/Denver:20231031T200000 DTSTAMP:20260404T064725 CREATED:20230901T004046Z LAST-MODIFIED:20231013T003359Z UID:10000137-1698775200-1698782400@www.lgsfoundation.org SUMMARY:Halloween Dance Party DESCRIPTION:Epilepsy Alliance America is hosting the Second Annual \nHALLOWEEN DANCE PARTY \nTuesday\, October 31\, 2023 from 6:00pm – 8:00pm PT\nin the Magic Kingdom Ballroom at the Disneyland Hotel in Anaheim\, California.\n(Capacity is limited to 600 attendees so it is essential that you RSVP.)   \nRSVP HERE.\n\nABOUT THE EVENT\nJoin us for FUN\, DANCING\, GAMES\, PRIZES\, GIVEAWAYS and our COSTUME PARADE as we celebrate Halloween 2023!\nDJ Kara will be spinning the tunes and leading dances for those of all ABILITIES! \n \nCostumes Encouraged\nCostumes for ALL are encouraged but not required. Please refrain from monsters and other scary costumes\, costume weapons\, gore\, or other items that may frighten children. \nWe will provide masks\, capes\, and other costuming props free at the door to ensure everyone who wants to be dressed up is included. \nLearn More @ www.epilepsyallianceamerica.org/event/halloween-dance-party URL:https://www.lgsfoundation.org/event/halloween-dance-party/ LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/08/Epilepsy-Alliance-Halloween-Party-Event-Header.png GEO:33.809202;-117.9269399 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202 END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20231101T080000 DTEND;TZID=UTC:20231130T170000 DTSTAMP:20260404T064725 CREATED:20230510T205458Z LAST-MODIFIED:20230518T183901Z UID:10000073-1698825600-1701363600@www.lgsfoundation.org SUMMARY:International LGS Awareness Day: Kicking-Off Epilepsy Awareness Month DESCRIPTION:November 1st is annual International LGS Awareness Day! \nEach year\, the LGS Foundation organizes a social media campaign and in-person events around the world in recognition of LGS Day in an effort to raise awareness and bring LGS families together. Numerous landmarks and locations will Illuminate for LGS by lighting up in purple and green. In addition\, the LGS Foundation holds a Signature Themed Event around November 1st to raise critical funds for LGS research. \nLearn More URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day-kicking-off-epilepsy-awareness-month/ ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/2023-EAM-Web-Banner.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Denver:20231104T150000 DTEND;TZID=America/Denver:20231104T170000 DTSTAMP:20260404T064725 CREATED:20231020T151012Z LAST-MODIFIED:20231020T154315Z UID:10000144-1699110000-1699117200@www.lgsfoundation.org SUMMARY:Special Needs Awareness Day - "Don't Stare\, Say Hi" DESCRIPTION:Join us for a day of fun\, awareness\, and inclusion!\nGirl Scout Troop 46312 is bringing awareness to Colorado Springs\, Colorado!\nNovember 4th\, 2023\n\n\nGirl Scout Troop 46312 in Colorado Springs Co is hosting a Special Needs awareness day for all to come!\n\n  \n\n\nThe girls have all taken a few months to learn about a disability that either they were interested in or a family member or themselves have. We asked them to make a trifold board to be able to present it at the awareness day! We have many non profit organizations and companies coming to help show what they do and how they help the special needs community!\n\n  \n\n\nOur main focus for this event is to teach everyone “Don’t stare\, Say Hi”. People with disabilities are human and still want to be involved. Inclusion is everything and we hope you walk away from this event with more understanding and love in your hearts!\n\n  \n\n\nCome check it out at:\n1201 Leta Drive\nColorado Springs\, Co 80911 URL:https://www.lgsfoundation.org/event/special-needs-awareness-day-dont-stare-say-hi/ LOCATION:Good Shepherds Church\, 1201 Leta Drive\, Colorado Springs\, CO\, 80911\, United States GEO:38.7658669;-104.7382103 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Good Shepherds Church 1201 Leta Drive Colorado Springs CO 80911 United States;X-APPLE-RADIUS=500;X-TITLE=1201 Leta Drive:geo:-104.7382103,38.7658669 END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20231104T180000 DTEND;TZID=America/Los_Angeles:20231104T203000 DTSTAMP:20260404T064725 CREATED:20230517T201744Z LAST-MODIFIED:20230824T180736Z UID:10000125-1699120800-1699129800@www.lgsfoundation.org SUMMARY:LGS Foundation Anniversary Dinner DESCRIPTION:You’re Invited!\nJoin us as we celebrate our 15th Anniversary of service to the LGS Community! For 15 years\, with your help\, we have improved the lives of those impacted by LGS through advancing research\, awareness\, education\, and family support. \n \nGET YOUR TICKETS NOW \n \n\n\n\nWant to Give Hope for the Future? Consider Sponsoring the Event or Donate to the Silent Auction.\nPlease email us at Giving@LGSFoundation.org. \nIndividuals and families impacted by LGS can email info@lgsfoundation.org to request the Family Discount Code prior to purchasing tickets. \n\n\nThank You to Our International LGS Awareness Day Partners\n \n  URL:https://www.lgsfoundation.org/event/lgs-foundation-15th-anniversary-dinner/ LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/08/Header-Banner-for-Emails.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org GEO:32.7257202;-117.2072312 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202 END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231114T200000 DTEND;TZID=America/New_York:20231114T210000 DTSTAMP:20260404T064725 CREATED:20231103T144555Z LAST-MODIFIED:20231103T145621Z UID:10000145-1699992000-1699995600@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - November Support Group Meeting DESCRIPTION:Join us Tuesday\, November 14th at 8 pm ET.\nTopic: Finding gratitude in the LGS journey\nWith Thanksgiving approaching\, it’s that time of year where we gather with our loved ones to give thanks. Please join our November support group where we’ll focus on the challenges of finding gratitude in the LGS journey. Has it been possible for you? Our caregiver community is here to listen\, share\, and support one another because together we ARE stronger! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-november-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231115T200000 DTEND;TZID=America/New_York:20231115T210000 DTSTAMP:20260404T064725 CREATED:20231103T144903Z LAST-MODIFIED:20231103T145542Z UID:10000146-1700078400-1700082000@www.lgsfoundation.org SUMMARY:Dad to Dad - November Support Group Meeting DESCRIPTION:Join us Wednesday\, November 15th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-november-support-group-meeting/ LOCATION:Virtual ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231127T200000 DTEND;TZID=America/New_York:20231127T210000 DTSTAMP:20260404T064725 CREATED:20231103T145329Z LAST-MODIFIED:20231103T145329Z UID:10000147-1701115200-1701118800@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - November Support Group Meeting DESCRIPTION:Join us Monday\, November 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-november-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20231201 DTEND;VALUE=DATE:20231206 DTSTAMP:20260404T064725 CREATED:20230616T191249Z LAST-MODIFIED:20230616T194509Z UID:10000130-1701388800-1701820799@www.lgsfoundation.org SUMMARY:LGS Foundation @ AES 2023 DESCRIPTION:Join us at AES in Orlando\, Florida\nAre you attending the American Epilepsy Society Annual Meeting in Orlando\, Florida in December? \nVisit us in the Epilepsy Resource Area of the Exhibit Hall. Here\, our team will be available to answer questions and provide support. \nMore information coming soon.  URL:https://www.lgsfoundation.org/event/lgs-foundation-aes-2023/ LOCATION:Orange County Convention Center\, 9800 International Dr\, Orlando\, FL\, 32819\, United States ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/06/LGS-Foundation-@-AES.png GEO:28.4254201;-81.4631863 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Orange County Convention Center 9800 International Dr Orlando FL 32819 United States;X-APPLE-RADIUS=500;X-TITLE=9800 International Dr:geo:-81.4631863,28.4254201 END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20231212T200000 DTEND;TZID=America/New_York:20231212T210000 DTSTAMP:20260404T064725 CREATED:20231208T145738Z LAST-MODIFIED:20231208T145738Z UID:10000148-1702411200-1702414800@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together - December Support Group Meeting DESCRIPTION:Join us on Tuesday\, December 12th at 8 pm ET.\nTopic: The Power of Finding Your Tribe\nWhat do Christmas\, Hanukkah and Kwanzaa have in common other than the fact that they all occur in December? COMMUNITY! \nThis month we focus on the LGS community and the power of finding your tribe. So whether you light a candle on the Menorah or the Kinara\, or whether you jingle all the way\, you’re always welcome here. The LGS caregiver community will be your second home where you can share freely and confidentially with others who know you. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-december-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240116T200000 DTEND;TZID=America/New_York:20240116T210000 DTSTAMP:20260404T064725 CREATED:20240103T174132Z LAST-MODIFIED:20240103T174132Z UID:10000149-1705435200-1705438800@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - January Support Group Meeting DESCRIPTION:Join us Tuesday\, January 16th at 8 pm ET.\nTopic: The LGS Resolution(s)\nJanuary is when we set our goals and plan for the year ahead. So what are the goals when you’re caring for someone with LGS? \nIs it time to order new equipment? Try a new medication? Focus on your own needs? Focus on your other children’s needs? Begin future-planning? Is there something you’ve been putting off because you don’t know where to begin? \nBring your goals to our January Support group and let’s help one another get organized for another busy year because we’re Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT END:VCALENDAR