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DTSTART;TZID=America/New_York:20240716T200000
DTEND;TZID=America/New_York:20240716T210000
DTSTAMP:20260406T074934
CREATED:20240701T162926Z
LAST-MODIFIED:20240701T162926Z
UID:10000174-1721160000-1721163600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – July Support Group Meeting
DESCRIPTION:Join us Tuesday\, July 16th @ 8 pm ET\nTopic: Conference Recap!\nThank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways\, answer your questions\, and check in to see how everything is going with YOU! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240717T200000
DTEND;TZID=America/New_York:20240717T210000
DTSTAMP:20260406T074934
CREATED:20240701T163321Z
LAST-MODIFIED:20240701T163321Z
UID:10000175-1721246400-1721250000@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join us Wednesday\, July 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-2/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240722T200000
DTEND;TZID=America/New_York:20240722T210000
DTSTAMP:20260406T074934
CREATED:20240701T163722Z
LAST-MODIFIED:20240701T163722Z
UID:10000176-1721678400-1721682000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240813T200000
DTEND;TZID=America/New_York:20240813T210000
DTSTAMP:20260406T074934
CREATED:20240730T182959Z
LAST-MODIFIED:20240730T183059Z
UID:10000177-1723579200-1723582800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 13th @ 8 pm ET\nTopic: Self-Blame – It’s not your fault!\nDoes any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet\, fell onto the coffee table\, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you\, the caregiver. But listen to this one truth – It’s not your fault!  You blame yourself and other family members may blame you\, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240821T200000
DTEND;TZID=America/New_York:20240821T210000
DTSTAMP:20260406T074934
CREATED:20240730T183551Z
LAST-MODIFIED:20240730T183551Z
UID:10000178-1724270400-1724274000@www.lgsfoundation.org
SUMMARY:Dad to Dad - August Support Group Meeting
DESCRIPTION:Join us Wednesday\, August 21st @ 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240826T200000
DTEND;TZID=America/New_York:20240826T210000
DTSTAMP:20260406T074934
CREATED:20240730T184012Z
LAST-MODIFIED:20240730T184012Z
UID:10000179-1724702400-1724706000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS - August Support Group Meeting
DESCRIPTION:Join us Monday\, August 26th @ 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T200000
DTEND;TZID=America/New_York:20240917T210000
DTSTAMP:20260406T074934
CREATED:20240830T134957Z
LAST-MODIFIED:20240830T134957Z
UID:10000181-1726603200-1726606800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Sept. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 17th at 8 pm ET.\nTopic: Back to Support Groups. Back to school. Back to routines. Back to YOU! \nWas summer relaxing or stressful? Did you miss the routines? Did the heat bring more seizures and behaviors? \nJoin us as we check in with one another and get ready for fall. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T200000
DTEND;TZID=America/New_York:20240918T210000
DTSTAMP:20260406T074934
CREATED:20240830T135707Z
LAST-MODIFIED:20240830T135707Z
UID:10000182-1726689600-1726693200@www.lgsfoundation.org
SUMMARY:Dad to Dad - Sept. Support Group Meeting
DESCRIPTION:Join us Wednesday\, September 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-sept-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240923T200000
DTEND;TZID=America/New_York:20240923T210000
DTSTAMP:20260406T074934
CREATED:20240830T141245Z
LAST-MODIFIED:20240830T141245Z
UID:10000183-1727121600-1727125200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Sept. Support Group Meeting
DESCRIPTION:Join us Monday\, September 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T200000
DTEND;TZID=America/New_York:20241015T210000
DTSTAMP:20260406T074934
CREATED:20240911T195609Z
LAST-MODIFIED:20241007T120832Z
UID:10000185-1729022400-1729026000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Oct. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 15th at 8 pm ET.\nTopic: Friendship!\nWhether you have a large tribe of good pals or just one special person in your life\, everyone needs a confidante. When your child has LGS\, you need that person who can see inside your heart and know the struggles and the joys of raising that wonderful person with LGS. Let’s talk about THAT person! He/She/They need to be acknowledged for helping us survive. \nLet’s stop to celebrate the friends in our lives who provide moments of normalcy in a chaotic LGS world. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241016T200000
DTEND;TZID=America/New_York:20241016T210000
DTSTAMP:20260406T074934
CREATED:20240911T201243Z
LAST-MODIFIED:20240911T201243Z
UID:10000187-1729108800-1729112400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Oct. Support Group Meeting
DESCRIPTION:Join us Wednesday\, October 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-oct-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241028T200000
DTEND;TZID=America/New_York:20241028T210000
DTSTAMP:20260406T074934
CREATED:20240911T202707Z
LAST-MODIFIED:20240911T202707Z
UID:10000189-1730145600-1730149200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Oct. Support Group Meeting
DESCRIPTION:Join us Monday\, October 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241102
DTSTAMP:20260406T074934
CREATED:20240830T150933Z
LAST-MODIFIED:20240905T201804Z
UID:10000184-1730419200-1730505599@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day
DESCRIPTION:Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!\nOn November 1st\, International LGS Awareness Day\, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS). \nLGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent\, often daily\, debilitating seizures\, cognitive impairment\, developmental regression\, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP). \nThere are currently no cures\, but there is a hopeful path forward with increased awareness of the devastating disorder! \n\n\n\n\nTogether\, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.\nClick here to learn more about how YOU can get involved with our awareness efforts!
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/08/Copy-of-2024-Banner-for-Website-1200-x-400-px-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241102T180000
DTEND;TZID=America/Los_Angeles:20241102T213000
DTSTAMP:20260406T074934
CREATED:20240508T171355Z
LAST-MODIFIED:20240508T182702Z
UID:10000169-1730570400-1730583000@www.lgsfoundation.org
SUMMARY:LGS Foundation Annual Awareness Dinner
DESCRIPTION:Tickets are now available for the biggest night of the year!\nThe 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday\, November 2nd at the Harbor View Loft in San Diego\, California. The evening will feature a silent auction and cocktail reception\, seated dinner\, inspirational program\, exciting live auction\, live entertainment\, and more. \nThis memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS. \n  \nClick Here to Register Now
URL:https://www.lgsfoundation.org/event/lgs-foundation-annual-awareness-dinner/
LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/05/2024-IAD-Dinner-Event-Header-San-Diego-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.7257202;-117.2072312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241112T200000
DTEND;TZID=America/New_York:20241112T210000
DTSTAMP:20260406T074934
CREATED:20240911T200204Z
LAST-MODIFIED:20240911T200204Z
UID:10000186-1731441600-1731445200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Nov. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 12th at 8 pm ET.\nTopic: The Holiday Season is Here!\nThis time of year can stir up a lot of feelings. Are you stressed out about having to deal with comments from family members who don’t get it? Are you struggling with ideas for gift-giving when your full-grown son/daughter with LGS still prefers toddler toys? Are you conflicted over how to support the siblings while just wanting to call the whole thing off and hide under your blankets? Or\, is this a time of year that gives you great comfort and joy? \nJoin us as we talk it out\, share\, and support one another at this family-focused time of year. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-nov-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241120T200000
DTEND;TZID=America/New_York:20241120T210000
DTSTAMP:20260406T074934
CREATED:20240911T201941Z
LAST-MODIFIED:20240911T201941Z
UID:10000188-1732132800-1732136400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Nov. Support Group Meeting
DESCRIPTION:Join us Wednesday\, November 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-nov-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241121T200000
DTEND;TZID=America/New_York:20241121T210000
DTSTAMP:20260406T074934
CREATED:20241028T132039Z
LAST-MODIFIED:20241028T132039Z
UID:10000191-1732219200-1732222800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
DESCRIPTION:Join us Thursday\, November 21st at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-noviembr/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/10/LGS-Grupo-de-Esperanza-5.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241125T200000
DTEND;TZID=America/New_York:20241125T210000
DTSTAMP:20260406T074934
CREATED:20240912T164204Z
LAST-MODIFIED:20240912T164204Z
UID:10000190-1732564800-1732568400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Nov. Support Group Meeting
DESCRIPTION:Join us Monday\, November 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-nov-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241205T193000
DTEND;TZID=America/Los_Angeles:20241205T220000
DTSTAMP:20260406T074934
CREATED:20240508T182306Z
LAST-MODIFIED:20241017T150705Z
UID:10000170-1733427000-1733436000@www.lgsfoundation.org
SUMMARY:A New Musical: It's All Your Fault\, Tyler Price!
DESCRIPTION:Emmy winner Ben Decter (Lucifer) and Tony nominee Kristin Hanggi (Rock of Ages) have collaborated on a new musical\, It’s All Your Fault\, Tyler Price! The work will get a world premiere at the Hudson Theatre in Hollywood November 7-December 15. Opening night will be November 14th. \nOn December 5th\, all proceeds will go directly to the LGS Foundation!  \nClick here to get your tickets now! \nThe musical follows a middle school kid who punches his bully\, Tyler Price\, defending his epileptic sister. His principal demands he explain himself to the entire school\, which\, naturally drives him to stage a musical. \n“When my family was in crisis—my little girl\, diagnosed with Lennox-Gastaut Syndrome\, was having 100 seizures a day and we felt so isolated—I never imagined a musical would grow out of it. Writing these songs helped my family have difficult conversations and come together\,” says Decter in a statement. “It’s All Your Fault\, Tyler Price! is a fun\, irreverent look at a family going through a really hard time—that everyone can relate to.” \n“This musical is a true passion project for us. It’s about dealing with struggles in our families and how challenging it is to be seen by those closest to us\,” adds Hanggi. “Through art\, our characters learn to explore uncomfortable feelings—things that can be difficult to share or admit. We can’t wait for Los Angeles—where I’ve gotten the opportunity to launch other new musicals—to see our show!” \nSponsors and Community Partners for the upcoming production include Epilepsy Foundation\, Epilepsy Foundation Los Angeles\, the Lennox-Gastaut Syndrome (LGS) Foundation\, The Children’s Ranch\, and more. \nLearn more about the amazing cast and show dates at TylerPriceMusical.com. \nNew Los Angeles Musical Highlights One Family’s Struggle to Live With Epilepsy and Lennox-Gastaut Syndrome
URL:https://www.lgsfoundation.org/event/new-musical-its-all-your-fault-tyler-price-to-premiere-in-los-angeles/
LOCATION:The Hudson Theatre\, Santa Monica Boulevard\, Los Angeles\, CA\, 90038\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2024/05/TylerPrice.jpg
GEO:34.0908563;-118.3321793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=The Hudson Theatre Santa Monica Boulevard Los Angeles CA 90038 United States;X-APPLE-RADIUS=500;X-TITLE=Santa Monica Boulevard:geo:-118.3321793,34.0908563
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241206
DTEND;VALUE=DATE:20241211
DTSTAMP:20260406T074934
CREATED:20240830T130705Z
LAST-MODIFIED:20240830T143436Z
UID:10000180-1733443200-1733875199@www.lgsfoundation.org
SUMMARY:LGS Foundation @ AES
DESCRIPTION:Join us at AES in Los Angeles\, California\nAre you attending the American Epilepsy Society Annual Meeting in December? \nWe invite you to stop by Booth N2148 in the Epilepsy Resource Area of the Exhibit Hall. Our team will be available from December 7 – 9\, 2024 to support and assist with inquires. \nLearn More \n  \nTo learn more about the LGS Foundation’s Research Programs\, visit our Finding the Cures\, Together page.
URL:https://www.lgsfoundation.org/event/lgs-foundation-aes/
LOCATION:THE LOS ANGELES CONVENTION CENTER\, South Figueroa Street\, Los Angeles\, CA\, 90015\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/06/LGS-Foundation-@-AES-1-e1726172316594.png
GEO:34.0414337;-118.2689545
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=THE LOS ANGELES CONVENTION CENTER South Figueroa Street Los Angeles CA 90015 United States;X-APPLE-RADIUS=500;X-TITLE=South Figueroa Street:geo:-118.2689545,34.0414337
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250114T200000
DTEND;TZID=America/New_York:20250114T210000
DTSTAMP:20260406T074934
CREATED:20241231T220809Z
LAST-MODIFIED:20241231T220809Z
UID:10000192-1736884800-1736888400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 14th at 8 pm ET.\nTopic: Celebrating You in 2025!\nLGS caregivers do not give themselves enough credit so let’s start the year off right. Let’s talk about you and all that you managed to pull off last year.\nMaybe you advocated strongly at an IEP meeting. Maybe you started a new job. Maybe you got a massage or managed to finally shower every day. Let’s begin 2025 by pledging a strong commitment to honoring ourselves as caregivers\, and so much more! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T200000
DTEND;TZID=America/New_York:20250116T210000
DTSTAMP:20260406T074934
CREATED:20241231T225655Z
LAST-MODIFIED:20241231T225655Z
UID:10000198-1737057600-1737061200@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza
DESCRIPTION:Join us Thursday\, January 16th at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250121T200000
DTEND;TZID=America/New_York:20250121T210000
DTSTAMP:20260406T074934
CREATED:20241231T224203Z
LAST-MODIFIED:20241231T224203Z
UID:10000195-1737489600-1737493200@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group Meeting
DESCRIPTION:Join us Tuesday\, January 21st at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250127T200000
DTEND;TZID=America/New_York:20250127T210000
DTSTAMP:20260406T074934
CREATED:20241231T231117Z
LAST-MODIFIED:20241231T231117Z
UID:10000201-1738008000-1738011600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - January Support Group Meeting
DESCRIPTION:Join us Monday\, January 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-january-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250211T200000
DTEND;TZID=America/New_York:20250211T210000
DTSTAMP:20260406T074934
CREATED:20241231T221352Z
LAST-MODIFIED:20241231T221352Z
UID:10000193-1739304000-1739307600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting
DESCRIPTION:Join us on Tuesday\, February 11th at 8 pm ET.\nTopic: It’s All About Love!\nWe shed a lot of tears as caregivers. Because we love so deeply and fight for our loved ones so fiercely. It isn’t always a heartbreaking love. There’s joy as well. With Valentine’s Day just around the corner\, can we stop for a moment and celebrate LOVE? \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250218T200000
DTEND;TZID=America/New_York:20250218T210000
DTSTAMP:20260406T074934
CREATED:20241231T224700Z
LAST-MODIFIED:20241231T224700Z
UID:10000196-1739908800-1739912400@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group Meeting
DESCRIPTION:Join us Tuesday\, February 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250220T200000
DTEND;TZID=America/New_York:20250220T210000
DTSTAMP:20260406T074934
CREATED:20241231T230253Z
LAST-MODIFIED:20241231T230253Z
UID:10000199-1740081600-1740085200@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza
DESCRIPTION:Join us Thursday\, February 20th at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250224T200000
DTEND;TZID=America/New_York:20250224T210000
DTSTAMP:20260406T074934
CREATED:20241231T231440Z
LAST-MODIFIED:20241231T231440Z
UID:10000202-1740427200-1740430800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – February Support Group Meeting
DESCRIPTION:Join us Monday\, February 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-february-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T190000
DTEND;TZID=America/New_York:20250311T210000
DTSTAMP:20260406T074934
CREATED:20241231T222023Z
LAST-MODIFIED:20250101T164247Z
UID:10000194-1741719600-1741726800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us on Tuesday\, March 11th at 7 pm ET.\nTopic: PTSD & the Impact of LGS on the Caregivers\nMany LGS caregivers have expressed feeling traumatized from witnessing ongoing seizures and their effects on their loved ones.\nPlease join us for a special 2-hour support group that will begin with a recorded presentation from a trauma expert and mother of a child with catastrophic seizures. We’ll follow this talk with our support group and discussion. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250318T200000
DTEND;TZID=America/New_York:20250318T210000
DTSTAMP:20260406T074934
CREATED:20241231T225035Z
LAST-MODIFIED:20241231T225035Z
UID:10000197-1742328000-1742331600@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR