LGS Foundation

Dad to Dad – June Support Group Meeting
2024-06-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, June 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

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2024 Annual Swing "FORE" the Cures
2024-06-23 12:30 - 19:00 (America/New_York) | Golf Club of Dublin, 5805 Eiterman Rd, Dublin, OH, 43016, United States
Join us in Dublin, Ohio on Sunday, June 23, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for Lennox-Gastaut Syndrome (LGS).
LGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​
You can help us by participating in or donating to Swing “FORE” the Cures!
REGISTER NOW!

Caregiver of Adults with LGS – June Support Group Meeting
2024-06-24 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, June 24th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

9th International LGS Family & Professional Conference
2024-07-12 09:00 - 2024-07-14 17:00 (America/New_York) | Sheraton Grand at Wild Horse Pass, 5594 W. Wild Horse Pass, Phoenix, AZ, 85226, United States
9th International Family & Professional Conference
July 12-14, 2024
Sheraton Grand at Wild Horse Pass
5594 W. Wild Horse Pass Blvd.
Phoenix, AZ 85226
REGISTER TO ATTEND NOW!

Standing Together. Stronger Together. – July Support Group Meeting
2024-07-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, July 16th @ 8 pm ET
Topic: Conference Recap!
Thank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways, answer your questions, and check in to see how everything is going with YOU!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – July Support Group Meeting
2024-07-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, July 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – July Support Group Meeting
2024-07-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, July 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - August Support Group Meeting
2024-08-13 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 13th @ 8 pm ET
Topic: Self-Blame – It’s not your fault!
Does any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet, fell onto the coffee table, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you, the caregiver. But listen to this one truth – It’s not your fault! You blame yourself and other family members may blame you, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - August Support Group Meeting
2024-08-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, August 21st @ 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregivers of Adults with LGS - August Support Group Meeting
2024-08-26 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, August 26th @ 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Sept. Support Group Meeting
2024-09-17 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, September 17th at 8 pm ET.
Topic: Back to Support Groups. Back to school. Back to routines. Back to YOU!
Was summer relaxing or stressful? Did you miss the routines? Did the heat bring more seizures and behaviors?
Join us as we check in with one another and get ready for fall.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Sept. Support Group Meeting
2024-09-18 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, September 18th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Sept. Support Group Meeting
2024-09-23 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, September 23rd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Oct. Support Group Meeting
2024-10-15 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, October 15th at 8 pm ET.
Topic: Friendship!
Whether you have a large tribe of good pals or just one special person in your life, everyone needs a confidante. When your child has LGS, you need that person who can see inside your heart and know the struggles and the joys of raising that wonderful person with LGS. Let’s talk about THAT person! He/She/They need to be acknowledged for helping us survive.
Let’s stop to celebrate the friends in our lives who provide moments of normalcy in a chaotic LGS world.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Oct. Support Group Meeting
2024-10-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, October 16th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Oct. Support Group Meeting
2024-10-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, October 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

International LGS Awareness Day
2024-11-01 | FL
Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!
On November 1st, International LGS Awareness Day, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS).
LGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent, often daily, debilitating seizures, cognitive impairment, developmental regression, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP).
There are currently no cures, but there is a hopeful path forward with increased awareness of the devastating disorder!

Together, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.
Click here to learn more about how YOU can get involved with our awareness efforts!

LGS Foundation Annual Awareness Dinner
2024-11-02 18:00 - 21:30 (America/Los_Angeles) | Harbor View Loft, 1880 Harbor Island Drive, San Diego, CA, 92101, United States
Tickets are now available for the biggest night of the year!
The 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday, November 2nd at the Harbor View Loft in San Diego, California. The evening will feature a silent auction and cocktail reception, seated dinner, inspirational program, exciting live auction, live entertainment, and more.
This memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS.

Click Here to Register Now

Standing Together. Stronger Together. - Nov. Support Group Meeting
2024-11-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, November 12th at 8 pm ET.
Topic: The Holiday Season is Here!
This time of year can stir up a lot of feelings. Are you stressed out about having to deal with comments from family members who don’t get it? Are you struggling with ideas for gift-giving when your full-grown son/daughter with LGS still prefers toddler toys? Are you conflicted over how to support the siblings while just wanting to call the whole thing off and hide under your blankets? Or, is this a time of year that gives you great comfort and joy?
Join us as we talk it out, share, and support one another at this family-focused time of year.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Nov. Support Group Meeting
2024-11-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, November 20th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
2024-11-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Thursday, November 21st at 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Nov. Support Group Meeting
2024-11-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, November 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

A New Musical: It's All Your Fault, Tyler Price!
2024-12-05 19:30 - 22:00 (America/Los_Angeles) | The Hudson Theatre, Santa Monica Boulevard, Los Angeles, CA, 90038, United States
Emmy winner Ben Decter (Lucifer) and Tony nominee Kristin Hanggi (Rock of Ages) have collaborated on a new musical, It’s All Your Fault, Tyler Price! The work will get a world premiere at the Hudson Theatre in Hollywood November 7-December 15. Opening night will be November 14th.
On December 5th, all proceeds will go directly to the LGS Foundation!
Click here to get your tickets now!
The musical follows a middle school kid who punches his bully, Tyler Price, defending his epileptic sister. His principal demands he explain himself to the entire school, which, naturally drives him to stage a musical.
“When my family was in crisis—my little girl, diagnosed with Lennox-Gastaut Syndrome, was having 100 seizures a day and we felt so isolated—I never imagined a musical would grow out of it. Writing these songs helped my family have difficult conversations and come together,” says Decter in a statement. “It’s All Your Fault, Tyler Price! is a fun, irreverent look at a family going through a really hard time—that everyone can relate to.”
“This musical is a true passion project for us. It’s about dealing with struggles in our families and how challenging it is to be seen by those closest to us,” adds Hanggi. “Through art, our characters learn to explore uncomfortable feelings—things that can be difficult to share or admit. We can’t wait for Los Angeles—where I’ve gotten the opportunity to launch other new musicals—to see our show!”
Sponsors and Community Partners for the upcoming production include Epilepsy Foundation, Epilepsy Foundation Los Angeles, the Lennox-Gastaut Syndrome (LGS) Foundation, The Children’s Ranch, and more.
Learn more about the amazing cast and show dates at TylerPriceMusical.com.
New Los Angeles Musical Highlights One Family’s Struggle to Live With Epilepsy and Lennox-Gastaut Syndrome

LGS Foundation @ AES
2024-12-06 - 2024-12-10 | THE LOS ANGELES CONVENTION CENTER, South Figueroa Street, Los Angeles, CA, 90015, United States
Join us at AES in Los Angeles, California
Are you attending the American Epilepsy Society Annual Meeting in December?
We invite you to stop by Booth N2148 in the Epilepsy Resource Area of the Exhibit Hall. Our team will be available from December 7 – 9, 2024 to support and assist with inquires.
Learn More

To learn more about the LGS Foundation’s Research Programs, visit our Finding the Cures, Together page.

Standing Together. Stronger Together. - January Support Group Meeting
2025-01-14 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, January 14th at 8 pm ET.
Topic: Celebrating You in 2025!
LGS caregivers do not give themselves enough credit so let’s start the year off right. Let’s talk about you and all that you managed to pull off last year.
Maybe you advocated strongly at an IEP meeting. Maybe you started a new job. Maybe you got a massage or managed to finally shower every day. Let’s begin 2025 by pledging a strong commitment to honoring ourselves as caregivers, and so much more!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza
2025-01-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Thursday, January 16th at 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - January Support Group Meeting
2025-01-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, January 21st at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - January Support Group Meeting
2025-01-27 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, January 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - February Support Group Meeting
2025-02-11 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, February 11th at 8 pm ET.
Topic: It’s All About Love!
We shed a lot of tears as caregivers. Because we love so deeply and fight for our loved ones so fiercely. It isn’t always a heartbreaking love. There’s joy as well. With Valentine’s Day just around the corner, can we stop for a moment and celebrate LOVE?

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - February Support Group Meeting
2025-02-18 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, February 18th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
