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DTSTART;TZID=America/New_York:20250415T200000
DTEND;TZID=America/New_York:20250415T210000
DTSTAMP:20260409T101305
CREATED:20250327T194421Z
LAST-MODIFIED:20250327T194920Z
UID:10000212-1744747200-1744750800@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Join us Tuesday\, April 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T200000
DTEND;TZID=America/New_York:20250424T210000
DTSTAMP:20260409T101305
CREATED:20250327T200655Z
LAST-MODIFIED:20250328T132851Z
UID:10000215-1745524800-1745528400@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de abril
DESCRIPTION:Únase a nosotros el jueves 24 de abril a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-abril/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250426
DTEND;VALUE=DATE:20250427
DTSTAMP:20260409T101305
CREATED:20250108T212750Z
LAST-MODIFIED:20250225T152509Z
UID:10000205-1745625600-1745711999@www.lgsfoundation.org
SUMMARY:10th Annual Walk ‘n’ Wheel for LGS Research
DESCRIPTION:Save the Date & Join us for Our \n10th Annual Walk ‘n’ Wheel for LGS Research!\nSaturday\, April 26\, 2025\nThis year\, we are making LGS research history by uniting leading experts to create formal recommendations that will establish a standard of care for Lennox-Gastaut Syndrome (LGS). This consensus opinion will optimize treatment\, provide a clear roadmap for patients\, and serve as a vital stepping stone in LGS research. \nThis year’s 10th Annual Walk ‘n’ Wheel for LGS Research is more crucial than ever. Together\, we are making huge strides toward a breakthrough and shaping the future of LGS treatments! \n \n10:00am – 2:00pm ET\n\n \n \n10:30am – 2:00pm ET\n\n\n \nHelp Support LGS Research – Get Involved Now!\nLo
URL:https://www.lgsfoundation.org/event/10th-annual-walk-for-lgs-research/
LOCATION:NH
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2025-WalkForLGS-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T090000
DTEND;TZID=America/New_York:20250426T110000
DTSTAMP:20260409T101306
CREATED:20250410T130540Z
LAST-MODIFIED:20250410T131125Z
UID:10000221-1745658000-1745665200@www.lgsfoundation.org
SUMMARY:Orlando\, FL - LGS Walk & Wheel Color Run
DESCRIPTION:🎨 LGS Walk & Wheel Color Run – Supporting Jacob’s Journey 🎨Join us for a morning of color\, fun\, and community spirit as we run (or walk or wheel!) to support the LGS Foundation and Jacob’s Journey. \n🗓 Date: April 26⏰ Time: 9 AM – 11 AM💵 Entry Fee: $5 (All proceeds go to the LGS Foundation) \nGet ready to get colorful for a great cause! Bring your friends\, wear white\, and let’s make a difference together! \nDonate to Support Our Fundraising Efforts 
URL:https://www.lgsfoundation.org/event/orlando-fl-lgs-walk-wheel-color-run/
LOCATION:Waterleigh Sports Field\, 10697 Atwater Bay Drive\, Winter Garden\, FL\, 34787\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/04/Orlando-FL.png
ORGANIZER;CN="Tim Baker":MAILTO:tim.baker22@yahoo.com
GEO:28.4122718;-81.6438371
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Waterleigh Sports Field 10697 Atwater Bay Drive Winter Garden FL 34787 United States;X-APPLE-RADIUS=500;X-TITLE=10697 Atwater Bay Drive:geo:-81.6438371,28.4122718
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250426T110000
DTEND;TZID=America/Los_Angeles:20250426T130000
DTSTAMP:20260409T101306
CREATED:20250224T190825Z
LAST-MODIFIED:20250304T192640Z
UID:10000207-1745665200-1745672400@www.lgsfoundation.org
SUMMARY:SF Bay\, CA Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Calling All SF Bay Area Families!\nJoin us on April 26\, 2025\, at Buri Buri Park in South San Francisco\, CA\, as we Step Together for a Breakthrough.\nCome join us for the SF Bay Area Local Walk ‘n’ Wheel for LGS Research—a fun and meaningful event where families\, friends\, and community members come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk\, roll\, or cheer from the sidelines\, we’ll unite side by side to show our strength\, love\, and commitment to making a difference. \nThis event is all about building connections\, sharing experiences\, and supporting one another. It’s a chance to meet others who understand the journey of living with LGS\, find encouragement\, and be inspired by the power of community. \nLet’s walk together\, celebrate our shared hope\, and raise awareness for research that can make a real impact in the lives of those affected by LGS. We hope you’ll join us for this uplifting\, community-driven event and help us step closer to a breakthrough! \nThis event is free to all LGS community members\, donations are appreciated. We can’t wait to see you there! \n  \nDonate to Support Our Fundraising Efforts
URL:https://www.lgsfoundation.org/event/sf-bay-area-local-walk-n-wheel-for-lgs-research/
LOCATION:Buri Buri Park\, 200 Arroyo Dr\, South San Francisco\, CA\, 94080\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/02/SF-Bay-Area-.png
ORGANIZER;CN="Melanie Huntley":MAILTO:melaniehuntley@gmail.com
GEO:37.6521376;-122.4420023
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Buri Buri Park 200 Arroyo Dr South San Francisco CA 94080 United States;X-APPLE-RADIUS=500;X-TITLE=200 Arroyo Dr:geo:-122.4420023,37.6521376
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T110000
DTEND;TZID=America/New_York:20250426T133000
DTSTAMP:20260409T101306
CREATED:20250304T165156Z
LAST-MODIFIED:20250304T170431Z
UID:10000208-1745665200-1745674200@www.lgsfoundation.org
SUMMARY:Eubank\, KY Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Join us on April 26\, 2025\, at Eubank Community Park as We Step Together for a Breakthrough.\nWe’re excited to invite you to Tyler’s Walk on Wheels\, a special event supporting the Lennox-Gastaut Syndrome (LGS) Foundation. This cause means so much to us because it’s personal – our son Tyler has LGS\, and while he’s doing well with amazing doctors and care\, we’re determined to help fund the research that could lead to better treatments and\, ultimately\, a cure. \nAll proceeds from the event will go directly to LGS research. We’ll have raffles\, door prizes\, t-shirts\, and music to make it a fun\, meaningful day. Most importantly\, we’ll be walking together\, showing support for Tyler and all families affected by LGS. \nYour presence would mean the world to us as we continue the fight for a cure. Thank you for being part of this journey with us. \nThis event is free to all LGS community members\, donations are appreciated. We can’t wait to see you there! \nDonate to Support Our Fundraising Efforts \nRegister to Attend Tyler’s Walk
URL:https://www.lgsfoundation.org/event/eubank-ky-local-walk-n-wheel-for-lgs-research/
LOCATION:Eubank Community Park\, Bulldog Street\, Eubank\, KY\, 42567\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/03/Eubank-KY-.png
ORGANIZER;CN="Lisa Cook":MAILTO:lcook197040@yahoo.com
GEO:37.2782468;-84.6495077
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Eubank Community Park Bulldog Street Eubank KY 42567 United States;X-APPLE-RADIUS=500;X-TITLE=Bulldog Street:geo:-84.6495077,37.2782468
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20250426T110000
DTEND;TZID=America/Phoenix:20250426T150000
DTSTAMP:20260409T101306
CREATED:20250121T180100Z
LAST-MODIFIED:20250409T173945Z
UID:10000206-1745665200-1745679600@www.lgsfoundation.org
SUMMARY:Colorado Springs\, CO Local Walk 'n' Wheel for LGS Research
DESCRIPTION:Calling All Colorado Families!\nJoin us on April 26\, 2025\, at Bear Creek Regional Park as we Step Together for a Breakthrough.\nThis special event is an opportunity for families and friends to come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk or roll\, we’ll unite side by side to show our strength and solidarity. \nIt’s a time to connect with others who are navigating the same journey\, to find support and inspiration\, and to build a stronger community. We’ll take a walk around the park\, then enjoy delicious food\, uplifting music\, and great company. \nLet’s create new friendships\, share our stories\, and leave with smiles on our faces and hearts full of hope. Together\, we make a difference. \nThis event is free to all LGS community members. We can’t wait to see you there! \nDonate to support our fundraising efforts  \nRegister to Attend
URL:https://www.lgsfoundation.org/event/colorado-walk-n-wheel/
LOCATION:Bear Creek Regional Park\, 2002 Creek Crossing Street\, Colorado Springs\, CO\, 80905\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/01/Colorado-Springs-CO.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.8234434;-104.8585351
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Bear Creek Regional Park 2002 Creek Crossing Street Colorado Springs CO 80905 United States;X-APPLE-RADIUS=500;X-TITLE=2002 Creek Crossing Street:geo:-104.8585351,38.8234434
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250428T200000
DTEND;TZID=America/New_York:20250428T210000
DTSTAMP:20260409T101306
CREATED:20250327T205942Z
LAST-MODIFIED:20250327T205942Z
UID:10000218-1745870400-1745874000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250513T200000
DTEND;TZID=America/New_York:20250513T210000
DTSTAMP:20260409T101306
CREATED:20250327T192811Z
LAST-MODIFIED:20250327T192901Z
UID:10000210-1747166400-1747170000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us on Tuesday\, May 13th at 8 pm ET.\nTopic: Your Favorite Things!\nWhat’s that thing that you need to get through the day? Is it your morning coffee? The 10-minute afternoon nap? The fully-charged iPad that will keep your loved one occupied so you can drink that coffee\, or quietly close your eyes? \nIt’s always the little things in life that can be the BIGGEST things in life.  We always hear “I don’t know how you do it”. \nJoin us and let us know\, how do you do it?!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250515T200000
DTEND;TZID=America/New_York:20250515T210000
DTSTAMP:20260409T101306
CREATED:20250327T202257Z
LAST-MODIFIED:20250327T202257Z
UID:10000216-1747339200-1747342800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de Mayo
DESCRIPTION:Únase a nosotros el jueves 15 de mayo a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250519T200000
DTEND;TZID=America/New_York:20250519T210000
DTSTAMP:20260409T101306
CREATED:20250327T210358Z
LAST-MODIFIED:20250429T211448Z
UID:10000219-1747684800-1747688400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - May Support Group Meeting
DESCRIPTION:Join us Monday\, May 19th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250520T200000
DTEND;TZID=America/New_York:20250520T210000
DTSTAMP:20260409T101306
CREATED:20250327T195300Z
LAST-MODIFIED:20250327T195300Z
UID:10000213-1747771200-1747774800@www.lgsfoundation.org
SUMMARY:Dad to Dad - May Support Group Meeting
DESCRIPTION:Join us Tuesday\, May 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250610T200000
DTEND;TZID=America/New_York:20250610T210000
DTSTAMP:20260409T101306
CREATED:20250327T193528Z
LAST-MODIFIED:20250327T193528Z
UID:10000211-1749585600-1749589200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us on Tuesday\, June 10th at 8 pm ET.\nTopic: Managing the Business of LGS!\nLGS is tough. Navigating all of the ‘systems’ shouldn’t have to be. But it is!!. It can often feel like you’re running a small business. Appointments\, insurance denials\, specialists\, therapists\, day programs\, IEPs!! And who manages it all? YOU! Join all of the other ‘small business owners’ also known as ‘LGS Caregivers’\, and let’s talk about it. Share your strategies\, tips\, and self-care ideas for when it gets to be too much! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T200000
DTEND;TZID=America/New_York:20250617T210000
DTSTAMP:20260409T101306
CREATED:20250327T195515Z
LAST-MODIFIED:20250327T195548Z
UID:10000214-1750190400-1750194000@www.lgsfoundation.org
SUMMARY:Dad to Dad - June Support Group Meeting
DESCRIPTION:Join us Tuesday\, June 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250619T200000
DTEND;TZID=America/New_York:20250619T210000
DTSTAMP:20260409T101306
CREATED:20250327T203207Z
LAST-MODIFIED:20250327T203207Z
UID:10000217-1750363200-1750366800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de junio
DESCRIPTION:Únase a nosotros el jueves 19 de junio a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250623T200000
DTEND;TZID=America/New_York:20250623T210000
DTSTAMP:20260409T101306
CREATED:20250327T211352Z
LAST-MODIFIED:20250327T211352Z
UID:10000220-1750708800-1750712400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us Monday\, June 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250708T200000
DTEND;TZID=America/New_York:20250708T210000
DTSTAMP:20260409T101306
CREATED:20250625T175642Z
LAST-MODIFIED:20250625T175642Z
UID:10000225-1752004800-1752008400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - July Support Group Meeting
DESCRIPTION:Join us on Tuesday\, July 8th at 8 pm ET.\nTopic: Summer’s Here! Is That A Good Thing?\nHow will your family be spending the summer? Extended School Year (ESY)? Summer Camp? Are you able to create a fun\, safe\, and relaxing summer for your LGS loved one and their siblings\, or does this big break in the routine add chaos to your lives? Join a group of like-minded caregivers as we unwind\, unload\, listen\, and support one another.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250715
DTEND;VALUE=DATE:20250815
DTSTAMP:20260409T101306
CREATED:20250523T163645Z
LAST-MODIFIED:20250721T203724Z
UID:10000222-1752537600-1755215999@www.lgsfoundation.org
SUMMARY:Your Story. Your Session.
DESCRIPTION:Your Story. Your Session. is a free\, live\, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience\, this is a space for you to learn\, connect\, and feel supported. \n💜 Live Sessions – Choose the Time That Fits Your Life:\n\nTuesday\, July 15 @ 6:00 PM ET\nThursday\, August 1 @ 1:00 PM ET\nWednesday\, August 14 @ 4:00 PM ET\n\n🧠 What to Expect:\n\nExpert insights from pediatric neurologists and epilepsy specialists\nReal caregiver stories and strategies\nPractical tools for navigating daily challenges and transitions in care\nOpportunities to ask questions or simply listen in\n\n🎤 You decide how to participate—share your experience\, ask a question\, or just take it all in. All voices are welcome. \n📍 Where: Online via Zoom\n⏰ Duration: 1 Hour💲 Cost: FREE \nReserve Your Spot Today
URL:https://www.lgsfoundation.org/event/your-story-your-session/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/05/Your-Story-Your-Session-Iridum-Project-Featured-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T200000
DTEND;TZID=America/New_York:20250715T210000
DTSTAMP:20260409T101306
CREATED:20250625T182115Z
LAST-MODIFIED:20250625T182115Z
UID:10000228-1752609600-1752613200@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join us Tuesday\, July 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250717T200000
DTEND;TZID=America/New_York:20250717T210000
DTSTAMP:20260409T101306
CREATED:20250625T195624Z
LAST-MODIFIED:20250625T195624Z
UID:10000231-1752782400-1752786000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de julio
DESCRIPTION:Únase a nosotros el jueves 17 de julio a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-julio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250721
DTEND;VALUE=DATE:20250723
DTSTAMP:20260409T101306
CREATED:20250103T193347Z
LAST-MODIFIED:20250521T165048Z
UID:10000204-1753056000-1753228799@www.lgsfoundation.org
SUMMARY:2025 LGS Research Meeting of the Minds
DESCRIPTION:Save the Date | July 21 – 22\, 2025\nAdvancing Evidence-Based LGS Care Across the Lifespan\nThis bi-annual Meeting of the Minds research conference brings together hundreds of researchers\, healthcare providers\, clinical trialists\, scientists\, advocates\, caregivers\, and industry partners to push the conversation about research beyond only treating the symptom of seizures\, but also finding treatments that target the whole syndrome. \nLearnings from the Meeting of the Minds help guide the LGS Foundation’s research strategy and efforts. \nLearn More
URL:https://www.lgsfoundation.org/event/2025-lgs-research-meeting-of-the-minds/
LOCATION:The Logan Hotel\, Philadelphia\, PA\, 19103\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/11/2025-Meeting-of-the-Minds-updated-1225-1.png
ORGANIZER;CN="LGS Foundation (Research Dep.)":MAILTO:Research@LGSFoundation.org
GEO:39.9569323;-75.1702705
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250728T200000
DTEND;TZID=America/New_York:20250728T210000
DTSTAMP:20260409T101306
CREATED:20250625T203421Z
LAST-MODIFIED:20250625T203421Z
UID:10000234-1753732800-1753736400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T200000
DTEND;TZID=America/New_York:20250812T210000
DTSTAMP:20260409T101306
CREATED:20250625T180416Z
LAST-MODIFIED:20250625T180416Z
UID:10000226-1755028800-1755032400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting
DESCRIPTION:Join us on Tuesday\, August 12th at 8 pm ET.\nTopic: What’s The Title of Your LGS Story? \nIf you could write a book about your family’s LGS journey\, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning\, or maybe you’ve been doing this for a long time. We want to hear it all!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T200000
DTEND;TZID=America/New_York:20250819T210000
DTSTAMP:20260409T101306
CREATED:20250625T183402Z
LAST-MODIFIED:20250625T183402Z
UID:10000229-1755633600-1755637200@www.lgsfoundation.org
SUMMARY:Dad to Dad – August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T200000
DTEND;TZID=America/New_York:20250821T210000
DTSTAMP:20260409T101306
CREATED:20250625T200308Z
LAST-MODIFIED:20250625T200308Z
UID:10000232-1755806400-1755810000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
DESCRIPTION:Únase a nosotros el jueves 21 de agosto a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-agosto/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250825T200000
DTEND;TZID=America/New_York:20250825T210000
DTSTAMP:20260409T101306
CREATED:20250625T203806Z
LAST-MODIFIED:20250625T203806Z
UID:10000235-1756152000-1756155600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – August Support Group Meeting
DESCRIPTION:Join us Monday\, August 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T183000
DTEND;TZID=America/New_York:20250828T193000
DTSTAMP:20260409T101306
CREATED:20250820T132217Z
LAST-MODIFIED:20250820T132217Z
UID:10000239-1756405800-1756409400@www.lgsfoundation.org
SUMMARY:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
DESCRIPTION:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care\nDate & Time:📅 Thursday\, August 28\, 2025⏰ 6:30 PM ET \nDescription:Join us for a free\, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care. \nOur expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS. \nThis session is: \n\n🎓 Non-accredited\n💜 Caregiver-focused\n💻 Virtual and free to attend\n\nRegistration:👉 Click here to register \nPartners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.
URL:https://www.lgsfoundation.org/event/setting-up-for-a-successful-future-in-lennox-gastaut-syndrome-preparing-for-adult-care/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T200000
DTEND;TZID=America/New_York:20250909T210000
DTSTAMP:20260409T101306
CREATED:20250625T181043Z
LAST-MODIFIED:20250625T181043Z
UID:10000227-1757448000-1757451600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – September Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 9th at 8 pm ET.\nTopic: Back To School So Soon?\n\nThe school year has begun. Is this a good thing? Is your loved one attending a new school? Perhaps they’re no longer in school and you find yourself wistfully remembering the “good ol’ days” of IEPs and school activities. Or maybe your loved one (or you) feels anxious and nervous about the coming year. \nPlease join us as we wind down from the summer and begin to rev up to a new routine and all of the emotions that come with that. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T200000
DTEND;TZID=America/New_York:20250916T210000
DTSTAMP:20260409T101306
CREATED:20250625T183745Z
LAST-MODIFIED:20250625T183745Z
UID:10000230-1758052800-1758056400@www.lgsfoundation.org
SUMMARY:Dad to Dad – September Support Group Meeting
DESCRIPTION:Join us Tuesday\, September 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T200000
DTEND;TZID=America/New_York:20250918T210000
DTSTAMP:20260409T101306
CREATED:20250625T201347Z
LAST-MODIFIED:20250625T201347Z
UID:10000233-1758225600-1758229200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Septiembre
DESCRIPTION:Únase a nosotros el jueves 18 de septiembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-septiembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR