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DTSTART;TZID=America/Denver:20240420T100000
DTEND;TZID=America/Denver:20240420T120000
DTSTAMP:20260404T074133
CREATED:20240315T184742Z
LAST-MODIFIED:20240315T185505Z
UID:10000162-1713607200-1713614400@www.lgsfoundation.org
SUMMARY:Walk 'n' Roll for LGS Research
DESCRIPTION:  \nCome walk ‘n’ roll with our LGS warriors as we help raise awareness!  \nWalk\, run\, or roll around the park! This event is a great way for families to meet other LGS families! There will be food\, face painting\, music\, games\, and more!
URL:https://www.lgsfoundation.org/event/walk-n-roll-for-lgs-research/
LOCATION:Fountain Creek Regional Park\, 211 Duckwood Road\, Fountain\, CO\, 80817\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/03/Grassroot-Walks-Website-Banner-1.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.7091645;-104.7140653
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Fountain Creek Regional Park 211 Duckwood Road Fountain CO 80817 United States;X-APPLE-RADIUS=500;X-TITLE=211 Duckwood Road:geo:-104.7140653,38.7091645
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T100000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T074133
CREATED:20240116T221142Z
LAST-MODIFIED:20240408T200543Z
UID:10000153-1713607200-1713621600@www.lgsfoundation.org
SUMMARY:Florida - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nSaturday\, April 20\, 2024 | 10:00am ET | Tampa\, FL \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nSplash Pad\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nGames\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJOIN US IN Florida
URL:https://www.lgsfoundation.org/event/florida-walk/
LOCATION:All People’s Community Park & Life Center\, 6105 E. Sligh Ave.\, Tampa\, FL\, 33617\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.0095963;-82.3878142
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=All People’s Community Park & Life Center 6105 E. Sligh Ave. Tampa FL 33617 United States;X-APPLE-RADIUS=500;X-TITLE=6105 E. Sligh Ave.:geo:-82.3878142,28.0095963
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T103000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T074133
CREATED:20240116T220001Z
LAST-MODIFIED:20240415T124259Z
UID:10000152-1713609000-1713621600@www.lgsfoundation.org
SUMMARY:North Carolina - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nApril 20\, 2024 | 10:30am ET | Kannapolis\, NC \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nTrain Rides\nCarousel\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJoin Us in North Carolina
URL:https://www.lgsfoundation.org/event/north-carolina-walk/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240422T200000
DTEND;TZID=America/New_York:20240422T210000
DTSTAMP:20260404T074133
CREATED:20240329T161442Z
LAST-MODIFIED:20240329T161442Z
UID:10000165-1713816000-1713819600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240514T200000
DTEND;TZID=America/New_York:20240514T210000
DTSTAMP:20260404T074133
CREATED:20240502T142234Z
LAST-MODIFIED:20240502T142310Z
UID:10000166-1715716800-1715720400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us Tuesday\, May 14th @ 8 pm ET\nTopic: The Superhero Caregiver\nHow many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special\, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember\, you are not alone and we are Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240515T200000
DTEND;TZID=America/New_York:20240515T210000
DTSTAMP:20260404T074133
CREATED:20240502T142831Z
LAST-MODIFIED:20240502T142831Z
UID:10000167-1715803200-1715806800@www.lgsfoundation.org
SUMMARY:Dad to Dad - May Support Group Meeting
DESCRIPTION:Join us Wednesday\, May 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240527T200000
DTEND;TZID=America/New_York:20240527T210000
DTSTAMP:20260404T074133
CREATED:20240502T143246Z
LAST-MODIFIED:20240502T143246Z
UID:10000168-1716840000-1716843600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – May Support Group Meeting
DESCRIPTION:Join us Monday\, May 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240611T200000
DTEND;TZID=America/New_York:20240611T210000
DTSTAMP:20260404T074133
CREATED:20240530T184447Z
LAST-MODIFIED:20240530T184447Z
UID:10000171-1718136000-1718139600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – June Support Group Meeting
DESCRIPTION:Join us on Tuesday\, June 11th at 8 pm ET.\nTopic: Laughter\nCan you laugh when every day is filled with the devastation of LGS? Is it okay to laugh? \nThey say laughter is the best medicine so where can you find it amidst all the chaos? What makes you laugh even when you’re crying on the inside? \nJoin us this month as we attempt to seek the lighter moments that give us the strength to keep going. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240619T200000
DTEND;TZID=America/New_York:20240619T210000
DTSTAMP:20260404T074133
CREATED:20240530T185413Z
LAST-MODIFIED:20240530T185413Z
UID:10000172-1718827200-1718830800@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join us Wednesday\, June 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation \n\n\n\n\n Add to calendar
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240623T123000
DTEND;TZID=America/New_York:20240623T190000
DTSTAMP:20260404T074133
CREATED:20240131T225125Z
LAST-MODIFIED:20240201T150151Z
UID:10000154-1719145800-1719169200@www.lgsfoundation.org
SUMMARY:2024 Annual Swing "FORE" the Cures
DESCRIPTION:Join us in Dublin\, Ohio on Sunday\, June 23\, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for Lennox-Gastaut Syndrome (LGS).\nLGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50\,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​ \nYou can help us by participating in or donating to Swing “FORE” the Cures! \nREGISTER NOW! 
URL:https://www.lgsfoundation.org/event/2024-annual-swing-fore-the-cures/
LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/03/2024.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:40.0874409413;-83.173546793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240624T200000
DTEND;TZID=America/New_York:20240624T210000
DTSTAMP:20260404T074133
CREATED:20240530T185859Z
LAST-MODIFIED:20240530T185859Z
UID:10000173-1719259200-1719262800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us Monday\, June 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T090000
DTEND;TZID=America/New_York:20240714T170000
DTSTAMP:20260404T074133
CREATED:20230614T195223Z
LAST-MODIFIED:20240117T215919Z
UID:10000129-1720774800-1720976400@www.lgsfoundation.org
SUMMARY:9th International LGS Family & Professional Conference
DESCRIPTION:9th International Family & Professional Conference\nJuly 12-14\, 2024\nSheraton Grand at Wild Horse Pass  \n5594 W. Wild Horse Pass Blvd.  \nPhoenix\, AZ 85226 \nREGISTER TO ATTEND NOW! 
URL:https://www.lgsfoundation.org/event/9th-international-lgs-family-professional-conference/
LOCATION:Sheraton Grand at Wild Horse Pass\, 5594 W. Wild Horse Pass\, Phoenix\, AZ\, 85226\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options.png
GEO:33.2669617;-111.9898523
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Sheraton Grand at Wild Horse Pass 5594 W. Wild Horse Pass Phoenix AZ 85226 United States;X-APPLE-RADIUS=500;X-TITLE=5594 W. Wild Horse Pass:geo:-111.9898523,33.2669617
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240716T200000
DTEND;TZID=America/New_York:20240716T210000
DTSTAMP:20260404T074133
CREATED:20240701T162926Z
LAST-MODIFIED:20240701T162926Z
UID:10000174-1721160000-1721163600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – July Support Group Meeting
DESCRIPTION:Join us Tuesday\, July 16th @ 8 pm ET\nTopic: Conference Recap!\nThank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways\, answer your questions\, and check in to see how everything is going with YOU! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240717T200000
DTEND;TZID=America/New_York:20240717T210000
DTSTAMP:20260404T074133
CREATED:20240701T163321Z
LAST-MODIFIED:20240701T163321Z
UID:10000175-1721246400-1721250000@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join us Wednesday\, July 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-2/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240722T200000
DTEND;TZID=America/New_York:20240722T210000
DTSTAMP:20260404T074133
CREATED:20240701T163722Z
LAST-MODIFIED:20240701T163722Z
UID:10000176-1721678400-1721682000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240813T200000
DTEND;TZID=America/New_York:20240813T210000
DTSTAMP:20260404T074133
CREATED:20240730T182959Z
LAST-MODIFIED:20240730T183059Z
UID:10000177-1723579200-1723582800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 13th @ 8 pm ET\nTopic: Self-Blame – It’s not your fault!\nDoes any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet\, fell onto the coffee table\, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you\, the caregiver. But listen to this one truth – It’s not your fault!  You blame yourself and other family members may blame you\, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240821T200000
DTEND;TZID=America/New_York:20240821T210000
DTSTAMP:20260404T074133
CREATED:20240730T183551Z
LAST-MODIFIED:20240730T183551Z
UID:10000178-1724270400-1724274000@www.lgsfoundation.org
SUMMARY:Dad to Dad - August Support Group Meeting
DESCRIPTION:Join us Wednesday\, August 21st @ 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240826T200000
DTEND;TZID=America/New_York:20240826T210000
DTSTAMP:20260404T074133
CREATED:20240730T184012Z
LAST-MODIFIED:20240730T184012Z
UID:10000179-1724702400-1724706000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS - August Support Group Meeting
DESCRIPTION:Join us Monday\, August 26th @ 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T200000
DTEND;TZID=America/New_York:20240917T210000
DTSTAMP:20260404T074133
CREATED:20240830T134957Z
LAST-MODIFIED:20240830T134957Z
UID:10000181-1726603200-1726606800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Sept. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 17th at 8 pm ET.\nTopic: Back to Support Groups. Back to school. Back to routines. Back to YOU! \nWas summer relaxing or stressful? Did you miss the routines? Did the heat bring more seizures and behaviors? \nJoin us as we check in with one another and get ready for fall. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T200000
DTEND;TZID=America/New_York:20240918T210000
DTSTAMP:20260404T074133
CREATED:20240830T135707Z
LAST-MODIFIED:20240830T135707Z
UID:10000182-1726689600-1726693200@www.lgsfoundation.org
SUMMARY:Dad to Dad - Sept. Support Group Meeting
DESCRIPTION:Join us Wednesday\, September 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-sept-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240923T200000
DTEND;TZID=America/New_York:20240923T210000
DTSTAMP:20260404T074133
CREATED:20240830T141245Z
LAST-MODIFIED:20240830T141245Z
UID:10000183-1727121600-1727125200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Sept. Support Group Meeting
DESCRIPTION:Join us Monday\, September 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T200000
DTEND;TZID=America/New_York:20241015T210000
DTSTAMP:20260404T074133
CREATED:20240911T195609Z
LAST-MODIFIED:20241007T120832Z
UID:10000185-1729022400-1729026000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Oct. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 15th at 8 pm ET.\nTopic: Friendship!\nWhether you have a large tribe of good pals or just one special person in your life\, everyone needs a confidante. When your child has LGS\, you need that person who can see inside your heart and know the struggles and the joys of raising that wonderful person with LGS. Let’s talk about THAT person! He/She/They need to be acknowledged for helping us survive. \nLet’s stop to celebrate the friends in our lives who provide moments of normalcy in a chaotic LGS world. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241016T200000
DTEND;TZID=America/New_York:20241016T210000
DTSTAMP:20260404T074133
CREATED:20240911T201243Z
LAST-MODIFIED:20240911T201243Z
UID:10000187-1729108800-1729112400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Oct. Support Group Meeting
DESCRIPTION:Join us Wednesday\, October 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-oct-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241028T200000
DTEND;TZID=America/New_York:20241028T210000
DTSTAMP:20260404T074133
CREATED:20240911T202707Z
LAST-MODIFIED:20240911T202707Z
UID:10000189-1730145600-1730149200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Oct. Support Group Meeting
DESCRIPTION:Join us Monday\, October 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241102
DTSTAMP:20260404T074133
CREATED:20240830T150933Z
LAST-MODIFIED:20240905T201804Z
UID:10000184-1730419200-1730505599@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day
DESCRIPTION:Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!\nOn November 1st\, International LGS Awareness Day\, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS). \nLGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent\, often daily\, debilitating seizures\, cognitive impairment\, developmental regression\, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP). \nThere are currently no cures\, but there is a hopeful path forward with increased awareness of the devastating disorder! \n\n\n\n\nTogether\, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.\nClick here to learn more about how YOU can get involved with our awareness efforts!
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/08/Copy-of-2024-Banner-for-Website-1200-x-400-px-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241102T180000
DTEND;TZID=America/Los_Angeles:20241102T213000
DTSTAMP:20260404T074133
CREATED:20240508T171355Z
LAST-MODIFIED:20240508T182702Z
UID:10000169-1730570400-1730583000@www.lgsfoundation.org
SUMMARY:LGS Foundation Annual Awareness Dinner
DESCRIPTION:Tickets are now available for the biggest night of the year!\nThe 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday\, November 2nd at the Harbor View Loft in San Diego\, California. The evening will feature a silent auction and cocktail reception\, seated dinner\, inspirational program\, exciting live auction\, live entertainment\, and more. \nThis memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS. \n  \nClick Here to Register Now
URL:https://www.lgsfoundation.org/event/lgs-foundation-annual-awareness-dinner/
LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/05/2024-IAD-Dinner-Event-Header-San-Diego-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.7257202;-117.2072312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241112T200000
DTEND;TZID=America/New_York:20241112T210000
DTSTAMP:20260404T074133
CREATED:20240911T200204Z
LAST-MODIFIED:20240911T200204Z
UID:10000186-1731441600-1731445200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Nov. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 12th at 8 pm ET.\nTopic: The Holiday Season is Here!\nThis time of year can stir up a lot of feelings. Are you stressed out about having to deal with comments from family members who don’t get it? Are you struggling with ideas for gift-giving when your full-grown son/daughter with LGS still prefers toddler toys? Are you conflicted over how to support the siblings while just wanting to call the whole thing off and hide under your blankets? Or\, is this a time of year that gives you great comfort and joy? \nJoin us as we talk it out\, share\, and support one another at this family-focused time of year. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-nov-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241120T200000
DTEND;TZID=America/New_York:20241120T210000
DTSTAMP:20260404T074133
CREATED:20240911T201941Z
LAST-MODIFIED:20240911T201941Z
UID:10000188-1732132800-1732136400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Nov. Support Group Meeting
DESCRIPTION:Join us Wednesday\, November 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-nov-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241121T200000
DTEND;TZID=America/New_York:20241121T210000
DTSTAMP:20260404T074133
CREATED:20241028T132039Z
LAST-MODIFIED:20241028T132039Z
UID:10000191-1732219200-1732222800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
DESCRIPTION:Join us Thursday\, November 21st at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-noviembr/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/10/LGS-Grupo-de-Esperanza-5.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241125T200000
DTEND;TZID=America/New_York:20241125T210000
DTSTAMP:20260404T074133
CREATED:20240912T164204Z
LAST-MODIFIED:20240912T164204Z
UID:10000190-1732564800-1732568400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Nov. Support Group Meeting
DESCRIPTION:Join us Monday\, November 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-nov-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR