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DTEND;TZID=America/New_York:20221128T210000
DTSTAMP:20260404T073419
CREATED:20221027T170020Z
LAST-MODIFIED:20221027T170020Z
UID:10000101-1669665600-1669669200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-4/
LOCATION:CA
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221202T110000
DTEND;TZID=UTC:20221202T143000
DTSTAMP:20260404T073419
CREATED:20220804T185212Z
LAST-MODIFIED:20221011T195340Z
UID:10000087-1669978800-1669991400@www.lgsfoundation.org
SUMMARY:LGS Research Roundtable @ AES
DESCRIPTION:Advancing Clinical Research In LGS\, Starting The Conversation\nFriday\, December 2\, 2022 | 11:00am CT\nOne21 at Johnny Cash’s Bar & BBQ – Nashville\, TN  \nEvery year\, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s (AES) annual meeting in an effort to #FreeTheData. Join us to learn about how we are working to advance clinical research in LGS as we prepare for the upcoming 2023 LGS Meeting of the Minds on Advancing LGS Clinical Research. Visit our website to view the full Research Roundtable agenda. \nIn-Person and Virtual Opportunities to Attend.  \nLearn More
URL:https://www.lgsfoundation.org/event/lgs-research-roundtable-aes/
LOCATION:One21 @ Johnny Cash’s Bar & BBQ\, 121 3rd Ave S.\, Nashville\, TN\, 37201\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/06/LGS-Foundation.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:36.1607047;-86.7757672
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=One21 @ Johnny Cash’s Bar & BBQ 121 3rd Ave S. Nashville TN 37201 United States;X-APPLE-RADIUS=500;X-TITLE=121 3rd Ave S.:geo:-86.7757672,36.1607047
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221211T163000
DTEND;TZID=UTC:20221211T210000
DTSTAMP:20260404T073419
CREATED:20221109T220227Z
LAST-MODIFIED:20221109T221107Z
UID:10000103-1670776200-1670792400@www.lgsfoundation.org
SUMMARY:The Santa Express BELIEVE Expedition
DESCRIPTION:Join us for a full night of family fun! \nGrab your kids and bring them along on an expedition to find the spirit of Christmas. The little ones already believe in the magic of Christmas\, but this expedition is so full of magic and Christmas spirit that once you travel this journey/expedition\, there is no way you can doubt that Santa really exists! Challenge those to take the journey! As you travel through our Winter Wonderland\, your train will make four stops where our crew members will help you uncover the clues that will lead you to the station where the Magic will really begin. You will find concessions that will include Hot Chocolate\, Coffee\, and other snacks that will warm your bones while enjoying the Movie Polar Express. \nLGS Warrior\, Nash\, is an Honorary Guest and his Mother\, Candice\, will be sharing their LGS story with guests. \nTicket Info: Tickets are $25 per family which includes your golden tickets\, the clues along with a few magical surprises along the way\, the movie and to top it off\, each will leave with a shiny silver bell! \nThe hunt is all within 10 miles of our offices so no need to worry about the holiday traffic or driving halfway across town. Your route will all be on well-known\, well-traveled\, and well-lit locations. \n  \nLearn More \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member.  \nTo submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/the-santa-express-believe-expedition/
LOCATION:Hillview Police Department\, 283 Crestwood Rd\, Louisville\, KY\, 40229\, United States
ORGANIZER;CN="Candice Hester":MAILTO:chester@spalding.edu
GEO:38.0755728;-85.6753513
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Hillview Police Department 283 Crestwood Rd Louisville KY 40229 United States;X-APPLE-RADIUS=500;X-TITLE=283 Crestwood Rd:geo:-85.6753513,38.0755728
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221213T200000
DTEND;TZID=America/New_York:20221213T210000
DTSTAMP:20260404T073419
CREATED:20221123T193837Z
LAST-MODIFIED:20221123T212140Z
UID:10000104-1670961600-1670965200@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:The Holidays! Making Merry in an LGS World- Is that even possible?\nNow that Thanksgiving has passed\, we jump into our holiday planning for Hanukkah\, Christmas\, & Kwanzaa but LGS is always looming\, threatening to wreak havoc on the festivities.\n\nPlease join us as we share our stories (both joyful and agonizing)\, tips\, gift ideas\, fears (seizures\, behaviors\, ‘well-meaning’ family comments\, etc.)\, and maybe even a secret family recipe.\n\nAll are welcome so if you don’t celebrate any of these festive occasions\, you’re never excluded from this awesome caregiver group!\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-4/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230110T200000
DTEND;TZID=America/New_York:20230110T210000
DTSTAMP:20260404T073419
CREATED:20230103T233341Z
LAST-MODIFIED:20230103T233341Z
UID:10000105-1673380800-1673384400@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. - Monthly Support Group
DESCRIPTION:The Power of Community\nThe holidays are over and January gloom is settling in. \nMany of us are stuck at home without adequate support or contact with others. It’s a lonely time of year made more challenging by the complexities of caring for someone with LGS. \nBut the LGS Community is here\, STRONGER THAN EVER! Let’s not face it alone. Consider attending our January support group! You can share\, cry\, vent\, and yes\, maybe even laugh. \nOur families are Stronger Together because nobody should have to do this alone. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-5/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230118T200000
DTEND;TZID=America/New_York:20230118T210000
DTSTAMP:20260404T073419
CREATED:20230103T234354Z
LAST-MODIFIED:20230103T234354Z
UID:10000106-1674072000-1674075600@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-6/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230123T200000
DTEND;TZID=America/New_York:20230123T210000
DTSTAMP:20260404T073419
CREATED:20230103T235841Z
LAST-MODIFIED:20230103T235841Z
UID:10000107-1674504000-1674507600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation \n\n\n\n\n Add to calendar
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-5/
LOCATION:CA
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230207T120000
DTEND;TZID=America/Denver:20230207T133000
DTSTAMP:20260404T073419
CREATED:20230114T005528Z
LAST-MODIFIED:20230114T011505Z
UID:10000113-1675771200-1675776600@www.lgsfoundation.org
SUMMARY:Revealing: Art\, Disability\, Stigma and Compassion
DESCRIPTION:Join us for a panel discussion about enhancing interactions with the healthcare system and society through art.  View the exhibit\, “one\, one thousand… Photographs by Debe Arlook” on display in the Fulginiti Pavilion lobby. \nPANEL DISCUSSION: \nDebe Arlook\nPhotographer\, Artist & Lori’s Sister\nDebe Arlook is a visual artist based in Santa Monica\, California. She received a B.A. in film and media and a minor in psychology from American University in Washington D.C. Her work is exhibited nationally and internationally including the Lishui Art Museum\, Museum of Art and History Lancaster\, Griffin Museum of Photography\, Center for Fine Art Photography\, and the San Diego Art Institute.  Learn more about Arlook’s work and view the “one\, one thousand…” exhibit. \nTracy Dixon-Salazar\, PhD\nNeuroscientist\, Geneticist\, Patient Advocate & Executive Director\, LGS Foundation\nTracy Dixon-Salazar’s desire to get her Ph.D. was inspired by her daughter\, Savannah\, who developed intractable seizures at the age of 2\, which evolved into Lennox-Gastaut Syndrome (LGS) by the age of 5. She did her Ph.D. and postdoctoral work at UC\, San Diego and it was during her research tenure\, and after 16 years of watching daily\, unrelenting seizures in her child\, that she uncovered the driver of her daughter’s illness and identified a novel precision therapy that improved her child’s life. \nGayla Elliott\, MA\, ATR\, CBIS\nCreative Arts Therapy Program Manager\, Marcus Institute for Brain Health\nGayla Elliott has almost 40 years of providing art therapy services in many clinical settings. In 2017 she began providing art therapy to active-duty military through the federally-funded program\, Creative Forces\, and in 2018 to veterans with mild brain injuries at the Marcus Institute for Brain Health. Gayla is also the parent of an adult daughter who is on the autism spectrum due to Di George syndrome. \nLori Sandler\nLife Coach\, Motivational Speaker\, Writer & David’s Mother and Primary Caregiver\nLori Sandler is a writer\, life coach and devoted caregiver of her adult son\, David. David has autism and Lennox-Gastaut Syndrome\, a rare type of epilepsy that is difficult to control and causes severe neurological impairment. In the early 2000’s\, the intensity of David’s condition and the challenges of his care spurred Lori onto a path of personal growth and spiritual inquiry. In her words\, “The lessons of surrender\, trust\, compassion\, self-knowledge and levity have been the greatest gifts I have received from walking this path with him.” \nJulie Thompson-Dobkin\, DO\nNeurologist\, President & Co-founder of the Hidden Truths Project\nDr. Julie Thompson-Dobkin is a Board-certified neurologist\, currently residing in San Francisco\, California. She previously served as an Assistant Professor in the Department of Neurology at the University of Pittsburgh and was clinical faculty at Washington University in St. Louis. She founded Hidden Truths Project in 2012\, which is dedicated to engaging and empowering individuals impacted by visible and invisible disabilities through the arts.  Dr. Thompson-Dobkin has an adult son who has lived with epilepsy for 18 years\, the inspiration for much of her work. \nHYBRID:\nIn-person at the Fulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave.  Aurora\, CO  80045\nClick for directions & parking information. \nor via ZOOM:\nhttps://ucdenver.zoom.us/j/97023996853 \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/revealing-art-disability-stigma-and-compassion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ATTACH;FMTTYPE=image/gif:https://www.lgsfoundation.org/wp-content/uploads/2023/01/Revealing-Art-Disability-Stigma-and-Compassion.gif
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
GEO:39.7454093;-104.8353839
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=University of Colorado 13080 E. 19th Ave. Aurora CO 80045 United States;X-APPLE-RADIUS=500;X-TITLE=13080 E. 19th Ave.:geo:-104.8353839,39.7454093
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230211T200000
DTEND;TZID=America/New_York:20230211T210000
DTSTAMP:20260404T073419
CREATED:20230104T010753Z
LAST-MODIFIED:20230104T011859Z
UID:10000109-1676145600-1676149200@www.lgsfoundation.org
SUMMARY:LGS Virtual Valentine's Dance Party
DESCRIPTION:Join the LGS Foundation and DJ’s Kara & Tayla for an LGS Virtual Valentine’s Dance Party! \nMeet up with friends virtually for dancing and socializing! You might even make some new friends! \nHave some snacks and drinks ready.\nDress Up and/or Decorate and show off your favorite room in your house! \nThe LGS Virtual Valentine’s Dance Party is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/valentines-dance-party/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Valentines-Dance.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230213T200000
DTEND;TZID=America/New_York:20230213T210000
DTSTAMP:20260404T073419
CREATED:20230116T195659Z
LAST-MODIFIED:20230116T213957Z
UID:10000114-1676318400-1676322000@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Using Your Voice for your loved one with LGS\nHow do you feel about advocacy? Are you stuck trying to communicate with the school\, the doctor\, and your community?\nJoin our monthly support group as we share stories of advocacy and help support those who are feeling ‘stuck’.\nAs we near Rare Disease Day\, what do we want the world to know about people with LGS and the families who love and care for them?\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-6/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230215T200000
DTEND;TZID=America/New_York:20230215T210000
DTSTAMP:20260404T073419
CREATED:20230116T200759Z
LAST-MODIFIED:20230116T200825Z
UID:10000115-1676491200-1676494800@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-7/
LOCATION:CA
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230227T200000
DTEND;TZID=America/New_York:20230227T210000
DTSTAMP:20260404T073419
CREATED:20230116T201306Z
LAST-MODIFIED:20230116T201306Z
UID:10000116-1677528000-1677531600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation \n\n\n\n\n Add to calendar
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-6/
LOCATION:CA
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230228T073000
DTEND;TZID=America/New_York:20230228T080000
DTSTAMP:20260404T073419
CREATED:20230110T215449Z
LAST-MODIFIED:20230114T044739Z
UID:10000110-1677569400-1677571200@www.lgsfoundation.org
SUMMARY:Behind the Mystery of LGS on Lifetime TV
DESCRIPTION:“Rare Disease doesn’t come with a manual\, it comes with a mother who never gives up!”\n\nTune In – February 20 & 28\, 2023\nFor A Special Segment Of Behind The Mystery\nFeaturing LGS Foundation Executive Director\, Tracy Dixon-Salazar\, PhD\n  \nLearn More
URL:https://www.lgsfoundation.org/event/behind-the-mystery-of-lgs-on-lifetime-tv/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/BTM-Feb-20-2023-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230314T200000
DTEND;TZID=America/New_York:20230314T210000
DTSTAMP:20260404T073419
CREATED:20230302T021749Z
LAST-MODIFIED:20230302T184646Z
UID:10000118-1678824000-1678827600@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Care Provider Shortages\nIs your loved one eligible for in-home nursing? Do you receive respite or other services that could either lighten your load a bit or improve your loved one’s quality of life?\nOnce you become eligible for these services\, are you even able to locate a provider?\nOr do you just end up on a waiting list?\nShare your story. Listen to the stories of others who’ve had this experience.\n\nTogether we might even come up with some creative solutions to this growing problem. At the very least\, you might feel a little less alone.\n\nRemember\, we’re STRONGER TOGETHER!\n\n\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-7/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230315T200000
DTEND;TZID=America/New_York:20230315T210000
DTSTAMP:20260404T073419
CREATED:20230302T023809Z
LAST-MODIFIED:20230302T023809Z
UID:10000119-1678910400-1678914000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-8/
LOCATION:CA
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230327T200000
DTEND;TZID=America/New_York:20230327T210000
DTSTAMP:20260404T073419
CREATED:20230302T024445Z
LAST-MODIFIED:20230317T224555Z
UID:10000120-1679947200-1679950800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Guest Speaker: Dr. Pete Crino\, MD\nTopic: Transitioning to Adulthood\nParents of teens and adults with LGS!  \nDid you know there is such a thing as an ADULT EPILEPTOLOGIST?  If you want to meet one of these special unicorns of neurology\, please join us on Monday\, March 27 at 8 pm Eastern.  \nOur guest speaker will be Dr. Peter Crino from the University of Maryland.  He is an internationally recognized physician scientist with expertise in developmental and epileptic encephalopathies. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-7/
LOCATION:CA
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230411T200000
DTEND;TZID=America/New_York:20230411T210000
DTSTAMP:20260404T073419
CREATED:20230403T181128Z
LAST-MODIFIED:20230403T201310Z
UID:10000123-1681243200-1681246800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Celebrating Siblings\nThe LGS siblings have seen it all from an early age – The seizures\, the ER visits\, the behaviors\, the special occasions ruined by LGS\,…and more. \nBut most of them seem to possess a level of maturity\, a capacity for love\, and a fierce protective quality\, that inspires us. \nLet’s gather to celebrate the siblings and share our thoughts/fears/hopes for their futures in honor of National Siblings Day\, April 10th. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-8/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T200000
DTEND;TZID=America/New_York:20230419T210000
DTSTAMP:20260404T073419
CREATED:20230403T181948Z
LAST-MODIFIED:20230403T182743Z
UID:10000124-1681934400-1681938000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-9/
LOCATION:CA
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230424T200000
DTEND;TZID=America/New_York:20230424T210000
DTSTAMP:20260404T073419
CREATED:20230403T184916Z
LAST-MODIFIED:20230403T185024Z
UID:10000065-1682366400-1682370000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-8/
LOCATION:CA
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230506T080000
DTEND;TZID=America/Los_Angeles:20230506T093000
DTSTAMP:20260404T073419
CREATED:20230315T053802Z
LAST-MODIFIED:20230315T055757Z
UID:10000121-1683360000-1683365400@www.lgsfoundation.org
SUMMARY:San Diego LGS Walk with Team Savannah's Bananas
DESCRIPTION:Come Walk a Mile with Savannah!\n\n\n\nSaturday\, May 6\, 2023 I 8:00am – 9:30am PT\n\n\n\nVista Grande Elementary School I 5606 Antigua Blvd\, San Diego\, CA 92124\n\n\n\n\n\n\n\n\n\n\n\n\nJoin us as Savannah walks a mile to end LGS! We will enjoy donuts\, water\, and then walk\, walk\, walk!\nPlease RSVP to TJSalazar2@gmail.com so we have enough donuts!!\n\n\n\n\n  \nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event form.
URL:https://www.lgsfoundation.org/event/walk-with-team-savannahs-bananas/
LOCATION:Vista Grande Elementary School\, 5606 Antigua Blvd\, San Diego\, CA\, 92124\, United States
ORGANIZER;CN="Tracy Dixon-Salazar":MAILTO:TJSalazar2@gmail.com
GEO:32.8340553;-117.1082889
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Vista Grande Elementary School 5606 Antigua Blvd San Diego CA 92124 United States;X-APPLE-RADIUS=500;X-TITLE=5606 Antigua Blvd:geo:-117.1082889,32.8340553
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230506T080000
DTEND;TZID=UTC:20230506T120000
DTSTAMP:20260404T073419
CREATED:20230414T063112Z
LAST-MODIFIED:20230414T064244Z
UID:10000067-1683360000-1683374400@www.lgsfoundation.org
SUMMARY:Team Matthew Bake Sale
DESCRIPTION:Join Team Matthew in Reedsburg\, WI!\n\n\n\n\nSaturday\, May 6\, 2023 I 8:00am – 12:00pm CT\n\n\n\nViking Village Grocery Store I 150 Viking Dr Reedsburg\, Wi 53959\n\n\n\n\n\n\n\nWe are going to be at our local grocery store (Viking Village) from 8am-12pm.\nAll proceeds will go to Team Matthew’s fundraiser to support the LGS Foundation!
URL:https://www.lgsfoundation.org/event/team-matthew-bake-sale/
LOCATION:Viking Village Grocery Store\, 150 Viking Dr\, Reedsburg\, WI\, 53959\, United States
ORGANIZER;CN="Sue McCain":MAILTO:s3mccain@gmail.com
GEO:43.5347036;-89.9814903
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Viking Village Grocery Store 150 Viking Dr Reedsburg WI 53959 United States;X-APPLE-RADIUS=500;X-TITLE=150 Viking Dr:geo:-89.9814903,43.5347036
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230506T090000
DTEND;TZID=UTC:20230506T120000
DTSTAMP:20260404T073419
CREATED:20230503T163336Z
LAST-MODIFIED:20230503T163511Z
UID:10000072-1683363600-1683374400@www.lgsfoundation.org
SUMMARY:Walk 'n Wheel for Sarah
DESCRIPTION:A Local Walk in Honor of Sarah!\n\n\n\nSaturday\, May 6\, 2023 I 9:00am – 12:00pm CT\n\n\n\nGrant Woods Forest Preserve I Lake Villa\, IL\n\n\n\n\n\n\n\nThis is a walk for my daughter who has LGS. We are going to walk in Grant Woods in Lake County\, IL.
URL:https://www.lgsfoundation.org/event/walk-n-wheel-for-sarah/
LOCATION:Grant Woods Forest Preserve\, Grant Woods Forest Preserve\, Lake Villa\, IL\, 60046
ORGANIZER;CN="Beth Adamek":MAILTO:bethadamek@yahoo.com
GEO:42.4000445;-88.121302
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Grant Woods Forest Preserve Grant Woods Forest Preserve Lake Villa IL 60046;X-APPLE-RADIUS=500;X-TITLE=Grant Woods Forest Preserve:geo:-88.121302,42.4000445
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230506T100000
DTEND;TZID=UTC:20230506T113000
DTSTAMP:20260404T073419
CREATED:20230329T173158Z
LAST-MODIFIED:20230329T174452Z
UID:10000122-1683367200-1683372600@www.lgsfoundation.org
SUMMARY:SF Bay Area Walk with Team Teagan's Tenacious Titans
DESCRIPTION:Come Walk ‘n’ Wheel with Teagan in South San Francisco!\n\n\nSaturday\, May 6\, 2023 I 10:00am – 11:30am PT\nBuri Buri Park I Picnic Area #4\n\n\n\n\n\n\n\n\n\nJoin us as Teagan walks & wheels to end LGS!\n\nWe will enjoy LGS awareness games\, music\, walking & wheeling\, and refreshments afterwards!\n\n\n\n\n  \n  \n  \n   \nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event form.
URL:https://www.lgsfoundation.org/event/sf-bay-area-walk-with-team-teagans-tenacious-titans/
LOCATION:CA
ORGANIZER;CN="Melanie Huntley":MAILTO:melaniehuntley@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230506T100000
DTEND;TZID=America/New_York:20230506T140000
DTSTAMP:20260404T073419
CREATED:20230104T002435Z
LAST-MODIFIED:20230427T193034Z
UID:10000108-1683367200-1683381600@www.lgsfoundation.org
SUMMARY:2023 Walk 'n' Wheel for Lennox-Gastaut Syndrome Research in Florida
DESCRIPTION:Join us in Tampa\, FL at our 8th Annual Walk ‘n’ Wheel for LGS as we Step Towards a Cure\, Together!\nEach year\, hundreds of community members come together in person and virtually to raise funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge research to find disease-modifying therapies and treatments for LGS. The only way we can fund patient-led research is by raising the funds ourselves\, so that’s what we’re doing!  \n\nFeaturing a 10\,000 SqFt Accessible Playground\, Splash Pad\, Face Painting\, Balloon Twister\, DJ\, Door Prizes\, Silent Auction\, and more!\n \n  \nAll People’s Community Park & Life Center \n6105 E. Sligh Ave. Tampa\, FL 33617 \n10:00am – 2:00pm \nREGISTER TO ATTEND \n\nThank You\n \nUpdated 04/27/2023
URL:https://www.lgsfoundation.org/event/2023-walk-n-wheel-for-lennox-gastaut-syndrome-research-fl/
LOCATION:All People’s Community Park & Life Center\, 6105 E. Sligh Ave.\, Tampa\, FL\, 33617\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/FL-WnW-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.0095963;-82.3878142
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=All People’s Community Park & Life Center 6105 E. Sligh Ave. Tampa FL 33617 United States;X-APPLE-RADIUS=500;X-TITLE=6105 E. Sligh Ave.:geo:-82.3878142,28.0095963
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230506T100000
DTEND;TZID=UTC:20230506T143000
DTSTAMP:20260404T073419
CREATED:20230114T003126Z
LAST-MODIFIED:20230421T224339Z
UID:10000112-1683367200-1683383400@www.lgsfoundation.org
SUMMARY:2023 Walk ‘n’ Wheel for Lennox-Gastaut Syndrome Research in North Carolina
DESCRIPTION:Join Us in Kannapolis\, NC at our \n8th Annual Walk ‘n’ Wheel for LGS.\nEvery year hundreds of community members come together in person and virtually to raise awareness and funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. This vital program drives research to find disease-modifying therapies and treatments for LGS. \n\nFamily friendly fun packed day featuring: \n Train Rides\, Face Painting\, Family Picnic\, Silent Auction\, and more!\n \nKannapolis\, North Carolina \nVillage Park \n700 W C St\, Kannapolis\, NC 28081 \nREGISTER TO ATTEND \nLearn More \n\nThank You to Our Amazing Partners & Supporters
URL:https://www.lgsfoundation.org/event/2023-walk-n-wheel-for-lennox-gastaut-syndrome-research-nc/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/NC-WnW.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230506T120000
DTEND;TZID=UTC:20230506T140000
DTSTAMP:20260404T073419
CREATED:20230427T170500Z
LAST-MODIFIED:20230427T170753Z
UID:10000071-1683374400-1683381600@www.lgsfoundation.org
SUMMARY:Walk 'n' Wheel for LGS at Belmont Lake State Park
DESCRIPTION:Come Walk ‘n’ Wheel with Family Ambassador Jackie in New York!\n\n\nSaturday\, May 6\, 2023 I 12:00pm – 2:00pm ET\nBelmont Lake State Park I 625 Belmont Ave. West Babylon\, NY 11704\n  \n\nLocal walk at Belmont Lake State Park for anyone who would like to join the Villatoro family!
URL:https://www.lgsfoundation.org/event/walk-n-wheel-for-lgs-at-belmont-lake-state-park/
LOCATION:Belmont Lake State Park\, 625 Belmont Ave.\, West Babylon\, New York\, 11704
ORGANIZER;CN="Jacqueline Villatoro":MAILTO:jackieaccetta@hotmail.com
GEO:40.7341558;-73.3444806
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Belmont Lake State Park 625 Belmont Ave. West Babylon New York 11704;X-APPLE-RADIUS=500;X-TITLE=625 Belmont Ave.:geo:-73.3444806,40.7341558
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T200000
DTEND;TZID=America/New_York:20230509T210000
DTSTAMP:20260404T073419
CREATED:20230421T202810Z
LAST-MODIFIED:20230421T202810Z
UID:10000068-1683662400-1683666000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together - Monthly Support Group
DESCRIPTION:Necessity is the Mother of Invention in the DIY world of LGS.\nDo you have a clever invention? A household go-to tip? Or do you need some cost-effective ideas on how to solve a challenge? Bring your homespun ideas to our group and share! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-monthly-support-group/
LOCATION:CA
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230513T090000
DTEND;TZID=America/Chicago:20230513T100000
DTSTAMP:20260404T073419
CREATED:20230407T182543Z
LAST-MODIFIED:20230407T182939Z
UID:10000066-1683968400-1683972000@www.lgsfoundation.org
SUMMARY:Walk ‘n’ Wheel for LGS - Walking With Hanna
DESCRIPTION:Come Walk With Hanna!\n\n\n\nSaturday\, May 13\, 2023 I 9:00am – 10:00am CT\n\n\n\nRock City Park I Rock City\, IL 61070\n\n\n\n\n\n \nJoin us and Walk With Hanna to raise money for LGS Awareness and Research! \nDonate Now
URL:https://www.lgsfoundation.org/event/walk-n-wheel-for-lgs-walking-with-hanna/
LOCATION:Rock City Park\, Rock City\, IL\, 61070\, United States
ORGANIZER;CN="Morgan Eichelberg":MAILTO:morgan.rockey@yahoo.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230517T200000
DTEND;TZID=America/New_York:20230517T210000
DTSTAMP:20260404T073419
CREATED:20230421T203524Z
LAST-MODIFIED:20230531T205301Z
UID:10000069-1684353600-1684357200@www.lgsfoundation.org
SUMMARY:Dad to Dad - Monthly Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-monthly-support-group/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230522T200000
DTEND;TZID=America/New_York:20230522T210000
DTSTAMP:20260404T073419
CREATED:20230421T204005Z
LAST-MODIFIED:20230516T203329Z
UID:10000070-1684785600-1684789200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Monthly Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-monthly-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR