2023 Walk 'n' Wheel for Lennox-Gastaut Syndrome Research in Florida
2023-05-06 10:00 - 14:00 (America/New_York) | All People’s Community Park & Life Center, 6105 E. Sligh Ave., Tampa, FL, 33617, United States
Join us in Tampa, FL at our 8th Annual Walk ‘n’ Wheel for LGS as we Step Towards a Cure, Together!
Each year, hundreds of community members come together in person and virtually to raise funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives cutting-edge research to find disease-modifying therapies and treatments for LGS. The only way we can fund patient-led research is by raising the funds ourselves, so that’s what we’re doing!

Featuring a 10,000 SqFt Accessible Playground, Splash Pad, Face Painting, Balloon Twister, DJ, Door Prizes, Silent Auction, and more!

All People’s Community Park & Life Center
6105 E. Sligh Ave. Tampa, FL 33617
10:00am – 2:00pm
REGISTER TO ATTEND

Thank You

Updated 04/27/2023

2023 Walk ‘n’ Wheel for Lennox-Gastaut Syndrome Research in North Carolina
2023-05-06 10:00 - 14:30 UTC | Village Park, 700 W C St, Kannapolis, NC, 28081, United States
Join Us in Kannapolis, NC at our
8th Annual Walk ‘n’ Wheel for LGS.
Every year hundreds of community members come together in person and virtually to raise awareness and funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives research to find disease-modifying therapies and treatments for LGS.

Family friendly fun packed day featuring:
Train Rides, Face Painting, Family Picnic, Silent Auction, and more!

Kannapolis, North Carolina
Village Park
700 W C St, Kannapolis, NC 28081
REGISTER TO ATTEND
Learn More

Thank You to Our Amazing Partners & Supporters

Walk 'n' Wheel for LGS at Belmont Lake State Park
2023-05-06 12:00 - 14:00 UTC | Belmont Lake State Park, 625 Belmont Ave., West Babylon, New York, 11704
Come Walk ‘n’ Wheel with Family Ambassador Jackie in New York!

Saturday, May 6, 2023 I 12:00pm – 2:00pm ET
Belmont Lake State Park I 625 Belmont Ave. West Babylon, NY 11704

Local walk at Belmont Lake State Park for anyone who would like to join the Villatoro family!

Standing Together. Stronger Together - Monthly Support Group
2023-05-09 20:00 - 21:00 (America/New_York)
Necessity is the Mother of Invention in the DIY world of LGS.
Do you have a clever invention? A household go-to tip? Or do you need some cost-effective ideas on how to solve a challenge? Bring your homespun ideas to our group and share!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Walk ‘n’ Wheel for LGS - Walking With Hanna
2023-05-13 09:00 - 10:00 (America/Chicago) | Rock City Park, Rock City, IL, 61070, United States
Come Walk With Hanna!

Saturday, May 13, 2023 I 9:00am – 10:00am CT

Rock City Park I Rock City, IL 61070

Join us and Walk With Hanna to raise money for LGS Awareness and Research!
Donate Now

Dad to Dad - Monthly Support Group
2023-05-17 20:00 - 21:00, 2023-06-21 20:00 - 21:00 (America/New_York) | Virtual
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Monthly Support Group
2023-05-22 20:00 - 21:00 (America/New_York) | Virtual
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together – Monthly Support Group
2023-06-13 20:00 - 21:00 (America/New_York) | Virtual
Save the Date & Join us on June 13th, 2023 @ 8pm ET
TOPIC: Making the Most of Summer
School’s out and summer has begun… How do you involve your loved one with LGS in summer activities? Can he/she attend camp? Summer school? Can the family take a nice vacation? Share your summer plans or just come to talk.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregivers of Adults with LGS - Monthly Support Group
2023-06-26 20:00 - 21:00 (America/New_York) | Virtual

Standing Together. Stronger Together. - July Support Group Meeting
2023-07-11 20:00 - 21:00 (America/New_York) | Virtual
Topic: Be Kind to Your Mind
Please join this monthly support group and our special guest who will share some tips on mindfulness and lead us all in a guided meditation. Prepare to treat yourselves and make some space for calm in the midst of all the LGS chaos.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Swing "FORE" a Cure
2023-07-15 12:30 - 17:00 (America/New_York) | Golf Club of Dublin, 5805 Eiterman Rd, Dublin, OH, 43016, United States
Join Us In Dublin, Ohio On Saturday, July 15, 2023 For An Afternoon Of Fun As We
Swing FORE A Cure
For Lennox-Gastaut Syndrome (LGS).

About This Event:
Format: 4 Person Scramble
Registration Opens: 12:30 pm ET
Shotgun Start: 2:00 pm ET
Awards Given: 1st, 2nd, and Last Place Foursomes
Special Contests: Longest Drive, Closest to the Pin, Longest Putt
Costs: $125 per Golfer / $500 per Foursome / $5 Mulligans (max 2 per player)
Learn More

Dad to Dad - July Support Group Meeting
2023-07-19 20:00 - 21:00 (America/New_York) | Virtual

Caregivers of Adults with LGS - July Support Group Meeting
2023-07-24 20:00 - 21:00 (America/New_York) | Virtual
Living with LGS is a marathon, not a sprint.

July 24, 2023, 8:00 pm – 9:00 pm ET

Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Monthly Support Group Meeting
2023-08-08 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 8th at 8 pm ET.
Topic: The Long, Hot Summer – How are you Managing?
With record-high temperatures hitting most of the world, how have our loved ones with LGS been handling this long, hot summer? Have any of them been able to attend a program or a camp that meets their needs?
Come to our monthly group and share everything from your strategies and tips for staying cool and having fun – to your woes and worries about how to support someone with LGS and their siblings!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Foundation's 15th Anniversary Dance Party
2023-08-12 20:00 - 21:00 (America/New_York) | Virtual
This family-friendly event is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Monthly Support Group Meeting
2023-08-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, August 16th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Monthly Support Group Meeting
2023-08-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, August 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Meeting of the Minds
2023-09-13 - 2023-09-16
-Save The Date-
2023 LGS Meeting Of The Minds:
Advancing Clinical Research
September 14-15, 2023: Research Conference
September 16, 2023: Family Research Day
The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can Advance Clinical Research in LGS. For this hybrid conference, we will bring together patients, families, doctors, researchers, and partners to understand how we can learn from every patient and brainstorm how to find the best treatments for LGS.
We hope you will join us!

Learn More

Standing Together. Stronger Together. - Monthly Support Group Meeting
2023-09-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, September 19th, 2023
Topic: Summer’s over and school is back in session.
This can be a difficult time for our families as we meet new teachers, and build new relationships in the school community. It can also be a relief for caregivers as we get back into a much-needed routine. How does fall work for your family? And if your child isn’t in school yet or has finished school, what changes are you expecting as we head into fall?

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Monthly Support Group Meeting
2023-09-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, September 20th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Monthly Support Group Meeting
2023-09-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, September 25th at 8pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Betsy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – October Support Group Meeting
2023-10-10 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, October 10th at 8 pm ET.
Topic: The LGS entourage!
Caring for someone with LGS is not a one-person job and yet, many caregivers are wearing MANY hats! These include chauffeur, doctor, nurse, equipment manager, administrative assistant, and many more. What’s your LGS caregiver job description? Are you getting any help or doing it all by yourself? Come join our monthly support group as we discuss this topic and anything else of importance because nobody should do this alone!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – October Support Group Meeting
2023-10-18 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, October 18th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – October Support Group Meeting
2023-10-30 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, October 30th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Halloween Dance Party
2023-10-31 18:00 - 20:00 (America/Denver) | Disneyland Hotel, 1150 W Magic Way, Anaheim, CA, 92802, United States
Epilepsy Alliance America is hosting the Second Annual
HALLOWEEN DANCE PARTY
Tuesday, October 31, 2023 from 6:00pm – 8:00pm PT
in the Magic Kingdom Ballroom at the Disneyland Hotel in Anaheim, California.
(Capacity is limited to 600 attendees so it is essential that you RSVP.)
RSVP HERE.

ABOUT THE EVENT
Join us for FUN, DANCING, GAMES, PRIZES, GIVEAWAYS and our COSTUME PARADE as we celebrate Halloween 2023!
DJ Kara will be spinning the tunes and leading dances for those of all ABILITIES!

Costumes Encouraged
Costumes for ALL are encouraged but not required. Please refrain from monsters and other scary costumes, costume weapons, gore, or other items that may frighten children.
We will provide masks, capes, and other costuming props free at the door to ensure everyone who wants to be dressed up is included.
Learn More @ www.epilepsyallianceamerica.org/event/halloween-dance-party

International LGS Awareness Day: Kicking-Off Epilepsy Awareness Month
2023-11-01 08:00 - 2023-11-30 17:00 UTC
November 1st is annual International LGS Awareness Day!
Each year, the LGS Foundation organizes a social media campaign and in-person events around the world in recognition of LGS Day in an effort to raise awareness and bring LGS families together. Numerous landmarks and locations will Illuminate for LGS by lighting up in purple and green. In addition, the LGS Foundation holds a Signature Themed Event around November 1st to raise critical funds for LGS research.
Learn More

Special Needs Awareness Day - "Don't Stare, Say Hi"
2023-11-04 15:00 - 17:00 (America/Denver) | Good Shepherds Church, 1201 Leta Drive, Colorado Springs, CO, 80911, United States
Join us for a day of fun, awareness, and inclusion!
Girl Scout Troop 46312 is bringing awareness to Colorado Springs, Colorado!
November 4th, 2023

Girl Scout Troop 46312 in Colorado Springs Co is hosting a Special Needs awareness day for all to come!

The girls have all taken a few months to learn about a disability that either they were interested in or a family member or themselves have. We asked them to make a trifold board to be able to present it at the awareness day! We have many non profit organizations and companies coming to help show what they do and how they help the special needs community!

Our main focus for this event is to teach everyone “Don’t stare, Say Hi”. People with disabilities are human and still want to be involved. Inclusion is everything and we hope you walk away from this event with more understanding and love in your hearts!

Come check it out at:
1201 Leta Drive
Colorado Springs, Co 80911

LGS Foundation Anniversary Dinner
2023-11-04 18:00 - 20:30 (America/Los_Angeles) | Harbor View Loft, 1880 Harbor Island Drive, San Diego, CA, 92101, United States
You’re Invited!
Join us as we celebrate our 15th Anniversary of service to the LGS Community! For 15 years, with your help, we have improved the lives of those impacted by LGS through advancing research, awareness, education, and family support.

GET YOUR TICKETS NOW

Want to Give Hope for the Future? Consider Sponsoring the Event or Donate to the Silent Auction.
Please email us at Giving@LGSFoundation.org.
Individuals and families impacted by LGS can email info@lgsfoundation.org to request the Family Discount Code prior to purchasing tickets.

Thank You to Our International LGS Awareness Day Partners

Standing Together. Stronger Together. - November Support Group Meeting
2023-11-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, November 14th at 8 pm ET.
Topic: Finding gratitude in the LGS journey
With Thanksgiving approaching, it’s that time of year where we gather with our loved ones to give thanks. Please join our November support group where we’ll focus on the challenges of finding gratitude in the LGS journey. Has it been possible for you? Our caregiver community is here to listen, share, and support one another because together we ARE stronger!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
