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DTSTART;TZID=America/New_York:20240116T200000
DTEND;TZID=America/New_York:20240116T210000
DTSTAMP:20260404T040512
CREATED:20240103T174132Z
LAST-MODIFIED:20240103T174132Z
UID:10000149-1705435200-1705438800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - January Support Group Meeting
DESCRIPTION:Join us Tuesday\, January 16th at 8 pm ET.\nTopic: The LGS Resolution(s)\nJanuary is when we set our goals and plan for the year ahead. So what are the goals when you’re caring for someone with LGS? \nIs it time to order new equipment? Try a new medication? Focus on your own needs? Focus on your other children’s needs? Begin future-planning? Is there something you’ve been putting off because you don’t know where to begin? \nBring your goals to our January Support group and let’s help one another get organized for another busy year because we’re Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240117T200000
DTEND;TZID=America/New_York:20240117T210000
DTSTAMP:20260404T040512
CREATED:20240103T175748Z
LAST-MODIFIED:20240103T175748Z
UID:10000150-1705521600-1705525200@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group Meeting
DESCRIPTION:Join us Wednesday\, January 17th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240122T200000
DTEND;TZID=America/New_York:20240122T210000
DTSTAMP:20260404T040512
CREATED:20240103T180315Z
LAST-MODIFIED:20240103T180315Z
UID:10000151-1705953600-1705957200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - January Support Group Meeting
DESCRIPTION:Join us Monday\, January 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-january-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240213T200000
DTEND;TZID=America/New_York:20240213T210000
DTSTAMP:20260404T040512
CREATED:20240201T165309Z
LAST-MODIFIED:20240201T165309Z
UID:10000155-1707854400-1707858000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group
DESCRIPTION:Join us Tuesday\, February 13th at 8 pm ET.\nTopic: February is the month of LOVE!  \nWhen your loved one has LGS it can often feel like you’re having to share his/her shortcomings\, flaws\, failures\, deficits\, etc. So isn’t it a relief when someone asks you “What do you LOVE about this person?” \nCome to our February support group and share all the wonderful stuff. Boast about their beautiful smile\, hilarious quirks\, new skill\, and that thing he/she did that had you laughing so hard. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240221T200000
DTEND;TZID=America/New_York:20240221T210000
DTSTAMP:20260404T040512
CREATED:20240201T171528Z
LAST-MODIFIED:20240201T171528Z
UID:10000156-1708545600-1708549200@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group
DESCRIPTION:Join us Wednesday\, February 21st at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240226T200000
DTEND;TZID=America/New_York:20240226T210000
DTSTAMP:20260404T040512
CREATED:20240201T171825Z
LAST-MODIFIED:20240201T171825Z
UID:10000157-1708977600-1708981200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - February Support Group
DESCRIPTION:Join us Monday\, February 26th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240312T200000
DTEND;TZID=America/New_York:20240312T210000
DTSTAMP:20260404T040512
CREATED:20240301T153638Z
LAST-MODIFIED:20240301T153638Z
UID:10000159-1710273600-1710277200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 12th @ 8 pm ET\nTopic: The Power of Your LGS Story\nWe all have a story to tell and it’s compelling and heart-wrenching. As we raise our voices as one community to support\, empower\, educate\, and advocate for our loved ones with LGS and their families\, come join our March support group and share your LGS story. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240320T200000
DTEND;TZID=America/New_York:20240320T210000
DTSTAMP:20260404T040512
CREATED:20240301T163656Z
LAST-MODIFIED:20240301T163656Z
UID:10000160-1710964800-1710968400@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Wednesday\, March 20th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240325T200000
DTEND;TZID=America/New_York:20240325T210000
DTSTAMP:20260404T040512
CREATED:20240301T165030Z
LAST-MODIFIED:20240301T165030Z
UID:10000161-1711396800-1711400400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - March Support Group Meeting
DESCRIPTION:Join us Monday\, March 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-march-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240409T200000
DTEND;TZID=America/New_York:20240409T210000
DTSTAMP:20260404T040512
CREATED:20240329T154915Z
LAST-MODIFIED:20240329T155152Z
UID:10000163-1712692800-1712696400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us on Tuesday\, April 9th at 8 pm ET.\nTopic: The “Business” of Caring for Someone with LGS.\nFrom accessing services and securing Medicaid waivers to battling with insurance over denials\, caring for someone with LGS can be a full-time job when you may already have a full-time job. \nIn the April support group\, we’ll share tips on how we’re making it work\, offer helpful resources to one another\, or just vent! \nCome join your fellow caregivers as we support\, educate\, and empower one another because nobody can do this alone. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T200000
DTEND;TZID=America/New_York:20240417T210000
DTSTAMP:20260404T040512
CREATED:20240329T160353Z
LAST-MODIFIED:20240329T160353Z
UID:10000164-1713384000-1713387600@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Join us Wednesday\, April 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240420T080000
DTEND;TZID=America/Los_Angeles:20240420T093000
DTSTAMP:20260404T040512
CREATED:20240208T152057Z
LAST-MODIFIED:20240411T221339Z
UID:10000158-1713600000-1713605400@www.lgsfoundation.org
SUMMARY:Savannah Walks a Mile for LGS Research
DESCRIPTION:Join Savannah and friends \non Saturday\, April\, 20th at 8 am PT.\nCome walk a mile with Savannah\, have some fun\, eat some donuts\, and raise funds for a great cause! \nSee Savannah’s Walk Page \nRSVP NOW
URL:https://www.lgsfoundation.org/event/savannahs-walk-for-lgs/
LOCATION:Vista Grande Elementary School\, 5606 Antigua Blvd\, San Diego\, CA\, 92124\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/02/Grassroot-Walks-Website-Banner.png
ORGANIZER;CN="Tracy Dixon-Salazar":MAILTO:TJSalazar2@gmail.com
GEO:32.8340553;-117.1082889
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Vista Grande Elementary School 5606 Antigua Blvd San Diego CA 92124 United States;X-APPLE-RADIUS=500;X-TITLE=5606 Antigua Blvd:geo:-117.1082889,32.8340553
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240420T100000
DTEND;TZID=America/Denver:20240420T120000
DTSTAMP:20260404T040512
CREATED:20240315T184742Z
LAST-MODIFIED:20240315T185505Z
UID:10000162-1713607200-1713614400@www.lgsfoundation.org
SUMMARY:Walk 'n' Roll for LGS Research
DESCRIPTION:  \nCome walk ‘n’ roll with our LGS warriors as we help raise awareness!  \nWalk\, run\, or roll around the park! This event is a great way for families to meet other LGS families! There will be food\, face painting\, music\, games\, and more!
URL:https://www.lgsfoundation.org/event/walk-n-roll-for-lgs-research/
LOCATION:Fountain Creek Regional Park\, 211 Duckwood Road\, Fountain\, CO\, 80817\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/03/Grassroot-Walks-Website-Banner-1.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.7091645;-104.7140653
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Fountain Creek Regional Park 211 Duckwood Road Fountain CO 80817 United States;X-APPLE-RADIUS=500;X-TITLE=211 Duckwood Road:geo:-104.7140653,38.7091645
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T100000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T040512
CREATED:20240116T221142Z
LAST-MODIFIED:20240408T200543Z
UID:10000153-1713607200-1713621600@www.lgsfoundation.org
SUMMARY:Florida - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nSaturday\, April 20\, 2024 | 10:00am ET | Tampa\, FL \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nSplash Pad\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nGames\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJOIN US IN Florida
URL:https://www.lgsfoundation.org/event/florida-walk/
LOCATION:All People’s Community Park & Life Center\, 6105 E. Sligh Ave.\, Tampa\, FL\, 33617\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.0095963;-82.3878142
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=All People’s Community Park & Life Center 6105 E. Sligh Ave. Tampa FL 33617 United States;X-APPLE-RADIUS=500;X-TITLE=6105 E. Sligh Ave.:geo:-82.3878142,28.0095963
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T103000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T040512
CREATED:20240116T220001Z
LAST-MODIFIED:20240415T124259Z
UID:10000152-1713609000-1713621600@www.lgsfoundation.org
SUMMARY:North Carolina - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nApril 20\, 2024 | 10:30am ET | Kannapolis\, NC \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nTrain Rides\nCarousel\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJoin Us in North Carolina
URL:https://www.lgsfoundation.org/event/north-carolina-walk/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240422T200000
DTEND;TZID=America/New_York:20240422T210000
DTSTAMP:20260404T040512
CREATED:20240329T161442Z
LAST-MODIFIED:20240329T161442Z
UID:10000165-1713816000-1713819600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240514T200000
DTEND;TZID=America/New_York:20240514T210000
DTSTAMP:20260404T040512
CREATED:20240502T142234Z
LAST-MODIFIED:20240502T142310Z
UID:10000166-1715716800-1715720400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us Tuesday\, May 14th @ 8 pm ET\nTopic: The Superhero Caregiver\nHow many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special\, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember\, you are not alone and we are Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240515T200000
DTEND;TZID=America/New_York:20240515T210000
DTSTAMP:20260404T040512
CREATED:20240502T142831Z
LAST-MODIFIED:20240502T142831Z
UID:10000167-1715803200-1715806800@www.lgsfoundation.org
SUMMARY:Dad to Dad - May Support Group Meeting
DESCRIPTION:Join us Wednesday\, May 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240527T200000
DTEND;TZID=America/New_York:20240527T210000
DTSTAMP:20260404T040512
CREATED:20240502T143246Z
LAST-MODIFIED:20240502T143246Z
UID:10000168-1716840000-1716843600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – May Support Group Meeting
DESCRIPTION:Join us Monday\, May 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240611T200000
DTEND;TZID=America/New_York:20240611T210000
DTSTAMP:20260404T040512
CREATED:20240530T184447Z
LAST-MODIFIED:20240530T184447Z
UID:10000171-1718136000-1718139600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – June Support Group Meeting
DESCRIPTION:Join us on Tuesday\, June 11th at 8 pm ET.\nTopic: Laughter\nCan you laugh when every day is filled with the devastation of LGS? Is it okay to laugh? \nThey say laughter is the best medicine so where can you find it amidst all the chaos? What makes you laugh even when you’re crying on the inside? \nJoin us this month as we attempt to seek the lighter moments that give us the strength to keep going. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240619T200000
DTEND;TZID=America/New_York:20240619T210000
DTSTAMP:20260404T040512
CREATED:20240530T185413Z
LAST-MODIFIED:20240530T185413Z
UID:10000172-1718827200-1718830800@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join us Wednesday\, June 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation \n\n\n\n\n Add to calendar
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240623T123000
DTEND;TZID=America/New_York:20240623T190000
DTSTAMP:20260404T040512
CREATED:20240131T225125Z
LAST-MODIFIED:20240201T150151Z
UID:10000154-1719145800-1719169200@www.lgsfoundation.org
SUMMARY:2024 Annual Swing "FORE" the Cures
DESCRIPTION:Join us in Dublin\, Ohio on Sunday\, June 23\, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for Lennox-Gastaut Syndrome (LGS).\nLGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50\,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​ \nYou can help us by participating in or donating to Swing “FORE” the Cures! \nREGISTER NOW! 
URL:https://www.lgsfoundation.org/event/2024-annual-swing-fore-the-cures/
LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/03/2024.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:40.0874409413;-83.173546793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240624T200000
DTEND;TZID=America/New_York:20240624T210000
DTSTAMP:20260404T040512
CREATED:20240530T185859Z
LAST-MODIFIED:20240530T185859Z
UID:10000173-1719259200-1719262800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us Monday\, June 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240712T090000
DTEND;TZID=America/New_York:20240714T170000
DTSTAMP:20260404T040512
CREATED:20230614T195223Z
LAST-MODIFIED:20240117T215919Z
UID:10000129-1720774800-1720976400@www.lgsfoundation.org
SUMMARY:9th International LGS Family & Professional Conference
DESCRIPTION:9th International Family & Professional Conference\nJuly 12-14\, 2024\nSheraton Grand at Wild Horse Pass  \n5594 W. Wild Horse Pass Blvd.  \nPhoenix\, AZ 85226 \nREGISTER TO ATTEND NOW! 
URL:https://www.lgsfoundation.org/event/9th-international-lgs-family-professional-conference/
LOCATION:Sheraton Grand at Wild Horse Pass\, 5594 W. Wild Horse Pass\, Phoenix\, AZ\, 85226\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options.png
GEO:33.2669617;-111.9898523
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Sheraton Grand at Wild Horse Pass 5594 W. Wild Horse Pass Phoenix AZ 85226 United States;X-APPLE-RADIUS=500;X-TITLE=5594 W. Wild Horse Pass:geo:-111.9898523,33.2669617
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240716T200000
DTEND;TZID=America/New_York:20240716T210000
DTSTAMP:20260404T040512
CREATED:20240701T162926Z
LAST-MODIFIED:20240701T162926Z
UID:10000174-1721160000-1721163600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – July Support Group Meeting
DESCRIPTION:Join us Tuesday\, July 16th @ 8 pm ET\nTopic: Conference Recap!\nThank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways\, answer your questions\, and check in to see how everything is going with YOU! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240717T200000
DTEND;TZID=America/New_York:20240717T210000
DTSTAMP:20260404T040512
CREATED:20240701T163321Z
LAST-MODIFIED:20240701T163321Z
UID:10000175-1721246400-1721250000@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join us Wednesday\, July 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-2/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240722T200000
DTEND;TZID=America/New_York:20240722T210000
DTSTAMP:20260404T040512
CREATED:20240701T163722Z
LAST-MODIFIED:20240701T163722Z
UID:10000176-1721678400-1721682000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240813T200000
DTEND;TZID=America/New_York:20240813T210000
DTSTAMP:20260404T040512
CREATED:20240730T182959Z
LAST-MODIFIED:20240730T183059Z
UID:10000177-1723579200-1723582800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 13th @ 8 pm ET\nTopic: Self-Blame – It’s not your fault!\nDoes any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet\, fell onto the coffee table\, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you\, the caregiver. But listen to this one truth – It’s not your fault!  You blame yourself and other family members may blame you\, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240821T200000
DTEND;TZID=America/New_York:20240821T210000
DTSTAMP:20260404T040512
CREATED:20240730T183551Z
LAST-MODIFIED:20240730T183551Z
UID:10000178-1724270400-1724274000@www.lgsfoundation.org
SUMMARY:Dad to Dad - August Support Group Meeting
DESCRIPTION:Join us Wednesday\, August 21st @ 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240826T200000
DTEND;TZID=America/New_York:20240826T210000
DTSTAMP:20260404T040513
CREATED:20240730T184012Z
LAST-MODIFIED:20240730T184012Z
UID:10000179-1724702400-1724706000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS - August Support Group Meeting
DESCRIPTION:Join us Monday\, August 26th @ 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR