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X-WR-CALDESC:Events for LGS Foundation
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DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260717T170405
CREATED:20260706T180728Z
LAST-MODIFIED:20260706T180728Z
UID:10000297-1789675200-1789678800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Septiembre
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio dedicado a brindar apoyo\, comprensión y conexión a familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nCada encuentro es una oportunidad para conversar\, compartir experiencias y recordar que nadie tiene que recorrer este camino solo. Nuestra comunidad está aquí para apoyarse mutuamente en cada etapa del proceso. \nLo invitamos a unirse a nosotros\, ya sea para compartir su historia o simplemente para escuchar y conectar con otras familias. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-septiembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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DTSTART;TZID=America/New_York:20260928T200000
DTEND;TZID=America/New_York:20260928T210000
DTSTAMP:20260717T170405
CREATED:20260706T182906Z
LAST-MODIFIED:20260706T182906Z
UID:10000303-1790625600-1790629200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – September Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-september-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T190000
DTEND;TZID=America/New_York:20261005T203000
DTSTAMP:20260717T170405
CREATED:20260406T154825Z
LAST-MODIFIED:20260406T154825Z
UID:10000291-1791226800-1791232200@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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