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DTSTART;TZID=America/New_York:20241120T200000
DTEND;TZID=America/New_York:20241120T210000
DTSTAMP:20260920T051901
CREATED:20240911T201941Z
LAST-MODIFIED:20240911T201941Z
UID:10000188-1732132800-1732136400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Nov. Support Group Meeting
DESCRIPTION:Join us Wednesday\, November 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-nov-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241121T200000
DTEND;TZID=America/New_York:20241121T210000
DTSTAMP:20260920T051901
CREATED:20241028T132039Z
LAST-MODIFIED:20241028T132039Z
UID:10000191-1732219200-1732222800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
DESCRIPTION:Join us Thursday\, November 21st at 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-noviembr/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/10/LGS-Grupo-de-Esperanza-5.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241125T200000
DTEND;TZID=America/New_York:20241125T210000
DTSTAMP:20260920T051901
CREATED:20240912T164204Z
LAST-MODIFIED:20240912T164204Z
UID:10000190-1732564800-1732568400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Nov. Support Group Meeting
DESCRIPTION:Join us Monday\, November 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-nov-support-group-meeting/
LOCATION:Virtual
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241205T193000
DTEND;TZID=America/Los_Angeles:20241205T220000
DTSTAMP:20260920T051901
CREATED:20240508T182306Z
LAST-MODIFIED:20241017T150705Z
UID:10000170-1733427000-1733436000@www.lgsfoundation.org
SUMMARY:A New Musical: It's All Your Fault\, Tyler Price!
DESCRIPTION:Emmy winner Ben Decter (Lucifer) and Tony nominee Kristin Hanggi (Rock of Ages) have collaborated on a new musical\, It’s All Your Fault\, Tyler Price! The work will get a world premiere at the Hudson Theatre in Hollywood November 7-December 15. Opening night will be November 14th. \nOn December 5th\, all proceeds will go directly to the LGS Foundation!  \nClick here to get your tickets now! \nThe musical follows a middle school kid who punches his bully\, Tyler Price\, defending his epileptic sister. His principal demands he explain himself to the entire school\, which\, naturally drives him to stage a musical. \n“When my family was in crisis—my little girl\, diagnosed with Lennox-Gastaut Syndrome\, was having 100 seizures a day and we felt so isolated—I never imagined a musical would grow out of it. Writing these songs helped my family have difficult conversations and come together\,” says Decter in a statement. “It’s All Your Fault\, Tyler Price! is a fun\, irreverent look at a family going through a really hard time—that everyone can relate to.” \n“This musical is a true passion project for us. It’s about dealing with struggles in our families and how challenging it is to be seen by those closest to us\,” adds Hanggi. “Through art\, our characters learn to explore uncomfortable feelings—things that can be difficult to share or admit. We can’t wait for Los Angeles—where I’ve gotten the opportunity to launch other new musicals—to see our show!” \nSponsors and Community Partners for the upcoming production include Epilepsy Foundation\, Epilepsy Foundation Los Angeles\, the Lennox-Gastaut Syndrome (LGS) Foundation\, The Children’s Ranch\, and more. \nLearn more about the amazing cast and show dates at TylerPriceMusical.com. \nNew Los Angeles Musical Highlights One Family’s Struggle to Live With Epilepsy and Lennox-Gastaut Syndrome
URL:https://www.lgsfoundation.org/event/new-musical-its-all-your-fault-tyler-price-to-premiere-in-los-angeles/
LOCATION:The Hudson Theatre\, Santa Monica Boulevard\, Los Angeles\, CA\, 90038\, United States
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241206
DTEND;VALUE=DATE:20241211
DTSTAMP:20260920T051901
CREATED:20240830T130705Z
LAST-MODIFIED:20240830T143436Z
UID:10000180-1733443200-1733875199@www.lgsfoundation.org
SUMMARY:LGS Foundation @ AES
DESCRIPTION:Join us at AES in Los Angeles\, California\nAre you attending the American Epilepsy Society Annual Meeting in December? \nWe invite you to stop by Booth N2148 in the Epilepsy Resource Area of the Exhibit Hall. Our team will be available from December 7 – 9\, 2024 to support and assist with inquires. \nLearn More \n  \nTo learn more about the LGS Foundation’s Research Programs\, visit our Finding the Cures\, Together page.
URL:https://www.lgsfoundation.org/event/lgs-foundation-aes/
LOCATION:THE LOS ANGELES CONVENTION CENTER\, South Figueroa Street\, Los Angeles\, CA\, 90015\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250114T200000
DTEND;TZID=America/New_York:20250114T210000
DTSTAMP:20260920T051901
CREATED:20241231T220809Z
LAST-MODIFIED:20241231T220809Z
UID:10000192-1736884800-1736888400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 14th at 8 pm ET.\nTopic: Celebrating You in 2025!\nLGS caregivers do not give themselves enough credit so let’s start the year off right. Let’s talk about you and all that you managed to pull off last year.\nMaybe you advocated strongly at an IEP meeting. Maybe you started a new job. Maybe you got a massage or managed to finally shower every day. Let’s begin 2025 by pledging a strong commitment to honoring ourselves as caregivers\, and so much more! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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