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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240813T200000
DTEND;TZID=America/New_York:20240813T210000
DTSTAMP:20261031T163022
CREATED:20240730T182959Z
LAST-MODIFIED:20240730T183059Z
UID:10000177-1723579200-1723582800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 13th @ 8 pm ET\nTopic: Self-Blame – It’s not your fault!\nDoes any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet\, fell onto the coffee table\, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you\, the caregiver. But listen to this one truth – It’s not your fault!  You blame yourself and other family members may blame you\, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240821T200000
DTEND;TZID=America/New_York:20240821T210000
DTSTAMP:20261031T163022
CREATED:20240730T183551Z
LAST-MODIFIED:20240730T183551Z
UID:10000178-1724270400-1724274000@www.lgsfoundation.org
SUMMARY:Dad to Dad - August Support Group Meeting
DESCRIPTION:Join us Wednesday\, August 21st @ 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240826T200000
DTEND;TZID=America/New_York:20240826T210000
DTSTAMP:20261031T163022
CREATED:20240730T184012Z
LAST-MODIFIED:20240730T184012Z
UID:10000179-1724702400-1724706000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS - August Support Group Meeting
DESCRIPTION:Join us Monday\, August 26th @ 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240917T200000
DTEND;TZID=America/New_York:20240917T210000
DTSTAMP:20261031T163022
CREATED:20240830T134957Z
LAST-MODIFIED:20240830T134957Z
UID:10000181-1726603200-1726606800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Sept. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 17th at 8 pm ET.\nTopic: Back to Support Groups. Back to school. Back to routines. Back to YOU! \nWas summer relaxing or stressful? Did you miss the routines? Did the heat bring more seizures and behaviors? \nJoin us as we check in with one another and get ready for fall. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240918T200000
DTEND;TZID=America/New_York:20240918T210000
DTSTAMP:20261031T163022
CREATED:20240830T135707Z
LAST-MODIFIED:20240830T135707Z
UID:10000182-1726689600-1726693200@www.lgsfoundation.org
SUMMARY:Dad to Dad - Sept. Support Group Meeting
DESCRIPTION:Join us Wednesday\, September 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-sept-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240923T200000
DTEND;TZID=America/New_York:20240923T210000
DTSTAMP:20261031T163022
CREATED:20240830T141245Z
LAST-MODIFIED:20240830T141245Z
UID:10000183-1727121600-1727125200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Sept. Support Group Meeting
DESCRIPTION:Join us Monday\, September 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-sept-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241015T200000
DTEND;TZID=America/New_York:20241015T210000
DTSTAMP:20261031T163022
CREATED:20240911T195609Z
LAST-MODIFIED:20241007T120832Z
UID:10000185-1729022400-1729026000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - Oct. Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 15th at 8 pm ET.\nTopic: Friendship!\nWhether you have a large tribe of good pals or just one special person in your life\, everyone needs a confidante. When your child has LGS\, you need that person who can see inside your heart and know the struggles and the joys of raising that wonderful person with LGS. Let’s talk about THAT person! He/She/They need to be acknowledged for helping us survive. \nLet’s stop to celebrate the friends in our lives who provide moments of normalcy in a chaotic LGS world. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241016T200000
DTEND;TZID=America/New_York:20241016T210000
DTSTAMP:20261031T163022
CREATED:20240911T201243Z
LAST-MODIFIED:20240911T201243Z
UID:10000187-1729108800-1729112400@www.lgsfoundation.org
SUMMARY:Dad to Dad - Oct. Support Group Meeting
DESCRIPTION:Join us Wednesday\, October 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-oct-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241028T200000
DTEND;TZID=America/New_York:20241028T210000
DTSTAMP:20261031T163022
CREATED:20240911T202707Z
LAST-MODIFIED:20240911T202707Z
UID:10000189-1730145600-1730149200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - Oct. Support Group Meeting
DESCRIPTION:Join us Monday\, October 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-oct-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20241102
DTSTAMP:20261031T163022
CREATED:20240830T150933Z
LAST-MODIFIED:20240905T201804Z
UID:10000184-1730419200-1730505599@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day
DESCRIPTION:Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!\nOn November 1st\, International LGS Awareness Day\, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS). \nLGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent\, often daily\, debilitating seizures\, cognitive impairment\, developmental regression\, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP). \nThere are currently no cures\, but there is a hopeful path forward with increased awareness of the devastating disorder! \n\n\n\n\nTogether\, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.\nClick here to learn more about how YOU can get involved with our awareness efforts!
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/08/Copy-of-2024-Banner-for-Website-1200-x-400-px-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241102T180000
DTEND;TZID=America/Los_Angeles:20241102T213000
DTSTAMP:20261031T163022
CREATED:20240508T171355Z
LAST-MODIFIED:20240508T182702Z
UID:10000169-1730570400-1730583000@www.lgsfoundation.org
SUMMARY:LGS Foundation Annual Awareness Dinner
DESCRIPTION:Tickets are now available for the biggest night of the year!\nThe 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday\, November 2nd at the Harbor View Loft in San Diego\, California. The evening will feature a silent auction and cocktail reception\, seated dinner\, inspirational program\, exciting live auction\, live entertainment\, and more. \nThis memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS. \n  \nClick Here to Register Now
URL:https://www.lgsfoundation.org/event/lgs-foundation-annual-awareness-dinner/
LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/05/2024-IAD-Dinner-Event-Header-San-Diego-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.7257202;-117.2072312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202
END:VEVENT
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