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X-WR-CALDESC:Events for LGS Foundation
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DTSTART;TZID=America/New_York:20261012T190000
DTEND;TZID=America/New_York:20261012T203000
DTSTAMP:20261002T092941
CREATED:20260406T154825Z
LAST-MODIFIED:20261001T153413Z
UID:10000291-1791831600-1791837000@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T200000
DTEND;TZID=America/New_York:20261013T210000
DTSTAMP:20261002T092941
CREATED:20261001T181115Z
LAST-MODIFIED:20261001T181115Z
UID:10000304-1791921600-1791925200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Home Modifications: What Have You Done? \nMany of our loved ones with LGS need to live comfortably in an adapted environment\, but achieving this can be tough. For homeowners\, the cost of specialized modifications can be astronomical. For renters\, it can feel entirely out of reach. \nSo what have you done to make it work? Whether you’ve built\, borrowed\, rigged\, negotiated\, or found a clever workaround\, we want to hear about it. Come share your ideas\, swap tips\, and let’s learn from each other. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T200000
DTEND;TZID=America/New_York:20261015T210000
DTSTAMP:20261002T092941
CREATED:20261001T181811Z
LAST-MODIFIED:20261001T181811Z
UID:10000305-1792094400-1792098000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Octubre
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nCada reunión ofrece la oportunidad de compartir experiencias\, hacer preguntas\, encontrar apoyo y conectar con otras familias que comprenden este camino. Juntos construimos una comunidad donde todos son escuchados y acompañados. \nYa sea que desee participar en la conversación o simplemente escuchar\, siempre será bienvenido. \nEste grupo de apoyo mensual está disponible para las familias afectadas por LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation.
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-octubre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T200000
DTEND;TZID=America/New_York:20261020T210000
DTSTAMP:20261002T092941
CREATED:20261001T182317Z
LAST-MODIFIED:20261001T182317Z
UID:10000306-1792526400-1792530000@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261026T200000
DTEND;TZID=America/New_York:20261026T210000
DTSTAMP:20261002T092941
CREATED:20261001T182956Z
LAST-MODIFIED:20261001T182956Z
UID:10000307-1793044800-1793048400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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