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DTSTART;TZID=America/New_York:20231010T200000
DTEND;TZID=America/New_York:20231010T210000
DTSTAMP:20260404T040942
CREATED:20230929T200033Z
LAST-MODIFIED:20230929T200124Z
UID:10000141-1696968000-1696971600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us Tuesday\, October 10th at 8 pm ET.\nTopic: The LGS entourage!\nCaring for someone with LGS is not a one-person job and yet\, many caregivers are wearing MANY hats! These include chauffeur\, doctor\, nurse\, equipment manager\, administrative assistant\, and many more. What’s your LGS caregiver job description? Are you getting any help or doing it all by yourself? Come join our monthly support group as we discuss this topic and anything else of importance because nobody should do this alone! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231018T200000
DTEND;TZID=America/New_York:20231018T210000
DTSTAMP:20260404T040942
CREATED:20230929T201310Z
LAST-MODIFIED:20230929T201310Z
UID:10000142-1697659200-1697662800@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join us Wednesday\, October 18th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231030T200000
DTEND;TZID=America/New_York:20231030T210000
DTSTAMP:20260404T040942
CREATED:20230929T201739Z
LAST-MODIFIED:20230929T201739Z
UID:10000143-1698696000-1698699600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting
DESCRIPTION:Join us Monday\, October 30th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20231031T180000
DTEND;TZID=America/Denver:20231031T200000
DTSTAMP:20260404T040942
CREATED:20230901T004046Z
LAST-MODIFIED:20231013T003359Z
UID:10000137-1698775200-1698782400@www.lgsfoundation.org
SUMMARY:Halloween Dance Party
DESCRIPTION:Epilepsy Alliance America is hosting the Second Annual \nHALLOWEEN DANCE PARTY \nTuesday\, October 31\, 2023 from 6:00pm – 8:00pm PT\nin the Magic Kingdom Ballroom at the Disneyland Hotel in Anaheim\, California.\n(Capacity is limited to 600 attendees so it is essential that you RSVP.)   \nRSVP HERE.\n\nABOUT THE EVENT\nJoin us for FUN\, DANCING\, GAMES\, PRIZES\, GIVEAWAYS and our COSTUME PARADE as we celebrate Halloween 2023!\nDJ Kara will be spinning the tunes and leading dances for those of all ABILITIES! \n \nCostumes Encouraged\nCostumes for ALL are encouraged but not required. Please refrain from monsters and other scary costumes\, costume weapons\, gore\, or other items that may frighten children. \nWe will provide masks\, capes\, and other costuming props free at the door to ensure everyone who wants to be dressed up is included. \nLearn More @ www.epilepsyallianceamerica.org/event/halloween-dance-party
URL:https://www.lgsfoundation.org/event/halloween-dance-party/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/08/Epilepsy-Alliance-Halloween-Party-Event-Header.png
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231101T080000
DTEND;TZID=UTC:20231130T170000
DTSTAMP:20260404T040942
CREATED:20230510T205458Z
LAST-MODIFIED:20230518T183901Z
UID:10000073-1698825600-1701363600@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day: Kicking-Off Epilepsy Awareness Month
DESCRIPTION:November 1st is annual International LGS Awareness Day!  \nEach year\, the LGS Foundation organizes a social media campaign and in-person events around the world in recognition of LGS Day in an effort to raise awareness and bring LGS families together. Numerous landmarks and locations will Illuminate for LGS by lighting up in purple and green. In addition\, the LGS Foundation holds a Signature Themed Event around November 1st to raise critical funds for LGS research. \nLearn More
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day-kicking-off-epilepsy-awareness-month/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/2023-EAM-Web-Banner.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20231104T150000
DTEND;TZID=America/Denver:20231104T170000
DTSTAMP:20260404T040942
CREATED:20231020T151012Z
LAST-MODIFIED:20231020T154315Z
UID:10000144-1699110000-1699117200@www.lgsfoundation.org
SUMMARY:Special Needs Awareness Day - "Don't Stare\, Say Hi"
DESCRIPTION:Join us for a day of fun\, awareness\, and inclusion!\nGirl Scout Troop 46312 is bringing awareness to Colorado Springs\, Colorado!\nNovember 4th\, 2023\n\n\nGirl Scout Troop 46312 in Colorado Springs Co is hosting a Special Needs awareness day for all to come!\n\n  \n\n\nThe girls have all taken a few months to learn about a disability that either they were interested in or a family member or themselves have. We asked them to make a trifold board to be able to present it at the awareness day! We have many non profit organizations and companies coming to help show what they do and how they help the special needs community!\n\n  \n\n\nOur main focus for this event is to teach everyone “Don’t stare\, Say Hi”. People with disabilities are human and still want to be involved. Inclusion is everything and we hope you walk away from this event with more understanding and love in your hearts!\n\n  \n\n\nCome check it out at:\n1201 Leta Drive\nColorado Springs\, Co 80911
URL:https://www.lgsfoundation.org/event/special-needs-awareness-day-dont-stare-say-hi/
LOCATION:Good Shepherds Church\, 1201 Leta Drive\, Colorado Springs\, CO\, 80911\, United States
GEO:38.7658669;-104.7382103
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Good Shepherds Church 1201 Leta Drive Colorado Springs CO 80911 United States;X-APPLE-RADIUS=500;X-TITLE=1201 Leta Drive:geo:-104.7382103,38.7658669
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231104T180000
DTEND;TZID=America/Los_Angeles:20231104T203000
DTSTAMP:20260404T040942
CREATED:20230517T201744Z
LAST-MODIFIED:20230824T180736Z
UID:10000125-1699120800-1699129800@www.lgsfoundation.org
SUMMARY:LGS Foundation Anniversary Dinner
DESCRIPTION:You’re Invited!\nJoin us as we celebrate our 15th Anniversary of service to the LGS Community! For 15 years\, with your help\, we have improved the lives of those impacted by LGS through advancing research\, awareness\, education\, and family support. \n \nGET YOUR TICKETS NOW \n \n\n\n\nWant to Give Hope for the Future? Consider Sponsoring the Event or Donate to the Silent Auction.\nPlease email us at Giving@LGSFoundation.org. \nIndividuals and families impacted by LGS can email info@lgsfoundation.org to request the Family Discount Code prior to purchasing tickets. \n\n\nThank You to Our International LGS Awareness Day Partners\n \n 
URL:https://www.lgsfoundation.org/event/lgs-foundation-15th-anniversary-dinner/
LOCATION:Harbor View Loft\, 1880 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/08/Header-Banner-for-Emails.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.7257202;-117.2072312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Harbor View Loft 1880 Harbor Island Drive San Diego CA 92101 United States;X-APPLE-RADIUS=500;X-TITLE=1880 Harbor Island Drive:geo:-117.2072312,32.7257202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231114T200000
DTEND;TZID=America/New_York:20231114T210000
DTSTAMP:20260404T040942
CREATED:20231103T144555Z
LAST-MODIFIED:20231103T145621Z
UID:10000145-1699992000-1699995600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - November Support Group Meeting
DESCRIPTION:Join us Tuesday\, November 14th at 8 pm ET.\nTopic: Finding gratitude in the LGS journey\nWith Thanksgiving approaching\, it’s that time of year where we gather with our loved ones to give thanks. Please join our November support group where we’ll focus on the challenges of finding gratitude in the LGS journey. Has it been possible for you? Our caregiver community is here to listen\, share\, and support one another because together we ARE stronger! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-november-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T200000
DTEND;TZID=America/New_York:20231115T210000
DTSTAMP:20260404T040942
CREATED:20231103T144903Z
LAST-MODIFIED:20231103T145542Z
UID:10000146-1700078400-1700082000@www.lgsfoundation.org
SUMMARY:Dad to Dad - November Support Group Meeting
DESCRIPTION:Join us Wednesday\, November 15th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-november-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231127T200000
DTEND;TZID=America/New_York:20231127T210000
DTSTAMP:20260404T040942
CREATED:20231103T145329Z
LAST-MODIFIED:20231103T145329Z
UID:10000147-1701115200-1701118800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - November Support Group Meeting
DESCRIPTION:Join us Monday\, November 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-november-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231201
DTEND;VALUE=DATE:20231206
DTSTAMP:20260404T040942
CREATED:20230616T191249Z
LAST-MODIFIED:20230616T194509Z
UID:10000130-1701388800-1701820799@www.lgsfoundation.org
SUMMARY:LGS Foundation @ AES 2023
DESCRIPTION:Join us at AES in Orlando\, Florida\nAre you attending the American Epilepsy Society Annual Meeting in Orlando\, Florida in December? \nVisit us in the Epilepsy Resource Area of the Exhibit Hall. Here\, our team will be available to answer questions and provide support. \nMore information coming soon. 
URL:https://www.lgsfoundation.org/event/lgs-foundation-aes-2023/
LOCATION:Orange County Convention Center\, 9800 International Dr\, Orlando\, FL\, 32819\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/06/LGS-Foundation-@-AES.png
GEO:28.4254201;-81.4631863
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Orange County Convention Center 9800 International Dr Orlando FL 32819 United States;X-APPLE-RADIUS=500;X-TITLE=9800 International Dr:geo:-81.4631863,28.4254201
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231212T200000
DTEND;TZID=America/New_York:20231212T210000
DTSTAMP:20260404T040942
CREATED:20231208T145738Z
LAST-MODIFIED:20231208T145738Z
UID:10000148-1702411200-1702414800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together - December Support Group Meeting
DESCRIPTION:Join us on Tuesday\, December 12th at 8 pm ET.\nTopic: The Power of Finding Your Tribe\nWhat do Christmas\, Hanukkah and Kwanzaa have in common other than the fact that they all occur in December? COMMUNITY!  \nThis month we focus on the LGS community and the power of finding your tribe. So whether you light a candle on the Menorah or the Kinara\, or whether you jingle all the way\, you’re always welcome here. The LGS caregiver community will be your second home where you can share freely and confidentially with others who know you. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-december-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240116T200000
DTEND;TZID=America/New_York:20240116T210000
DTSTAMP:20260404T040942
CREATED:20240103T174132Z
LAST-MODIFIED:20240103T174132Z
UID:10000149-1705435200-1705438800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - January Support Group Meeting
DESCRIPTION:Join us Tuesday\, January 16th at 8 pm ET.\nTopic: The LGS Resolution(s)\nJanuary is when we set our goals and plan for the year ahead. So what are the goals when you’re caring for someone with LGS? \nIs it time to order new equipment? Try a new medication? Focus on your own needs? Focus on your other children’s needs? Begin future-planning? Is there something you’ve been putting off because you don’t know where to begin? \nBring your goals to our January Support group and let’s help one another get organized for another busy year because we’re Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240117T200000
DTEND;TZID=America/New_York:20240117T210000
DTSTAMP:20260404T040942
CREATED:20240103T175748Z
LAST-MODIFIED:20240103T175748Z
UID:10000150-1705521600-1705525200@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group Meeting
DESCRIPTION:Join us Wednesday\, January 17th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240122T200000
DTEND;TZID=America/New_York:20240122T210000
DTSTAMP:20260404T040942
CREATED:20240103T180315Z
LAST-MODIFIED:20240103T180315Z
UID:10000151-1705953600-1705957200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - January Support Group Meeting
DESCRIPTION:Join us Monday\, January 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-january-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240213T200000
DTEND;TZID=America/New_York:20240213T210000
DTSTAMP:20260404T040942
CREATED:20240201T165309Z
LAST-MODIFIED:20240201T165309Z
UID:10000155-1707854400-1707858000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group
DESCRIPTION:Join us Tuesday\, February 13th at 8 pm ET.\nTopic: February is the month of LOVE!  \nWhen your loved one has LGS it can often feel like you’re having to share his/her shortcomings\, flaws\, failures\, deficits\, etc. So isn’t it a relief when someone asks you “What do you LOVE about this person?” \nCome to our February support group and share all the wonderful stuff. Boast about their beautiful smile\, hilarious quirks\, new skill\, and that thing he/she did that had you laughing so hard. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240221T200000
DTEND;TZID=America/New_York:20240221T210000
DTSTAMP:20260404T040942
CREATED:20240201T171528Z
LAST-MODIFIED:20240201T171528Z
UID:10000156-1708545600-1708549200@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group
DESCRIPTION:Join us Wednesday\, February 21st at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240226T200000
DTEND;TZID=America/New_York:20240226T210000
DTSTAMP:20260404T040942
CREATED:20240201T171825Z
LAST-MODIFIED:20240201T171825Z
UID:10000157-1708977600-1708981200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - February Support Group
DESCRIPTION:Join us Monday\, February 26th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240312T200000
DTEND;TZID=America/New_York:20240312T210000
DTSTAMP:20260404T040942
CREATED:20240301T153638Z
LAST-MODIFIED:20240301T153638Z
UID:10000159-1710273600-1710277200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 12th @ 8 pm ET\nTopic: The Power of Your LGS Story\nWe all have a story to tell and it’s compelling and heart-wrenching. As we raise our voices as one community to support\, empower\, educate\, and advocate for our loved ones with LGS and their families\, come join our March support group and share your LGS story. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240320T200000
DTEND;TZID=America/New_York:20240320T210000
DTSTAMP:20260404T040942
CREATED:20240301T163656Z
LAST-MODIFIED:20240301T163656Z
UID:10000160-1710964800-1710968400@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Wednesday\, March 20th at 8 pm ET\nDad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240325T200000
DTEND;TZID=America/New_York:20240325T210000
DTSTAMP:20260404T040942
CREATED:20240301T165030Z
LAST-MODIFIED:20240301T165030Z
UID:10000161-1711396800-1711400400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - March Support Group Meeting
DESCRIPTION:Join us Monday\, March 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-march-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240409T200000
DTEND;TZID=America/New_York:20240409T210000
DTSTAMP:20260404T040942
CREATED:20240329T154915Z
LAST-MODIFIED:20240329T155152Z
UID:10000163-1712692800-1712696400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us on Tuesday\, April 9th at 8 pm ET.\nTopic: The “Business” of Caring for Someone with LGS.\nFrom accessing services and securing Medicaid waivers to battling with insurance over denials\, caring for someone with LGS can be a full-time job when you may already have a full-time job. \nIn the April support group\, we’ll share tips on how we’re making it work\, offer helpful resources to one another\, or just vent! \nCome join your fellow caregivers as we support\, educate\, and empower one another because nobody can do this alone. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240417T200000
DTEND;TZID=America/New_York:20240417T210000
DTSTAMP:20260404T040942
CREATED:20240329T160353Z
LAST-MODIFIED:20240329T160353Z
UID:10000164-1713384000-1713387600@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Join us Wednesday\, April 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240420T080000
DTEND;TZID=America/Los_Angeles:20240420T093000
DTSTAMP:20260404T040942
CREATED:20240208T152057Z
LAST-MODIFIED:20240411T221339Z
UID:10000158-1713600000-1713605400@www.lgsfoundation.org
SUMMARY:Savannah Walks a Mile for LGS Research
DESCRIPTION:Join Savannah and friends \non Saturday\, April\, 20th at 8 am PT.\nCome walk a mile with Savannah\, have some fun\, eat some donuts\, and raise funds for a great cause! \nSee Savannah’s Walk Page \nRSVP NOW
URL:https://www.lgsfoundation.org/event/savannahs-walk-for-lgs/
LOCATION:Vista Grande Elementary School\, 5606 Antigua Blvd\, San Diego\, CA\, 92124\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/02/Grassroot-Walks-Website-Banner.png
ORGANIZER;CN="Tracy Dixon-Salazar":MAILTO:TJSalazar2@gmail.com
GEO:32.8340553;-117.1082889
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Vista Grande Elementary School 5606 Antigua Blvd San Diego CA 92124 United States;X-APPLE-RADIUS=500;X-TITLE=5606 Antigua Blvd:geo:-117.1082889,32.8340553
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240420T100000
DTEND;TZID=America/Denver:20240420T120000
DTSTAMP:20260404T040942
CREATED:20240315T184742Z
LAST-MODIFIED:20240315T185505Z
UID:10000162-1713607200-1713614400@www.lgsfoundation.org
SUMMARY:Walk 'n' Roll for LGS Research
DESCRIPTION:  \nCome walk ‘n’ roll with our LGS warriors as we help raise awareness!  \nWalk\, run\, or roll around the park! This event is a great way for families to meet other LGS families! There will be food\, face painting\, music\, games\, and more!
URL:https://www.lgsfoundation.org/event/walk-n-roll-for-lgs-research/
LOCATION:Fountain Creek Regional Park\, 211 Duckwood Road\, Fountain\, CO\, 80817\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/03/Grassroot-Walks-Website-Banner-1.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:38.7091645;-104.7140653
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Fountain Creek Regional Park 211 Duckwood Road Fountain CO 80817 United States;X-APPLE-RADIUS=500;X-TITLE=211 Duckwood Road:geo:-104.7140653,38.7091645
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T100000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T040942
CREATED:20240116T221142Z
LAST-MODIFIED:20240408T200543Z
UID:10000153-1713607200-1713621600@www.lgsfoundation.org
SUMMARY:Florida - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nSaturday\, April 20\, 2024 | 10:00am ET | Tampa\, FL \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nSplash Pad\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nGames\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJOIN US IN Florida
URL:https://www.lgsfoundation.org/event/florida-walk/
LOCATION:All People’s Community Park & Life Center\, 6105 E. Sligh Ave.\, Tampa\, FL\, 33617\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.0095963;-82.3878142
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=All People’s Community Park & Life Center 6105 E. Sligh Ave. Tampa FL 33617 United States;X-APPLE-RADIUS=500;X-TITLE=6105 E. Sligh Ave.:geo:-82.3878142,28.0095963
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T103000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260404T040942
CREATED:20240116T220001Z
LAST-MODIFIED:20240415T124259Z
UID:10000152-1713609000-1713621600@www.lgsfoundation.org
SUMMARY:North Carolina - Walk for LGS Research
DESCRIPTION:9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome\nApril 20\, 2024 | 10:30am ET | Kannapolis\, NC \nEach year\, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures\, Together” Research Program. \nWith only a tiny fraction of public and private funds going towards research on LGS\, families of the more than one million people with LGS worldwide worry that lifesaving\, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!  \nJoin us for a day of family fun\, community\, and awareness!\n$25 Registration includes a T-Shirt\, Walk Bag\, Lunch\, and Family Fun listed below. \nFamily Fun Includes:  \n\nTrain Rides\nCarousel\nFace Painting\nDoor Prizes\nFamily Picnic\nCharacter Visits\nMusic … and more!\n\nAll proceeds benefit the “Finding the Cures\, Together” Research Program. This vital program drives cutting-edge\, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us! \n\n\nJoin Us in North Carolina
URL:https://www.lgsfoundation.org/event/north-carolina-walk/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/01/2024-Walk-Website-Banners.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240422T200000
DTEND;TZID=America/New_York:20240422T210000
DTSTAMP:20260404T040942
CREATED:20240329T161442Z
LAST-MODIFIED:20240329T161442Z
UID:10000165-1713816000-1713819600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting
DESCRIPTION:Join us Monday\, April 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240514T200000
DTEND;TZID=America/New_York:20240514T210000
DTSTAMP:20260404T040942
CREATED:20240502T142234Z
LAST-MODIFIED:20240502T142310Z
UID:10000166-1715716800-1715720400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us Tuesday\, May 14th @ 8 pm ET\nTopic: The Superhero Caregiver\nHow many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special\, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember\, you are not alone and we are Stronger Together! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240515T200000
DTEND;TZID=America/New_York:20240515T210000
DTSTAMP:20260404T040942
CREATED:20240502T142831Z
LAST-MODIFIED:20240502T142831Z
UID:10000167-1715803200-1715806800@www.lgsfoundation.org
SUMMARY:Dad to Dad - May Support Group Meeting
DESCRIPTION:Join us Wednesday\, May 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting/
LOCATION:Virtual
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR