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X-WR-CALDESC:Events for LGS Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260429T192015
CREATED:20251217T221122Z
LAST-MODIFIED:20260123T203528Z
UID:10000253-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:2026 Walk for LGS Research
DESCRIPTION:Together for a Breakthrough\nApril 2026 is Walk Month for Lennox-Gastaut Syndrome\, a month-long movement that expands the Walk beyond just one day—giving families\, advocates\, and supporters everywhere more ways to walk\, wheel\, and make an impact. \nWalk your way. In your community. Together for a breakthrough. \n\n\nGet Involved\nWalk for LGS Research takes place throughout April—on your own\, with others\, in your community\, or virtually—bringing people together to raise awareness\, build connection\, and fuel critical LGS research. \nWhether you participate in an existing walk\, join virtually\, or walk on your own\, every step moves the mission forward. \n➕ Add Walk for LGS Research to your calendar\nStay connected to Walk Month moments\, stories\, and ways to participate throughout April. \n📍 Host a local Walk for LGS Research event \n\n\nHost a Walk in Your Community\nHosting a Walk for LGS Research event is a powerful way to bring families and supporters together\, increase visibility for LGS\, and help accelerate research. \nNo large event required.No set distance.Just your community—showing up together. \nApply to host a local Walk  \n\nWhy We Walk\nEvery step taken during Walk for LGS Research helps support the LGS Foundation’s Finding the Cures\, Together research program\, advancing collaborative research that could lead to real breakthroughs for the LGS community. \nJoin the global movement this April.
URL:https://www.lgsfoundation.org/event/2026-walk-for-lgs-research/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260429T192015
CREATED:20260318T170315Z
LAST-MODIFIED:20260318T170315Z
UID:10000275-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:Neurelis Walk for LGS Research - Private Event
DESCRIPTION:About This Walk\nThis April\, Nuerelis is joining the global movement for Lennox-Gastaut Syndrome (LGS) by hosting a private\, month-long Walk for LGS Research initiative. \nAs an industry partner\, their team is coming together throughout April to raise awareness\, support families\, and help drive critical research forward. \nWhile this is a private\, internal event\, the impact reaches far beyond their organization — contributing to a collective effort happening across communities worldwide. \n\nSupport Their Impact\nEven though this is a private event\, you can still be part of the movement. \nSupport the LGS Foundation’s Walk for LGS Research Campaign
URL:https://www.lgsfoundation.org/event/neurelis-walk-for-lgs-research-private-event/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T200000
DTEND;TZID=America/New_York:20260512T210000
DTSTAMP:20260429T192015
CREATED:20260325T144339Z
LAST-MODIFIED:20260325T144339Z
UID:10000277-1778616000-1778619600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Research Updates 💙The LGS Foundation is driving research and leading the way in the development of new treatments. Join us this month as we welcome special guest Helen Chen\, Research Director at the LGS Foundation\, to share updates and insights into current research efforts. \nLearn more about how you and your family can participate in research and help move progress forward. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T200000
DTEND;TZID=America/New_York:20260519T210000
DTSTAMP:20260429T192015
CREATED:20260325T152346Z
LAST-MODIFIED:20260325T152346Z
UID:10000280-1779220800-1779224400@www.lgsfoundation.org
SUMMARY:Dad to Dad – May Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T200000
DTEND;TZID=America/New_York:20260521T210000
DTSTAMP:20260429T192015
CREATED:20260325T162107Z
LAST-MODIFIED:20260325T162107Z
UID:10000283-1779393600-1779397200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Mayo
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T200000
DTEND;TZID=America/New_York:20260601T210000
DTSTAMP:20260429T192015
CREATED:20260325T171913Z
LAST-MODIFIED:20260428T182545Z
UID:10000286-1780344000-1780347600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T200000
DTEND;TZID=America/New_York:20260609T210000
DTSTAMP:20260429T192015
CREATED:20260325T150433Z
LAST-MODIFIED:20260325T150648Z
UID:10000278-1781035200-1781038800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: What is Respite? 💙Caregiving is not easy. The ongoing demands of caring for someone with Lennox-Gastaut Syndrome can strain even the most resilient person. That’s why it’s critical for caregivers to ask for help and take time to rest. \nBut how do we actually make that happen? \nThis month\, we’ll come together to share ideas\, challenges\, and practical ways to access respite and support one another along the way. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T200000
DTEND;TZID=America/New_York:20260616T210000
DTSTAMP:20260429T192015
CREATED:20260325T152926Z
LAST-MODIFIED:20260325T152926Z
UID:10000281-1781640000-1781643600@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T200000
DTEND;TZID=America/New_York:20260618T210000
DTSTAMP:20260429T192015
CREATED:20260325T162846Z
LAST-MODIFIED:20260325T162846Z
UID:10000284-1781812800-1781816400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Junio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260429T192015
CREATED:20260325T172253Z
LAST-MODIFIED:20260325T172315Z
UID:10000287-1782158400-1782162000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260706T190000
DTEND;TZID=America/New_York:20260706T203000
DTSTAMP:20260429T192015
CREATED:20260406T154638Z
LAST-MODIFIED:20260406T154638Z
UID:10000290-1783364400-1783369800@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260709
DTEND;VALUE=DATE:20260712
DTSTAMP:20260429T192015
CREATED:20250523T173020Z
LAST-MODIFIED:20260210T165015Z
UID:10000223-1783555200-1783814399@www.lgsfoundation.org
SUMMARY:10th International Family & Professional Conference
DESCRIPTION:Save the Date! | July 9–11\, 2026\n📍 Orlando\, Florida\nJoin us for the LGS Foundation’s 10th International Family & Professional Conference\, a powerful three-day event that brings together hundreds of families\, caregivers\, and epilepsy professionals from around the globe. \nHeld every two years\, this comprehensive conference explores the latest in Lennox-Gastaut Syndrome (LGS) research\, treatments\, services\, and strategies to improve quality of life. Whether you’re looking for expert talks\, practical resources\, or community connection\, this event is for you. \n✨ Don’t miss this special opportunity to connect\, learn\, and grow with the global LGS community. \nMore details and registration coming soon! \nLearn More
URL:https://www.lgsfoundation.org/event/10th-international-family-professional-conference/
LOCATION:Caribe Royale Orlando\, 8101 World Center Drive\, Orlando\, FL\, 32821\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.3612508;-81.4917908
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Caribe Royale Orlando 8101 World Center Drive Orlando FL 32821 United States;X-APPLE-RADIUS=500;X-TITLE=8101 World Center Drive:geo:-81.4917908,28.3612508
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T190000
DTEND;TZID=America/New_York:20261005T203000
DTSTAMP:20260429T192015
CREATED:20260406T154825Z
LAST-MODIFIED:20260406T154825Z
UID:10000291-1791226800-1791232200@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
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