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X-WR-CALDESC:Events for LGS Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220913T200000
DTEND;TZID=America/New_York:20220913T210000
DTSTAMP:20260628T115327
CREATED:20220825T204649Z
LAST-MODIFIED:20220825T204828Z
UID:10000090-1663099200-1663102800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Respite & Self-Care- What does that look like for YOU?\n  \n\nRespite can be defined as “a short period of rest or relief from something difficult or unpleasant.” but how does that really look for each of us individually? Come to our next meeting and share your respite story with others and learn how to better provide that ‘short period of rest’ so you can recharge and resume caregiving with a full tank.\n  \n\n\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220822T200000
DTEND;TZID=America/New_York:20220822T210000
DTSTAMP:20260628T115327
CREATED:20220806T180206Z
LAST-MODIFIED:20220806T180540Z
UID:10000088-1661198400-1661202000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Caregivers of Adults with LGS Support Group\n\nLiving with LGS is a marathon\, not a sprint. Adult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-3/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T200000
DTEND;TZID=America/New_York:20220817T210000
DTSTAMP:20260628T115327
CREATED:20220701T171239Z
LAST-MODIFIED:20220701T171239Z
UID:10000086-1660766400-1660770000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-2/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220809T200000
DTEND;TZID=America/New_York:20220809T210000
DTSTAMP:20260628T115327
CREATED:20220701T170850Z
LAST-MODIFIED:20220806T004209Z
UID:10000085-1660075200-1660078800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. - Monthly Support Group
DESCRIPTION:Topic: LGS Safety- Beyond the Seizures \nPlease join us for an in-depth discussion on issues facing the LGS caregiver when trying to keep their loved ones safe. \nFrom head injuries\, elopement\, choking hazards\, and more\, caregivers are invited to share their challenges and tips for protecting all family members from harm. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-3/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220727T200000
DTEND;TZID=America/Kentucky/Louisville:20220727T210000
DTSTAMP:20260628T115327
CREATED:20220525T184215Z
LAST-MODIFIED:20220525T184215Z
UID:10000083-1658952000-1658955600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-2/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220723T120000
DTEND;TZID=UTC:20220723T200000
DTSTAMP:20260628T115327
CREATED:20220513T194204Z
LAST-MODIFIED:20220524T230913Z
UID:10000078-1658577600-1658606400@www.lgsfoundation.org
SUMMARY:Swing FORE A Cure
DESCRIPTION:Join Us For The First-Ever Swing FORE A Cure For LGS\nSaturday\, July 23\, 2022\nDublin\, Ohio\nLGS is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent\, uncontrollable seizures and suffer from many different types of seizures. Some children with LGS survive into adulthood and the majority are completely dependent on others for their daily care. \nLGS may be treated with drugs\, diets\, neural stimulating devices\, brain surgery\, and/or alternative therapies\, but of the more than 30 therapies that exist to treat seizures\, no specific therapy is effective to stop the seizures in LGS. For most patients\, the odds of achieving seizure freedom are less than 15% and the odds of having typical intellectual ability are less than 5%. \nOur goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​ You can help us by participating in or donating to Swing FORE A Cure! \nSpace is limited. Register your team early!\n 
URL:https://www.lgsfoundation.org/event/swing-fore-a-cure/
LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/2022-Swing-FORE-a-Cure-Event-Banner-4.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:40.0874409413;-83.173546793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220720T200000
DTEND;TZID=America/Kentucky/Louisville:20220720T210000
DTSTAMP:20260628T115327
CREATED:20220525T182144Z
LAST-MODIFIED:20220525T182409Z
UID:10000084-1658347200-1658350800@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n  \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220712T200000
DTEND;TZID=America/Kentucky/Louisville:20220712T210000
DTSTAMP:20260628T115327
CREATED:20220525T181343Z
LAST-MODIFIED:20220525T181343Z
UID:10000082-1657656000-1657659600@www.lgsfoundation.org
SUMMARY:De-Stress Fest Support Group
DESCRIPTION:Living with LGS can be stressful. \nJoin us for real talk on caregiver burden\, stress\, and self-care solutions — Yes\, Self Care!\nCome to De-stress as we support each other on this journey. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-2/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220622T200000
DTEND;TZID=America/Kentucky/Louisville:20220622T210000
DTSTAMP:20260628T115327
CREATED:20220525T174755Z
LAST-MODIFIED:20220525T174755Z
UID:10000081-1655928000-1655931600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220617T070000
DTEND;TZID=UTC:20220619T130000
DTSTAMP:20260628T115327
CREATED:20220513T193829Z
LAST-MODIFIED:20220513T204038Z
UID:10000077-1655449200-1655643600@www.lgsfoundation.org
SUMMARY:2022 International Family & Professional Conference
DESCRIPTION:LGS Foundation Family & Professional Conference\nJune 17-19\, 2022\nThe LGS Foundation is so excited to host the 2022 LGS Foundation Family & Professional Conference\, at the Gaylord Texan Resort & Convention Center in Grapevine\, Texas. This in-person and virtual conference will bring together more than 350 participants from around the globe to learn from the LGS experts. Topics include diagnosing and treating LGS\, the latest in LGS Research\, emerging treatments\, managing LGS-associated disorders\, managing LGS at home and in the community\, and much\, much more! \nRegister Now 
URL:https://www.lgsfoundation.org/event/2022-international-family-professional-conference/
LOCATION:Gaylord Texan Resort & Convention Center\, 1501 Gaylord Trail\, Grapevine\, TX\, 76051\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.9548791;-97.0644155
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Gaylord Texan Resort & Convention Center 1501 Gaylord Trail Grapevine TX 76051 United States;X-APPLE-RADIUS=500;X-TITLE=1501 Gaylord Trail:geo:-97.0644155,32.9548791
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220614T200000
DTEND;TZID=America/Kentucky/Louisville:20220614T210000
DTSTAMP:20260628T115327
CREATED:20220524T232230Z
LAST-MODIFIED:20220525T173633Z
UID:10000080-1655236800-1655240400@www.lgsfoundation.org
SUMMARY:De-Stress Fest Support Group
DESCRIPTION:Living with LGS can be stressful. \nJoin us for real talk on caregiver burden\, stress\, and self-care solutions — Yes\, Self Care!\nCome to De-stress as we support each other on this journey. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220524T200000
DTEND;TZID=America/Kentucky/Louisville:20220524T210000
DTSTAMP:20260628T115327
CREATED:20220524T222832Z
LAST-MODIFIED:20220525T173434Z
UID:10000079-1653422400-1653426000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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