BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//LGS Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:LGS Foundation
X-ORIGINAL-URL:https://www.lgsfoundation.org
X-WR-CALDESC:Events for LGS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Denver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20210314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20211107T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20220313T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20221106T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20230312T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20231105T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20210314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20211107T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20230312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20231105T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Kentucky/Louisville
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221105T103000
DTEND;TZID=America/New_York:20221105T170000
DTSTAMP:20260918T044404
CREATED:20221028T042844Z
LAST-MODIFIED:20221028T044135Z
UID:10000102-1667644200-1667667600@www.lgsfoundation.org
SUMMARY:Cooking for a Cure for LGS
DESCRIPTION:This year for LGS awareness\, I am hosting “Cooking for a Cure for LGS”! I have rented the pop-up shop at Borden Bargains. We’ll have chili\, vegetable soup\, and chicken and dumplings\, as well as a bake sale and snack items. All proceeds will go to the LGS Foundation to help families like mine!! \nCome visit Borden Bargains on Saturday\, November 5th from 10:00am – 5:00pm ET and shop their great inventory and enjoy some of my delicious food! \nBorden Bargains \n555 E Water Street Borden\, IN 47106\n  \nClick Here to Learn More \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/cooking-for-a-cure-for-lgs/
LOCATION:Borden Bargains\, 555 E Water St\, Borden\, Indiana\, 47106
ORGANIZER;CN="Tayla S.":MAILTO:taylashoultz@gmail.com
GEO:38.4648599;-85.9397511
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Borden Bargains 555 E Water St Borden Indiana 47106;X-APPLE-RADIUS=500;X-TITLE=555 E Water St:geo:-85.9397511,38.4648599
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221101T170000
DTEND;TZID=America/Denver:20221101T190000
DTSTAMP:20260918T044404
CREATED:20221011T063119Z
LAST-MODIFIED:20221028T044646Z
UID:10000097-1667322000-1667329200@www.lgsfoundation.org
SUMMARY:"one\, one thousand..." Photo Exhibition Reception with Discussion
DESCRIPTION:Join us in person or online to view “one\, one thousand…” and hear talks by the artist/photographer and her sister Lori\, mother of David\, who is diagnosed with Lennox-Gastaut Syndrome. \n“one\, one thousand…” is an unconventional documentary and a different kind of love story. It exposes the impact that Lennox-Gastaut Syndrome has on a mother and son’s experiences of life-long care. Debe Arlook’s intimate photos depict the inner and outer worlds of the relationship between the artist’s nephew and sister. The title references counting the length of a seizure. \n  \nUniversity of Colorado Anschutz Medical Campus\nFulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave. Aurora\, CO 80045\n  \nClick Here to Learn More \nDonate to the “one\, one thousand…” fundraiser to benefit the LGS Foundation \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/one-one-thousand-photo-exhibition-reception-with-discussion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
GEO:39.7454093;-104.8353839
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=University of Colorado 13080 E. 19th Ave. Aurora CO 80045 United States;X-APPLE-RADIUS=500;X-TITLE=13080 E. 19th Ave.:geo:-104.8353839,39.7454093
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221101T110000
DTEND;TZID=America/Los_Angeles:20221101T120000
DTSTAMP:20260918T044404
CREATED:20221011T181225Z
LAST-MODIFIED:20221012T221427Z
UID:10000098-1667300400-1667304000@www.lgsfoundation.org
SUMMARY:LGS & DEE Caregiver Meetup Hosted by the LGS Foundation
DESCRIPTION:Epilepsy Awareness Day at Disneyland\nSleeping Beauty Pavilion\n\nTuesday\, November 1\, 2022 | 11:00am – 12:00pm PT\n  \nThe LGS Foundation welcomes ALL caregivers from the Developmental Epileptic Encephalopathies (DEEs) Community as we gather to build our caregiver support network\, share resources\, and learn from one another. \n  \nRegister to Attend
URL:https://www.lgsfoundation.org/event/dee-caregiver-meetup-hosted-by-the-lgs-foundation/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/10/MeetUp-at-EADDL-Calendar-of-Events-Image.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221031T180000
DTEND;TZID=UTC:20221031T200000
DTSTAMP:20260918T044404
CREATED:20221009T054309Z
LAST-MODIFIED:20221009T054846Z
UID:10000096-1667239200-1667246400@www.lgsfoundation.org
SUMMARY:Halloween Masquerade Ball
DESCRIPTION:Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland\nMonday\, October 31\, 2022 | 6:00pm PT\nDisneyland Hotel Conference Center – Anaheim\, CA  \nJoin us for the FIRST-EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland\, co-hosted by Sofie’s Journey and the LGS Foundation. \nThis event is free to all registered Expo guests. Make sure to register for the Expo; you’ll get an email back with the hotel and ticket link! \nThe Halloween Masquerade Ball is free to the first 1\,500 guests (max capacity\, sorry). No need to RSVP! Just show up to the Expo. \nLEARN MORE
URL:https://www.lgsfoundation.org/event/halloween-masquerade-ball/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/10/Halloween-Masquerade-Ball-Calendar-of-Events-Image.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221024T200000
DTEND;TZID=America/New_York:20221024T210000
DTSTAMP:20260918T044404
CREATED:20220928T175645Z
LAST-MODIFIED:20221009T055355Z
UID:10000094-1666641600-1666645200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221019T200000
DTEND;TZID=America/New_York:20221019T210000
DTSTAMP:20260918T044404
CREATED:20220928T175323Z
LAST-MODIFIED:20221009T055326Z
UID:10000093-1666209600-1666213200@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221011T200000
DTEND;TZID=America/New_York:20221011T210000
DTSTAMP:20260918T044404
CREATED:20220928T175009Z
LAST-MODIFIED:20221009T055257Z
UID:10000092-1665518400-1665522000@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: IEPs & Back to School – Is Everything Going As Expected?\n\n  \n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220926T200000
DTEND;TZID=America/New_York:20220926T210000
DTSTAMP:20260918T044404
CREATED:20220825T194526Z
LAST-MODIFIED:20220825T194526Z
UID:10000089-1664222400-1664226000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-2/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220921T200000
DTEND;TZID=America/New_York:20220921T210000
DTSTAMP:20260918T044404
CREATED:20220825T205006Z
LAST-MODIFIED:20220825T205006Z
UID:10000091-1663790400-1663794000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-3/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220913T200000
DTEND;TZID=America/New_York:20220913T210000
DTSTAMP:20260918T044404
CREATED:20220825T204649Z
LAST-MODIFIED:20220825T204828Z
UID:10000090-1663099200-1663102800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Respite & Self-Care- What does that look like for YOU?\n  \n\nRespite can be defined as “a short period of rest or relief from something difficult or unpleasant.” but how does that really look for each of us individually? Come to our next meeting and share your respite story with others and learn how to better provide that ‘short period of rest’ so you can recharge and resume caregiving with a full tank.\n  \n\n\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220822T200000
DTEND;TZID=America/New_York:20220822T210000
DTSTAMP:20260918T044404
CREATED:20220806T180206Z
LAST-MODIFIED:20220806T180540Z
UID:10000088-1661198400-1661202000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Caregivers of Adults with LGS Support Group\n\nLiving with LGS is a marathon\, not a sprint. Adult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-3/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T200000
DTEND;TZID=America/New_York:20220817T210000
DTSTAMP:20260918T044404
CREATED:20220701T171239Z
LAST-MODIFIED:20220701T171239Z
UID:10000086-1660766400-1660770000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-2/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220809T200000
DTEND;TZID=America/New_York:20220809T210000
DTSTAMP:20260918T044404
CREATED:20220701T170850Z
LAST-MODIFIED:20220806T004209Z
UID:10000085-1660075200-1660078800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. - Monthly Support Group
DESCRIPTION:Topic: LGS Safety- Beyond the Seizures \nPlease join us for an in-depth discussion on issues facing the LGS caregiver when trying to keep their loved ones safe. \nFrom head injuries\, elopement\, choking hazards\, and more\, caregivers are invited to share their challenges and tips for protecting all family members from harm. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-3/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220727T200000
DTEND;TZID=America/Kentucky/Louisville:20220727T210000
DTSTAMP:20260918T044404
CREATED:20220525T184215Z
LAST-MODIFIED:20220525T184215Z
UID:10000083-1658952000-1658955600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-2/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220723T120000
DTEND;TZID=UTC:20220723T200000
DTSTAMP:20260918T044404
CREATED:20220513T194204Z
LAST-MODIFIED:20220524T230913Z
UID:10000078-1658577600-1658606400@www.lgsfoundation.org
SUMMARY:Swing FORE A Cure
DESCRIPTION:Join Us For The First-Ever Swing FORE A Cure For LGS\nSaturday\, July 23\, 2022\nDublin\, Ohio\nLGS is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent\, uncontrollable seizures and suffer from many different types of seizures. Some children with LGS survive into adulthood and the majority are completely dependent on others for their daily care. \nLGS may be treated with drugs\, diets\, neural stimulating devices\, brain surgery\, and/or alternative therapies\, but of the more than 30 therapies that exist to treat seizures\, no specific therapy is effective to stop the seizures in LGS. For most patients\, the odds of achieving seizure freedom are less than 15% and the odds of having typical intellectual ability are less than 5%. \nOur goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​ You can help us by participating in or donating to Swing FORE A Cure! \nSpace is limited. Register your team early!\n 
URL:https://www.lgsfoundation.org/event/swing-fore-a-cure/
LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/2022-Swing-FORE-a-Cure-Event-Banner-4.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:40.0874409413;-83.173546793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220720T200000
DTEND;TZID=America/Kentucky/Louisville:20220720T210000
DTSTAMP:20260918T044404
CREATED:20220525T182144Z
LAST-MODIFIED:20220525T182409Z
UID:10000084-1658347200-1658350800@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n  \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220712T200000
DTEND;TZID=America/Kentucky/Louisville:20220712T210000
DTSTAMP:20260918T044404
CREATED:20220525T181343Z
LAST-MODIFIED:20220525T181343Z
UID:10000082-1657656000-1657659600@www.lgsfoundation.org
SUMMARY:De-Stress Fest Support Group
DESCRIPTION:Living with LGS can be stressful. \nJoin us for real talk on caregiver burden\, stress\, and self-care solutions — Yes\, Self Care!\nCome to De-stress as we support each other on this journey. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-2/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220622T200000
DTEND;TZID=America/Kentucky/Louisville:20220622T210000
DTSTAMP:20260918T044404
CREATED:20220525T174755Z
LAST-MODIFIED:20220525T174755Z
UID:10000081-1655928000-1655931600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220617T070000
DTEND;TZID=UTC:20220619T130000
DTSTAMP:20260918T044404
CREATED:20220513T193829Z
LAST-MODIFIED:20220513T204038Z
UID:10000077-1655449200-1655643600@www.lgsfoundation.org
SUMMARY:2022 International Family & Professional Conference
DESCRIPTION:LGS Foundation Family & Professional Conference\nJune 17-19\, 2022\nThe LGS Foundation is so excited to host the 2022 LGS Foundation Family & Professional Conference\, at the Gaylord Texan Resort & Convention Center in Grapevine\, Texas. This in-person and virtual conference will bring together more than 350 participants from around the globe to learn from the LGS experts. Topics include diagnosing and treating LGS\, the latest in LGS Research\, emerging treatments\, managing LGS-associated disorders\, managing LGS at home and in the community\, and much\, much more! \nRegister Now 
URL:https://www.lgsfoundation.org/event/2022-international-family-professional-conference/
LOCATION:Gaylord Texan Resort & Convention Center\, 1501 Gaylord Trail\, Grapevine\, TX\, 76051\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.9548791;-97.0644155
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Gaylord Texan Resort & Convention Center 1501 Gaylord Trail Grapevine TX 76051 United States;X-APPLE-RADIUS=500;X-TITLE=1501 Gaylord Trail:geo:-97.0644155,32.9548791
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220614T200000
DTEND;TZID=America/Kentucky/Louisville:20220614T210000
DTSTAMP:20260918T044404
CREATED:20220524T232230Z
LAST-MODIFIED:20220525T173633Z
UID:10000080-1655236800-1655240400@www.lgsfoundation.org
SUMMARY:De-Stress Fest Support Group
DESCRIPTION:Living with LGS can be stressful. \nJoin us for real talk on caregiver burden\, stress\, and self-care solutions — Yes\, Self Care!\nCome to De-stress as we support each other on this journey. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220524T200000
DTEND;TZID=America/Kentucky/Louisville:20220524T210000
DTSTAMP:20260918T044404
CREATED:20220524T222832Z
LAST-MODIFIED:20220525T173434Z
UID:10000079-1653422400-1653426000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group/
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR