LGS Foundation

Caregiver of Adults with LGS – July Support Group Meeting
2025-07-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, July 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – August Support Group Meeting
2025-08-12 20:00 - 21:00 | Virtual
Join us on Tuesday, August 12th at 8 pm ET.
Topic: What’s The Title of Your LGS Story?
If you could write a book about your family’s LGS journey, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning, or maybe you’ve been doing this for a long time. We want to hear it all!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – August Support Group Meeting
2025-08-19 20:00 - 21:00 | Virtual
Join us Tuesday, August 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
2025-08-21 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 21 de agosto a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – August Support Group Meeting
2025-08-25 20:00 - 21:00 | Virtual
Join us Monday, August 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
2025-08-28 18:30 - 19:30 | Virtual
Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
Date & Time:📅 Thursday, August 28, 2025⏰ 6:30 PM ET
Description:Join us for a free, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care.
Our expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS.
This session is:

🎓 Non-accredited
💜 Caregiver-focused
💻 Virtual and free to attend

Registration:👉 Click here to register
Partners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.

Standing Together. Stronger Together. – September Support Group Meeting
2025-09-09 20:00 - 21:00 | Virtual
Join us on Tuesday, September 9th at 8 pm ET.
Topic: Back To School So Soon?

The school year has begun. Is this a good thing? Is your loved one attending a new school? Perhaps they’re no longer in school and you find yourself wistfully remembering the “good ol’ days” of IEPs and school activities. Or maybe your loved one (or you) feels anxious and nervous about the coming year.
Please join us as we wind down from the summer and begin to rev up to a new routine and all of the emotions that come with that.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – September Support Group Meeting
2025-09-16 20:00 - 21:00 | Virtual
Join us Tuesday, September 16th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Septiembre
2025-09-18 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 18 de septiembre a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – September Support Group Meeting
2025-09-22 20:00 - 21:00 | Virtual
Join us Monday, September 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

New Family Orientation Meeting
2025-10-07 19:00 - 20:30 | Virtual
New Family Orientation Meeting
Date: Tuesday, October 7th, 2025Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom)
Are you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation, this meeting is designed to welcome and support you.

What to Expect

Learn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)
Explore the LGS Foundation website and resources.
Discover how to participate in the Learn from Every Patient Database to help advance science.
Find out about family-focused programs, including the 2026 International Family & Professional Conference.
Access helpful toolkits and resources created for families navigating the LGS journey.
Connect with other caregivers in a safe, supportive group chat.

Why Attend?
This orientation is a chance to learn, ask questions, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources, connections, and a sense of community.
👉 RSVP today to reserve your spot!

Standing Together. Stronger Together. – October Support Group Meeting
2025-10-14 20:00 - 21:00 | Virtual
Join us on Tuesday, October 14th at 8 pm ET.
Topic: I’m not okay – So many emotions!

LGS caregivers have been expressing a lot of feelings lately, like pain, anger, hopelessness, and depression. It’s an ongoing struggle to care for our loved ones while attempting to care for ourselves, and sometimes we feel like we’re failing at both.
Please join us this month as we focus on how to bring the healing into the hurt places.
It can’t be repeated enough, “Nobody should have to do this alone!”
LGS Caregivers, you are not alone!❤️

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Octubre
2025-10-16 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 16 de octubre a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Dad to Dad – October Support Group Meeting
2025-10-21 20:00 - 21:00 | Virtual
Join us Tuesday, October 21st at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – October Support Group Meeting
2025-10-27 20:00 - 21:00 | Virtual
Join us Monday, October 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – November Support Group Meeting
2025-11-11 20:00 - 21:00 | Virtual
Join us on Tuesday, November 11th at 8 pm ET.
Topic: The Perfect Day

Let’s drift into fantasy land and design the perfect day. Perhaps it doesn’t exist in the ‘real’ world, and it’s ultra-rare when your child has Lennox-Gastaut Syndrome, but if you could design the perfect day, what would that look like?
Join the November Support Group as we fix the broken things, get a good night’s sleep, hear our nonverbal child say their first word, and have a seizure-free day, among other things. The sky’s the limit!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
2025-11-11 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 20 de noviembre a las 8pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Dad to Dad – November Support Group Meeting
2025-11-18 20:00 - 21:00 | Virtual
Join us Tuesday, November 18th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
2025-11-20 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 20 de noviembre a las 8pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – November Support Group Meeting
2025-11-24 20:00 - 21:00 | Virtual
Join us Monday, November 24th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Join the LGS Foundation at AES 2025 in Atlanta
2025-12-05 - 2025-12-09 | Georgia World Congress Center, 285 Andrew Young International Blvd., N.W., Atlanta, GA, 30312, United States
The LGS Foundation is honored to participate in the 2025 American Epilepsy Society (AES) Annual Meeting, the premier gathering for clinicians, researchers, and professionals dedicated to advancing epilepsy care and science.
This year’s meeting is a vital opportunity to elevate awareness of Lennox-Gastaut Syndrome (LGS) within the broader epilepsy research community. Join us in Atlanta as we share the latest developments in LGS research, resources, and support—fostering collaboration and accelerating progress.
📍 Visit the LGS Foundation at Booth N756
Learn More

Standing Together. Stronger Together. – December Support Group Meeting
2025-12-16 20:00 - 21:00 | Virtual
Join us on Tuesday, December 16th at 8 pm ET.
Topic: 2025, The Year That Was
Let’s look back on the past year. How has 2025 treated you and your family? Personally? Professionally? Come join our group as we reflect on the highs and lows, and bid farewell to 2025.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Diciembre
2025-12-18 20:00 - 21:00 | Virtual
Únase a nosotros el jueves 18 de diciembre a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

New Family Orientation Meeting
2026-01-06 19:00 - 20:30 | Virtual
New Family Orientation Meeting
Date: Tuesday, January 6th, 2026Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom)
Are you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation, this meeting is designed to welcome and support you.

What to Expect

Learn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)
Explore the LGS Foundation website and resources.
Discover how to participate in the Learn from Every Patient Database to help advance science.
Find out about family-focused programs, including the 2026 International Family & Professional Conference.
Access helpful toolkits and resources created for families navigating the LGS journey.
Connect with other caregivers in a safe, supportive group chat.

Why Attend?
This orientation is a chance to learn, ask questions, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources, connections, and a sense of community.
👉 RSVP today to reserve your spot!

Standing Together. Stronger Together. January Support Group Meeting
2026-01-13 20:00 - 21:00 | Virtual
Join us on Tuesday, January 13th at 8 pm ET.
Topic: Setting Achievable Goals! It’s all about finding BALANCE!

As we look ahead to 2026, it’s a great time to reflect and set intentions. What is one personal goal you hope to achieve in the coming year that will help you better balance caring for your loved one with caring for yourself?

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza (Spanish Support Group)
2026-01-15 20:00 - 21:00 | Virtual
Únase a nosotros este mes para el Grupo de Esperanza de LGS, un espacio seguro y acogedor para reunirnos virtualmente, compartir nuestras historias y apoyarnos mutuamente.
Este grupo mensual en español está facilitado por las cuidadoras Bertha Guillen, Michele Torres, y Kelly Arrango, quienes acompañan a las familias mientras navegamos juntas el camino del síndrome de Lennox-Gastaut (LGS).
Aquí encontrará conexión, comprensión y ánimo—ya sea que esté comenzando su recorrido con LGS o que tenga muchos años de experiencia. Nadie debería caminar este camino solo.
Juntos somos más fuertes. Hay esperanza para nuestros niños.
Este grupo está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse a nuestra comunidad en línea y recibir la información de acceso, visite:👉 www.facebook.com/groups/lgsfoundation

Dad to Dad - January Support Group
2026-01-20 20:00 - 21:00 | Virtual
Join us Tuesday, January 20th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregivers of Adults with LGS – January Support Group
2026-01-26 20:00 - 21:00 | Virtual
A new year doesn’t mean starting over—it means continuing forward, together.
Join parents and caregivers of adults with Lennox-Gastaut Syndrome for a supportive space to connect, share experiences, and feel understood. Caring for an adult with LGS brings evolving challenges, and this group offers community from those who truly get it.
Hosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are also welcome.
🗓 Monday, January 26th ⏰ 8:00 pm ET
Available to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - February Support Group Meeting
2026-02-10 20:00 - 21:00 | Virtual
Join us on Tuesday, February 10th at 8 pm ET.
Topic: How Do You Keep Track of EVERYTHING?

Seizure Action Plan Awareness Week is every February. Join this month’s support group and share how you track the seizures, behaviors, sleep patterns, medications, and everything else. You may give & receive some great tips from your fellow caregivers.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - February Support Group Meeting
2026-02-17 20:00 - 21:00 | Virtual
Join us Tuesday, February 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
