Eubank, KY Local Walk 'n' Wheel for LGS Research
2025-04-26 11:00 - 13:30 (America/New_York) | Eubank Community Park, Bulldog Street, Eubank, KY, 42567, United States
Join us on April 26, 2025, at Eubank Community Park as We Step Together for a Breakthrough.
We’re excited to invite you to Tyler’s Walk on Wheels, a special event supporting the Lennox-Gastaut Syndrome (LGS) Foundation. This cause means so much to us because it’s personal – our son Tyler has LGS, and while he’s doing well with amazing doctors and care, we’re determined to help fund the research that could lead to better treatments and, ultimately, a cure.
All proceeds from the event will go directly to LGS research. We’ll have raffles, door prizes, t-shirts, and music to make it a fun, meaningful day. Most importantly, we’ll be walking together, showing support for Tyler and all families affected by LGS.
Your presence would mean the world to us as we continue the fight for a cure. Thank you for being part of this journey with us.
This event is free to all LGS community members, donations are appreciated. We can’t wait to see you there!
Donate to Support Our Fundraising Efforts
Register to Attend Tyler’s Walk

Colorado Springs, CO Local Walk 'n' Wheel for LGS Research
2025-04-26 11:00 - 15:00 (America/Phoenix) | Bear Creek Regional Park, 2002 Creek Crossing Street, Colorado Springs, CO, 80905, United States
Calling All Colorado Families!
Join us on April 26, 2025, at Bear Creek Regional Park as we Step Together for a Breakthrough.
This special event is an opportunity for families and friends to come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk or roll, we’ll unite side by side to show our strength and solidarity.
It’s a time to connect with others who are navigating the same journey, to find support and inspiration, and to build a stronger community. We’ll take a walk around the park, then enjoy delicious food, uplifting music, and great company.
Let’s create new friendships, share our stories, and leave with smiles on our faces and hearts full of hope. Together, we make a difference.
This event is free to all LGS community members. We can’t wait to see you there!
Donate to support our fundraising efforts
Register to Attend

Caregiver of Adults with LGS - April Support Group Meeting
2025-04-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, April 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - May Support Group Meeting
2025-05-13 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, May 13th at 8 pm ET.
Topic: Your Favorite Things!
What’s that thing that you need to get through the day? Is it your morning coffee? The 10-minute afternoon nap? The fully-charged iPad that will keep your loved one occupied so you can drink that coffee, or quietly close your eyes?
It’s always the little things in life that can be the BIGGEST things in life. We always hear “I don’t know how you do it”.
Join us and let us know, how do you do it?!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de Mayo
2025-05-15 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 15 de mayo a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - May Support Group Meeting
2025-05-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, May 19th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - May Support Group Meeting
2025-05-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, May 20th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - June Support Group Meeting
2025-06-10 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, June 10th at 8 pm ET.
Topic: Managing the Business of LGS!
LGS is tough. Navigating all of the ‘systems’ shouldn’t have to be. But it is!!. It can often feel like you’re running a small business. Appointments, insurance denials, specialists, therapists, day programs, IEPs!! And who manages it all? YOU! Join all of the other ‘small business owners’ also known as ‘LGS Caregivers’, and let’s talk about it. Share your strategies, tips, and self-care ideas for when it gets to be too much!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - June Support Group Meeting
2025-06-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, June 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de junio
2025-06-19 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 19 de junio a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – June Support Group Meeting
2025-06-23 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, June 23rd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - July Support Group Meeting
2025-07-08 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, July 8th at 8 pm ET.
Topic: Summer’s Here! Is That A Good Thing?
How will your family be spending the summer? Extended School Year (ESY)? Summer Camp? Are you able to create a fun, safe, and relaxing summer for your LGS loved one and their siblings, or does this big break in the routine add chaos to your lives? Join a group of like-minded caregivers as we unwind, unload, listen, and support one another.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Your Story. Your Session.
2025-07-15 - 2025-08-14 | Virtual
Your Story. Your Session. is a free, live, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience, this is a space for you to learn, connect, and feel supported.
💜 Live Sessions – Choose the Time That Fits Your Life:

Tuesday, July 15 @ 6:00 PM ET
Thursday, August 1 @ 1:00 PM ET
Wednesday, August 14 @ 4:00 PM ET

🧠 What to Expect:

Expert insights from pediatric neurologists and epilepsy specialists
Real caregiver stories and strategies
Practical tools for navigating daily challenges and transitions in care
Opportunities to ask questions or simply listen in

🎤 You decide how to participate—share your experience, ask a question, or just take it all in. All voices are welcome.
📍 Where: Online via Zoom
⏰ Duration: 1 Hour💲 Cost: FREE
Reserve Your Spot Today

Dad to Dad – July Support Group Meeting
2025-07-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, July 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de julio
2025-07-17 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 17 de julio a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

2025 LGS Research Meeting of the Minds
2025-07-21 - 2025-07-22 | The Logan Hotel, Philadelphia, PA, 19103, United States
Save the Date | July 21 – 22, 2025
Advancing Evidence-Based LGS Care Across the Lifespan
This bi-annual Meeting of the Minds research conference brings together hundreds of researchers, healthcare providers, clinical trialists, scientists, advocates, caregivers, and industry partners to push the conversation about research beyond only treating the symptom of seizures, but also finding treatments that target the whole syndrome.
Learnings from the Meeting of the Minds help guide the LGS Foundation’s research strategy and efforts.
Learn More

Caregiver of Adults with LGS – July Support Group Meeting
2025-07-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, July 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – August Support Group Meeting
2025-08-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, August 12th at 8 pm ET.
Topic: What’s The Title of Your LGS Story?
If you could write a book about your family’s LGS journey, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning, or maybe you’ve been doing this for a long time. We want to hear it all!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – August Support Group Meeting
2025-08-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
2025-08-21 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 21 de agosto a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – August Support Group Meeting
2025-08-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, August 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
2025-08-28 18:30 - 19:30 (America/New_York) | Virtual
Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
Date & Time:📅 Thursday, August 28, 2025⏰ 6:30 PM ET
Description:Join us for a free, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care.
Our expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS.
This session is:

🎓 Non-accredited
💜 Caregiver-focused
💻 Virtual and free to attend

Registration:👉 Click here to register
Partners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.

Standing Together. Stronger Together. – September Support Group Meeting
2025-09-09 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, September 9th at 8 pm ET.
Topic: Back To School So Soon?

The school year has begun. Is this a good thing? Is your loved one attending a new school? Perhaps they’re no longer in school and you find yourself wistfully remembering the “good ol’ days” of IEPs and school activities. Or maybe your loved one (or you) feels anxious and nervous about the coming year.
Please join us as we wind down from the summer and begin to rev up to a new routine and all of the emotions that come with that.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – September Support Group Meeting
2025-09-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, September 16th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Septiembre
2025-09-18 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 18 de septiembre a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – September Support Group Meeting
2025-09-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, September 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

New Family Orientation Meeting
2025-10-07 19:00 - 20:30 (America/New_York) | Virtual
New Family Orientation Meeting
Date: Tuesday, October 7th, 2025Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom)
Are you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation, this meeting is designed to welcome and support you.

What to Expect

Learn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)
Explore the LGS Foundation website and resources.
Discover how to participate in the Learn from Every Patient Database to help advance science.
Find out about family-focused programs, including the 2026 International Family & Professional Conference.
Access helpful toolkits and resources created for families navigating the LGS journey.
Connect with other caregivers in a safe, supportive group chat.

Why Attend?
This orientation is a chance to learn, ask questions, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources, connections, and a sense of community.
👉 RSVP today to reserve your spot!

Standing Together. Stronger Together. – October Support Group Meeting
2025-10-14 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, October 14th at 8 pm ET.
Topic: I’m not okay – So many emotions!

LGS caregivers have been expressing a lot of feelings lately, like pain, anger, hopelessness, and depression. It’s an ongoing struggle to care for our loved ones while attempting to care for ourselves, and sometimes we feel like we’re failing at both.
Please join us this month as we focus on how to bring the healing into the hurt places.
It can’t be repeated enough, “Nobody should have to do this alone!”
LGS Caregivers, you are not alone!❤️

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Octubre
2025-10-16 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 16 de octubre a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Dad to Dad – October Support Group Meeting
2025-10-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, October 21st at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
