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DTSTART;TZID=America/New_York:20251014T200000
DTEND;TZID=America/New_York:20251014T210000
DTSTAMP:20260410T105240
CREATED:20250925T175052Z
LAST-MODIFIED:20250925T175119Z
UID:10000240-1760472000-1760475600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 14th at 8 pm ET.\nTopic: I’m not okay – So many emotions!  \n\nLGS caregivers have been expressing a lot of feelings lately\, like pain\, anger\, hopelessness\, and depression. It’s an ongoing struggle to care for our loved ones while attempting to care for ourselves\, and sometimes we feel like we’re failing at both. \nPlease join us this month as we focus on how to bring the healing into the hurt places. \nIt can’t be repeated enough\, “Nobody should have to do this alone!” \nLGS Caregivers\, you are not alone!❤️ \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251016T200000
DTEND;TZID=America/New_York:20251016T210000
DTSTAMP:20260410T105240
CREATED:20250925T183847Z
LAST-MODIFIED:20250925T183847Z
UID:10000246-1760644800-1760648400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Octubre
DESCRIPTION:Únase a nosotros el jueves 16 de octubre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation \n 
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-octubre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T200000
DTEND;TZID=America/New_York:20251021T210000
DTSTAMP:20260410T105240
CREATED:20250925T181051Z
LAST-MODIFIED:20250925T181241Z
UID:10000243-1761076800-1761080400@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join us Tuesday\, October 21st at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260410T105240
CREATED:20250925T192005Z
LAST-MODIFIED:20250925T192118Z
UID:10000249-1761595200-1761598800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting
DESCRIPTION:Join us Monday\, October 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T105240
CREATED:20250925T175755Z
LAST-MODIFIED:20250925T180030Z
UID:10000241-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – November Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 11th at 8 pm ET.\nTopic: The Perfect Day\n\nLet’s drift into fantasy land and design the perfect day. Perhaps it doesn’t exist in the ‘real’ world\, and it’s ultra-rare when your child has Lennox-Gastaut Syndrome\, but if you could design the perfect day\, what would that look like? \nJoin the November Support Group as we fix the broken things\, get a good night’s sleep\, hear our nonverbal child say their first word\, and have a seizure-free day\, among other things. The sky’s the limit! \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-november-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T105240
CREATED:20250925T190910Z
LAST-MODIFIED:20250925T191529Z
UID:10000247-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T200000
DTEND;TZID=America/New_York:20251118T210000
DTSTAMP:20260410T105240
CREATED:20250925T181448Z
LAST-MODIFIED:20250925T181555Z
UID:10000244-1763496000-1763499600@www.lgsfoundation.org
SUMMARY:Dad to Dad – November Support Group Meeting
DESCRIPTION:Join us Tuesday\, November 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-november-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T200000
DTEND;TZID=America/New_York:20251120T210000
DTSTAMP:20260410T105240
CREATED:20251117T202949Z
LAST-MODIFIED:20251117T202949Z
UID:10000252-1763668800-1763672400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T200000
DTEND;TZID=America/New_York:20251124T210000
DTSTAMP:20260410T105240
CREATED:20250925T192337Z
LAST-MODIFIED:20250925T192450Z
UID:10000250-1764014400-1764018000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – November Support Group Meeting
DESCRIPTION:Join us Monday\, November 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-november-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251205
DTEND;VALUE=DATE:20251210
DTSTAMP:20260410T105240
CREATED:20250603T174915Z
LAST-MODIFIED:20250606T200233Z
UID:10000224-1764892800-1765324799@www.lgsfoundation.org
SUMMARY:Join the LGS Foundation at AES 2025 in Atlanta
DESCRIPTION:The LGS Foundation is honored to participate in the 2025 American Epilepsy Society (AES) Annual Meeting\, the premier gathering for clinicians\, researchers\, and professionals dedicated to advancing epilepsy care and science. \nThis year’s meeting is a vital opportunity to elevate awareness of Lennox-Gastaut Syndrome (LGS) within the broader epilepsy research community. Join us in Atlanta as we share the latest developments in LGS research\, resources\, and support—fostering collaboration and accelerating progress. \n📍 Visit the LGS Foundation at Booth N756 \nLearn More
URL:https://www.lgsfoundation.org/event/join-the-lgs-foundation-at-aes-2025-in-atlanta/
LOCATION:Georgia World Congress Center\, 285 Andrew Young International Blvd.\, N.W.\, Atlanta\, GA\, 30312\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/06/AES-2025-1.png
GEO:33.7608167;-84.4011791
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Georgia World Congress Center 285 Andrew Young International Blvd. N.W. Atlanta GA 30312 United States;X-APPLE-RADIUS=500;X-TITLE=285 Andrew Young International Blvd.\, N.W.:geo:-84.4011791,33.7608167
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T200000
DTEND;TZID=America/New_York:20251216T210000
DTSTAMP:20260410T105240
CREATED:20250925T180327Z
LAST-MODIFIED:20251124T200921Z
UID:10000242-1765915200-1765918800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – December Support Group Meeting
DESCRIPTION:Join us on Tuesday\, December 16th at 8 pm ET.\nTopic: 2025\, The Year That Was\nLet’s look back on the past year. How has 2025 treated you and your family? Personally? Professionally? Come join our group as we reflect on the highs and lows\, and bid farewell to 2025.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-december-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T200000
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260410T105240
CREATED:20250925T191541Z
LAST-MODIFIED:20250925T191541Z
UID:10000248-1766088000-1766091600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Diciembre
DESCRIPTION:Únase a nosotros el jueves 18 de diciembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-diciembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260106T190000
DTEND;TZID=America/New_York:20260106T203000
DTSTAMP:20260410T105240
CREATED:20250818T150839Z
LAST-MODIFIED:20250820T163655Z
UID:10000238-1767726000-1767731400@www.lgsfoundation.org
SUMMARY:New Family Orientation Meeting
DESCRIPTION:New Family Orientation Meeting\nDate: Tuesday\, January 6th\, 2026Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom) \nAre you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation\, this meeting is designed to welcome and support you. \n\nWhat to Expect\n\nLearn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)\nExplore the LGS Foundation website and resources.\nDiscover how to participate in the Learn from Every Patient Database to help advance science.\nFind out about family-focused programs\, including the 2026 International Family & Professional Conference.\nAccess helpful toolkits and resources created for families navigating the LGS journey.\nConnect with other caregivers in a safe\, supportive group chat.\n\nWhy Attend?\nThis orientation is a chance to learn\, ask questions\, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources\, connections\, and a sense of community. \n👉 RSVP today to reserve your spot!
URL:https://www.lgsfoundation.org/event/5070/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T200000
DTEND;TZID=America/New_York:20260113T210000
DTSTAMP:20260410T105240
CREATED:20260105T161434Z
LAST-MODIFIED:20260105T161733Z
UID:10000254-1768334400-1768338000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 13th at 8 pm ET.\nTopic: Setting Achievable Goals! It’s all about finding BALANCE! \n\nAs we look ahead to 2026\, it’s a great time to reflect and set intentions. What is one personal goal you hope to achieve in the coming year that will help you better balance caring for your loved one with caring for yourself? \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T200000
DTEND;TZID=America/New_York:20260115T210000
DTSTAMP:20260410T105240
CREATED:20260105T200458Z
LAST-MODIFIED:20260105T200458Z
UID:10000260-1768507200-1768510800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Únase a nosotros este mes para el Grupo de Esperanza de LGS\, un espacio seguro y acogedor para reunirnos virtualmente\, compartir nuestras historias y apoyarnos mutuamente. \nEste grupo mensual en español está facilitado por las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango\, quienes acompañan a las familias mientras navegamos juntas el camino del síndrome de Lennox-Gastaut (LGS). \nAquí encontrará conexión\, comprensión y ánimo—ya sea que esté comenzando su recorrido con LGS o que tenga muchos años de experiencia. Nadie debería caminar este camino solo. \nJuntos somos más fuertes. Hay esperanza para nuestros niños. \nEste grupo está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse a nuestra comunidad en línea y recibir la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T200000
DTEND;TZID=America/New_York:20260120T210000
DTSTAMP:20260410T105240
CREATED:20260105T170659Z
LAST-MODIFIED:20260105T171100Z
UID:10000257-1768939200-1768942800@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group
DESCRIPTION:Join us Tuesday\, January 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260410T105240
CREATED:20260105T211702Z
LAST-MODIFIED:20260105T211853Z
UID:10000263-1769457600-1769461200@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – January Support Group
DESCRIPTION:A new year doesn’t mean starting over—it means continuing forward\, together. \nJoin parents and caregivers of adults with Lennox-Gastaut Syndrome for a supportive space to connect\, share experiences\, and feel understood. Caring for an adult with LGS brings evolving challenges\, and this group offers community from those who truly get it. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are also welcome. \n🗓 Monday\, January 26th ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T200000
DTEND;TZID=America/New_York:20260210T210000
DTSTAMP:20260410T105240
CREATED:20260105T165051Z
LAST-MODIFIED:20260105T165051Z
UID:10000255-1770753600-1770757200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting
DESCRIPTION:Join us on Tuesday\, February 10th at 8 pm ET.\nTopic: How Do You Keep Track of EVERYTHING?\n\nSeizure Action Plan Awareness Week is every February. Join this month’s support group and share how you track the seizures\, behaviors\, sleep patterns\, medications\, and everything else. You may give & receive some great tips from your fellow caregivers. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T200000
DTEND;TZID=America/New_York:20260217T210000
DTSTAMP:20260410T105240
CREATED:20260105T173005Z
LAST-MODIFIED:20260105T173525Z
UID:10000258-1771358400-1771362000@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group Meeting
DESCRIPTION:Join us Tuesday\, February 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260219T200000
DTEND;TZID=America/New_York:20260219T210000
DTSTAMP:20260410T105240
CREATED:20260105T200917Z
LAST-MODIFIED:20260105T200917Z
UID:10000261-1771531200-1771534800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:El Grupo de Esperanza de LGS es un espacio de apoyo\, escucha y conexión para familias que viven con el síndrome de Lennox-Gastaut. \nCada mes\, las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango nos guían en conversaciones significativas donde compartimos experiencias\, desafíos y momentos de fortaleza—en comunidad y en español. \nEste es un lugar para sentirse acompañado\, comprendido y apoyado. No importa dónde se encuentre en su camino con LGS\, aquí es bienvenido. \nNadie debería caminar este camino solo. Juntos somos más fuertes. \nDisponible para familias con LGS que son miembros de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Únase a nuestra comunidad en línea para recibir la información de acceso:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T200000
DTEND;TZID=America/New_York:20260223T210000
DTSTAMP:20260410T105240
CREATED:20260105T212156Z
LAST-MODIFIED:20260105T212328Z
UID:10000264-1771876800-1771880400@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – February Support Group
DESCRIPTION:Connection matters—especially on the hardest days. \nThis monthly support group brings together caregivers of adults with Lennox-Gastaut Syndrome for open conversation\, shared insight\, and encouragement. As caregiving needs change over time\, this space offers reassurance that you are not alone. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents preparing for adulthood are welcome. \n🗓 Monday\, February 23rd ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T200000
DTEND;TZID=America/New_York:20260310T210000
DTSTAMP:20260410T105240
CREATED:20260105T165508Z
LAST-MODIFIED:20260127T000951Z
UID:10000256-1773172800-1773176400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us on Tuesday\, March 10th at 8 pm ET.\nTopic: Community Connections Make Us Stronger \n\n\nCaregiving for someone with LGS can feel isolating\, but we’re not meant to do this alone.\nJoin us for this support group conversation as we explore simple\, meaningful strategies to stay connected with our caregiver community\, strengthen relationships\, and support one another along the way. Learn more about our upcoming Family & Professional Conference and how you can join us in July. Together\, we’re stronger.\n\n\n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260317T200000
DTEND;TZID=America/New_York:20260317T210000
DTSTAMP:20260410T105240
CREATED:20260105T180342Z
LAST-MODIFIED:20260105T180724Z
UID:10000259-1773777600-1773781200@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeing/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T200000
DTEND;TZID=America/New_York:20260319T210000
DTSTAMP:20260410T105240
CREATED:20260105T201615Z
LAST-MODIFIED:20260105T201615Z
UID:10000262-1773950400-1773954000@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Acompáñenos en marzo para el Grupo de Esperanza de LGS\, un encuentro mensual en español creado para apoyar\, animar y conectar a familias afectadas por el síndrome de Lennox-Gastaut. \nFacilitado por Bertha Guillen\, Michele Torres\, y Kelly Arrango\, este grupo ofrece un espacio compasivo donde podemos compartir libremente\, escuchar sin juicios y encontrar fortaleza unos en otros. \nYa sea que esté buscando apoyo\, conexión o simplemente un lugar donde sentirse comprendido\, este espacio es para usted. \nHay esperanza. Hay comunidad. Nadie camina solo. \nEste grupo mensual está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse y obtener la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260323T200000
DTEND;TZID=America/New_York:20260323T210000
DTSTAMP:20260410T105240
CREATED:20260105T212532Z
LAST-MODIFIED:20260105T212532Z
UID:10000265-1774296000-1774299600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – March Support Group
DESCRIPTION:Caring for an adult with LGS is complex—but support makes it lighter. \nJoin fellow parents and caregivers for a monthly\, judgment-free space to share\, listen\, and connect. Whether you are navigating long-term caregiving or preparing for the transition to adulthood\, you are welcome here. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are encouraged to attend. \n🗓 Monday\, March 23rd⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-march-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260410T105240
CREATED:20251217T221122Z
LAST-MODIFIED:20260123T203528Z
UID:10000253-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:2026 Walk for LGS Research
DESCRIPTION:Together for a Breakthrough\nApril 2026 is Walk Month for Lennox-Gastaut Syndrome\, a month-long movement that expands the Walk beyond just one day—giving families\, advocates\, and supporters everywhere more ways to walk\, wheel\, and make an impact. \nWalk your way. In your community. Together for a breakthrough. \n\n\nGet Involved\nWalk for LGS Research takes place throughout April—on your own\, with others\, in your community\, or virtually—bringing people together to raise awareness\, build connection\, and fuel critical LGS research. \nWhether you participate in an existing walk\, join virtually\, or walk on your own\, every step moves the mission forward. \n➕ Add Walk for LGS Research to your calendar\nStay connected to Walk Month moments\, stories\, and ways to participate throughout April. \n📍 Host a local Walk for LGS Research event \n\n\nHost a Walk in Your Community\nHosting a Walk for LGS Research event is a powerful way to bring families and supporters together\, increase visibility for LGS\, and help accelerate research. \nNo large event required.No set distance.Just your community—showing up together. \nApply to host a local Walk  \n\nWhy We Walk\nEvery step taken during Walk for LGS Research helps support the LGS Foundation’s Finding the Cures\, Together research program\, advancing collaborative research that could lead to real breakthroughs for the LGS community. \nJoin the global movement this April.
URL:https://www.lgsfoundation.org/event/2026-walk-for-lgs-research/
LOCATION:NH
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260410T105240
CREATED:20260318T170315Z
LAST-MODIFIED:20260318T170315Z
UID:10000275-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:Neurelis Walk for LGS Research - Private Event
DESCRIPTION:About This Walk\nThis April\, Nuerelis is joining the global movement for Lennox-Gastaut Syndrome (LGS) by hosting a private\, month-long Walk for LGS Research initiative. \nAs an industry partner\, their team is coming together throughout April to raise awareness\, support families\, and help drive critical research forward. \nWhile this is a private\, internal event\, the impact reaches far beyond their organization — contributing to a collective effort happening across communities worldwide. \n\nSupport Their Impact\nEven though this is a private event\, you can still be part of the movement. \nSupport the LGS Foundation’s Walk for LGS Research Campaign
URL:https://www.lgsfoundation.org/event/neurelis-walk-for-lgs-research-private-event/
LOCATION:NH
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260411T090000
DTEND;TZID=America/New_York:20260411T110000
DTSTAMP:20260410T105240
CREATED:20260312T144316Z
LAST-MODIFIED:20260327T143347Z
UID:10000273-1775898000-1775905200@www.lgsfoundation.org
SUMMARY:Color Run & Walk for LGS Research – Winter Garden\, Florida
DESCRIPTION:About This Walk\nJoin us in Winter Garden for a Color Run & Walk for LGS Research — a joyful community event filled with color\, connection\, and purpose. \nThis event began four years ago to honor Jacob\, an incredible LGS warrior\, and it continues to grow each year as more families\, friends\, and local businesses come together to support the Lennox-Gastaut Syndrome community. \nParticipants can walk\, run\, or complete laps at their own pace while enjoying a colorful experience that celebrates strength\, awareness\, and hope. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us  \nSupport Our Fundraising Efforts  \n\nTicket & Guest Information\nAdults (18+): $10Children (17 & under): FreePeople living with LGS: Free \nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\nRun/Walk Route: Participants may complete as many laps as they wish during the event. \nActivities & Community Fun:• Color Run experience• Free food for attendees• Local vendors and community supporters• A welcoming space to connect with other LGS families and supporters
URL:https://www.lgsfoundation.org/event/color-run-walk-for-lgs-research-winter-garden-florida/
LOCATION:Waterleigh Sports Field\, 10697 Atwater Bay Drive\, Winter Garden\, FL\, 34787\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Winter-Garden-Florida-WalkForLGS.png
ORGANIZER;CN="Kristyn Baker":MAILTO:orestesdawn@gmail.com
GEO:28.4122718;-81.6438371
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Waterleigh Sports Field 10697 Atwater Bay Drive Winter Garden FL 34787 United States;X-APPLE-RADIUS=500;X-TITLE=10697 Atwater Bay Drive:geo:-81.6438371,28.4122718
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260411T093000
DTEND;TZID=America/New_York:20260411T110000
DTSTAMP:20260410T105240
CREATED:20260330T152112Z
LAST-MODIFIED:20260402T141200Z
UID:10000288-1775899800-1775905200@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Hudson\, Florida
DESCRIPTION:About This Walk\nJoin family and friends for a Walk for LGS Research with Deven in Hudson\, Florida. This smaller\, community-centered gathering is an opportunity to come together\, raise awareness\, and support those living with Lennox-Gastaut Syndrome. \nWhether you walk the full route or simply spend time connecting\, this event is about showing up\, sharing support\, and standing together. \n💜 Together\, we step forward for a breakthrough. \nRegister to Attend \nSupport Our Fundraising Efforts \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan food and activities. \n\nWhat to Expect\nWalk Distance: Approximately 1 mile \nCommunity Gathering:• A relaxed\, supportive walk with family and friends• Light snacks provided • Time to connect and raise awareness for LGS• A meaningful way to support Deven and others living with LGS \n\nAccessibility & Comfort\n• Smooth\, paved walk paths (wheelchair & stroller accessible)• Onsite accessible restrooms• Covered shelter available in case of inclement weather• Ample parking available• Dogs welcome on leash \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-hudson-florida/
LOCATION:Veterans Memorial Park\, 14330 Hicks Rd\, Hudson\, FL\, 34669\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Hudson-Florida-WalkForLGS.png
ORGANIZER;CN="Lesa McLeod":MAILTO:steelersrock1224@gmail.com
GEO:28.366136;-82.648801
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Veterans Memorial Park 14330 Hicks Rd Hudson FL 34669 United States;X-APPLE-RADIUS=500;X-TITLE=14330 Hicks Rd:geo:-82.648801,28.366136
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T200000
DTEND;TZID=America/New_York:20260414T210000
DTSTAMP:20260410T105240
CREATED:20260325T142737Z
LAST-MODIFIED:20260325T143010Z
UID:10000276-1776196800-1776200400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s Talk About Siblings 💙As caregivers\, so much of our time and energy goes into supporting our child with Lennox-Gastaut Syndrome\, while many of us are also raising (or have raised) other children who need us just as deeply. Along the way\, it’s natural to feel a mix of emotions\, including guilt and concerns about their future. \nThis month\, let’s come together to recognize\, support\, and celebrate the siblings who share this journey with us. \nThis group offers a welcoming space to share\, listen\, and connect with other caregivers who understand. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR