BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//LGS Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.lgsfoundation.org
X-WR-CALDESC:Events for LGS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250721
DTEND;VALUE=DATE:20250723
DTSTAMP:20260410T091237
CREATED:20250103T193347Z
LAST-MODIFIED:20250521T165048Z
UID:10000204-1753056000-1753228799@www.lgsfoundation.org
SUMMARY:2025 LGS Research Meeting of the Minds
DESCRIPTION:Save the Date | July 21 – 22\, 2025\nAdvancing Evidence-Based LGS Care Across the Lifespan\nThis bi-annual Meeting of the Minds research conference brings together hundreds of researchers\, healthcare providers\, clinical trialists\, scientists\, advocates\, caregivers\, and industry partners to push the conversation about research beyond only treating the symptom of seizures\, but also finding treatments that target the whole syndrome. \nLearnings from the Meeting of the Minds help guide the LGS Foundation’s research strategy and efforts. \nLearn More
URL:https://www.lgsfoundation.org/event/2025-lgs-research-meeting-of-the-minds/
LOCATION:The Logan Hotel\, Philadelphia\, PA\, 19103\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/11/2025-Meeting-of-the-Minds-updated-1225-1.png
ORGANIZER;CN="LGS Foundation (Research Dep.)":MAILTO:Research@LGSFoundation.org
GEO:39.9569323;-75.1702705
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250728T200000
DTEND;TZID=America/New_York:20250728T210000
DTSTAMP:20260410T091237
CREATED:20250625T203421Z
LAST-MODIFIED:20250625T203421Z
UID:10000234-1753732800-1753736400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T200000
DTEND;TZID=America/New_York:20250812T210000
DTSTAMP:20260410T091237
CREATED:20250625T180416Z
LAST-MODIFIED:20250625T180416Z
UID:10000226-1755028800-1755032400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting
DESCRIPTION:Join us on Tuesday\, August 12th at 8 pm ET.\nTopic: What’s The Title of Your LGS Story? \nIf you could write a book about your family’s LGS journey\, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning\, or maybe you’ve been doing this for a long time. We want to hear it all!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T200000
DTEND;TZID=America/New_York:20250819T210000
DTSTAMP:20260410T091237
CREATED:20250625T183402Z
LAST-MODIFIED:20250625T183402Z
UID:10000229-1755633600-1755637200@www.lgsfoundation.org
SUMMARY:Dad to Dad – August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T200000
DTEND;TZID=America/New_York:20250821T210000
DTSTAMP:20260410T091237
CREATED:20250625T200308Z
LAST-MODIFIED:20250625T200308Z
UID:10000232-1755806400-1755810000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
DESCRIPTION:Únase a nosotros el jueves 21 de agosto a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-agosto/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250825T200000
DTEND;TZID=America/New_York:20250825T210000
DTSTAMP:20260410T091237
CREATED:20250625T203806Z
LAST-MODIFIED:20250625T203806Z
UID:10000235-1756152000-1756155600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – August Support Group Meeting
DESCRIPTION:Join us Monday\, August 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T183000
DTEND;TZID=America/New_York:20250828T193000
DTSTAMP:20260410T091237
CREATED:20250820T132217Z
LAST-MODIFIED:20250820T132217Z
UID:10000239-1756405800-1756409400@www.lgsfoundation.org
SUMMARY:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
DESCRIPTION:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care\nDate & Time:📅 Thursday\, August 28\, 2025⏰ 6:30 PM ET \nDescription:Join us for a free\, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care. \nOur expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS. \nThis session is: \n\n🎓 Non-accredited\n💜 Caregiver-focused\n💻 Virtual and free to attend\n\nRegistration:👉 Click here to register \nPartners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.
URL:https://www.lgsfoundation.org/event/setting-up-for-a-successful-future-in-lennox-gastaut-syndrome-preparing-for-adult-care/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T200000
DTEND;TZID=America/New_York:20250909T210000
DTSTAMP:20260410T091237
CREATED:20250625T181043Z
LAST-MODIFIED:20250625T181043Z
UID:10000227-1757448000-1757451600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – September Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 9th at 8 pm ET.\nTopic: Back To School So Soon?\n\nThe school year has begun. Is this a good thing? Is your loved one attending a new school? Perhaps they’re no longer in school and you find yourself wistfully remembering the “good ol’ days” of IEPs and school activities. Or maybe your loved one (or you) feels anxious and nervous about the coming year. \nPlease join us as we wind down from the summer and begin to rev up to a new routine and all of the emotions that come with that. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T200000
DTEND;TZID=America/New_York:20250916T210000
DTSTAMP:20260410T091237
CREATED:20250625T183745Z
LAST-MODIFIED:20250625T183745Z
UID:10000230-1758052800-1758056400@www.lgsfoundation.org
SUMMARY:Dad to Dad – September Support Group Meeting
DESCRIPTION:Join us Tuesday\, September 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T200000
DTEND;TZID=America/New_York:20250918T210000
DTSTAMP:20260410T091237
CREATED:20250625T201347Z
LAST-MODIFIED:20250625T201347Z
UID:10000233-1758225600-1758229200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Septiembre
DESCRIPTION:Únase a nosotros el jueves 18 de septiembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-septiembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250922T200000
DTEND;TZID=America/New_York:20250922T210000
DTSTAMP:20260410T091237
CREATED:20250625T204031Z
LAST-MODIFIED:20250625T204140Z
UID:10000236-1758571200-1758574800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – September Support Group Meeting
DESCRIPTION:Join us Monday\, September 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251007T190000
DTEND;TZID=America/New_York:20251007T203000
DTSTAMP:20260410T091237
CREATED:20250818T150428Z
LAST-MODIFIED:20250820T163613Z
UID:10000237-1759863600-1759869000@www.lgsfoundation.org
SUMMARY:New Family Orientation Meeting
DESCRIPTION:New Family Orientation Meeting\nDate: Tuesday\, October 7th\, 2025Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom) \nAre you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation\, this meeting is designed to welcome and support you. \n\nWhat to Expect\n\nLearn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)\nExplore the LGS Foundation website and resources.\nDiscover how to participate in the Learn from Every Patient Database to help advance science.\nFind out about family-focused programs\, including the 2026 International Family & Professional Conference.\nAccess helpful toolkits and resources created for families navigating the LGS journey.\nConnect with other caregivers in a safe\, supportive group chat.\n\nWhy Attend?\nThis orientation is a chance to learn\, ask questions\, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources\, connections\, and a sense of community. \n👉 RSVP today to reserve your spot!
URL:https://www.lgsfoundation.org/event/new-family-orientation-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251014T200000
DTEND;TZID=America/New_York:20251014T210000
DTSTAMP:20260410T091237
CREATED:20250925T175052Z
LAST-MODIFIED:20250925T175119Z
UID:10000240-1760472000-1760475600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 14th at 8 pm ET.\nTopic: I’m not okay – So many emotions!  \n\nLGS caregivers have been expressing a lot of feelings lately\, like pain\, anger\, hopelessness\, and depression. It’s an ongoing struggle to care for our loved ones while attempting to care for ourselves\, and sometimes we feel like we’re failing at both. \nPlease join us this month as we focus on how to bring the healing into the hurt places. \nIt can’t be repeated enough\, “Nobody should have to do this alone!” \nLGS Caregivers\, you are not alone!❤️ \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251016T200000
DTEND;TZID=America/New_York:20251016T210000
DTSTAMP:20260410T091237
CREATED:20250925T183847Z
LAST-MODIFIED:20250925T183847Z
UID:10000246-1760644800-1760648400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Octubre
DESCRIPTION:Únase a nosotros el jueves 16 de octubre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation \n 
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-octubre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T200000
DTEND;TZID=America/New_York:20251021T210000
DTSTAMP:20260410T091237
CREATED:20250925T181051Z
LAST-MODIFIED:20250925T181241Z
UID:10000243-1761076800-1761080400@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join us Tuesday\, October 21st at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260410T091237
CREATED:20250925T192005Z
LAST-MODIFIED:20250925T192118Z
UID:10000249-1761595200-1761598800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting
DESCRIPTION:Join us Monday\, October 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T091237
CREATED:20250925T175755Z
LAST-MODIFIED:20250925T180030Z
UID:10000241-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – November Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 11th at 8 pm ET.\nTopic: The Perfect Day\n\nLet’s drift into fantasy land and design the perfect day. Perhaps it doesn’t exist in the ‘real’ world\, and it’s ultra-rare when your child has Lennox-Gastaut Syndrome\, but if you could design the perfect day\, what would that look like? \nJoin the November Support Group as we fix the broken things\, get a good night’s sleep\, hear our nonverbal child say their first word\, and have a seizure-free day\, among other things. The sky’s the limit! \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-november-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T091237
CREATED:20250925T190910Z
LAST-MODIFIED:20250925T191529Z
UID:10000247-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T200000
DTEND;TZID=America/New_York:20251118T210000
DTSTAMP:20260410T091237
CREATED:20250925T181448Z
LAST-MODIFIED:20250925T181555Z
UID:10000244-1763496000-1763499600@www.lgsfoundation.org
SUMMARY:Dad to Dad – November Support Group Meeting
DESCRIPTION:Join us Tuesday\, November 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-november-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T200000
DTEND;TZID=America/New_York:20251120T210000
DTSTAMP:20260410T091237
CREATED:20251117T202949Z
LAST-MODIFIED:20251117T202949Z
UID:10000252-1763668800-1763672400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T200000
DTEND;TZID=America/New_York:20251124T210000
DTSTAMP:20260410T091237
CREATED:20250925T192337Z
LAST-MODIFIED:20250925T192450Z
UID:10000250-1764014400-1764018000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – November Support Group Meeting
DESCRIPTION:Join us Monday\, November 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-november-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251205
DTEND;VALUE=DATE:20251210
DTSTAMP:20260410T091237
CREATED:20250603T174915Z
LAST-MODIFIED:20250606T200233Z
UID:10000224-1764892800-1765324799@www.lgsfoundation.org
SUMMARY:Join the LGS Foundation at AES 2025 in Atlanta
DESCRIPTION:The LGS Foundation is honored to participate in the 2025 American Epilepsy Society (AES) Annual Meeting\, the premier gathering for clinicians\, researchers\, and professionals dedicated to advancing epilepsy care and science. \nThis year’s meeting is a vital opportunity to elevate awareness of Lennox-Gastaut Syndrome (LGS) within the broader epilepsy research community. Join us in Atlanta as we share the latest developments in LGS research\, resources\, and support—fostering collaboration and accelerating progress. \n📍 Visit the LGS Foundation at Booth N756 \nLearn More
URL:https://www.lgsfoundation.org/event/join-the-lgs-foundation-at-aes-2025-in-atlanta/
LOCATION:Georgia World Congress Center\, 285 Andrew Young International Blvd.\, N.W.\, Atlanta\, GA\, 30312\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/06/AES-2025-1.png
GEO:33.7608167;-84.4011791
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Georgia World Congress Center 285 Andrew Young International Blvd. N.W. Atlanta GA 30312 United States;X-APPLE-RADIUS=500;X-TITLE=285 Andrew Young International Blvd.\, N.W.:geo:-84.4011791,33.7608167
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T200000
DTEND;TZID=America/New_York:20251216T210000
DTSTAMP:20260410T091237
CREATED:20250925T180327Z
LAST-MODIFIED:20251124T200921Z
UID:10000242-1765915200-1765918800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – December Support Group Meeting
DESCRIPTION:Join us on Tuesday\, December 16th at 8 pm ET.\nTopic: 2025\, The Year That Was\nLet’s look back on the past year. How has 2025 treated you and your family? Personally? Professionally? Come join our group as we reflect on the highs and lows\, and bid farewell to 2025.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-december-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T200000
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260410T091237
CREATED:20250925T191541Z
LAST-MODIFIED:20250925T191541Z
UID:10000248-1766088000-1766091600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Diciembre
DESCRIPTION:Únase a nosotros el jueves 18 de diciembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-diciembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260106T190000
DTEND;TZID=America/New_York:20260106T203000
DTSTAMP:20260410T091237
CREATED:20250818T150839Z
LAST-MODIFIED:20250820T163655Z
UID:10000238-1767726000-1767731400@www.lgsfoundation.org
SUMMARY:New Family Orientation Meeting
DESCRIPTION:New Family Orientation Meeting\nDate: Tuesday\, January 6th\, 2026Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom) \nAre you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation\, this meeting is designed to welcome and support you. \n\nWhat to Expect\n\nLearn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)\nExplore the LGS Foundation website and resources.\nDiscover how to participate in the Learn from Every Patient Database to help advance science.\nFind out about family-focused programs\, including the 2026 International Family & Professional Conference.\nAccess helpful toolkits and resources created for families navigating the LGS journey.\nConnect with other caregivers in a safe\, supportive group chat.\n\nWhy Attend?\nThis orientation is a chance to learn\, ask questions\, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources\, connections\, and a sense of community. \n👉 RSVP today to reserve your spot!
URL:https://www.lgsfoundation.org/event/5070/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T200000
DTEND;TZID=America/New_York:20260113T210000
DTSTAMP:20260410T091237
CREATED:20260105T161434Z
LAST-MODIFIED:20260105T161733Z
UID:10000254-1768334400-1768338000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 13th at 8 pm ET.\nTopic: Setting Achievable Goals! It’s all about finding BALANCE! \n\nAs we look ahead to 2026\, it’s a great time to reflect and set intentions. What is one personal goal you hope to achieve in the coming year that will help you better balance caring for your loved one with caring for yourself? \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T200000
DTEND;TZID=America/New_York:20260115T210000
DTSTAMP:20260410T091237
CREATED:20260105T200458Z
LAST-MODIFIED:20260105T200458Z
UID:10000260-1768507200-1768510800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Únase a nosotros este mes para el Grupo de Esperanza de LGS\, un espacio seguro y acogedor para reunirnos virtualmente\, compartir nuestras historias y apoyarnos mutuamente. \nEste grupo mensual en español está facilitado por las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango\, quienes acompañan a las familias mientras navegamos juntas el camino del síndrome de Lennox-Gastaut (LGS). \nAquí encontrará conexión\, comprensión y ánimo—ya sea que esté comenzando su recorrido con LGS o que tenga muchos años de experiencia. Nadie debería caminar este camino solo. \nJuntos somos más fuertes. Hay esperanza para nuestros niños. \nEste grupo está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse a nuestra comunidad en línea y recibir la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T200000
DTEND;TZID=America/New_York:20260120T210000
DTSTAMP:20260410T091237
CREATED:20260105T170659Z
LAST-MODIFIED:20260105T171100Z
UID:10000257-1768939200-1768942800@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group
DESCRIPTION:Join us Tuesday\, January 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260410T091237
CREATED:20260105T211702Z
LAST-MODIFIED:20260105T211853Z
UID:10000263-1769457600-1769461200@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – January Support Group
DESCRIPTION:A new year doesn’t mean starting over—it means continuing forward\, together. \nJoin parents and caregivers of adults with Lennox-Gastaut Syndrome for a supportive space to connect\, share experiences\, and feel understood. Caring for an adult with LGS brings evolving challenges\, and this group offers community from those who truly get it. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are also welcome. \n🗓 Monday\, January 26th ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T200000
DTEND;TZID=America/New_York:20260210T210000
DTSTAMP:20260410T091237
CREATED:20260105T165051Z
LAST-MODIFIED:20260105T165051Z
UID:10000255-1770753600-1770757200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting
DESCRIPTION:Join us on Tuesday\, February 10th at 8 pm ET.\nTopic: How Do You Keep Track of EVERYTHING?\n\nSeizure Action Plan Awareness Week is every February. Join this month’s support group and share how you track the seizures\, behaviors\, sleep patterns\, medications\, and everything else. You may give & receive some great tips from your fellow caregivers. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR