Standing Together. Stronger Together. - November Support Group Meeting
2023-11-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, November 14th at 8 pm ET.
Topic: Finding gratitude in the LGS journey
With Thanksgiving approaching, it’s that time of year where we gather with our loved ones to give thanks. Please join our November support group where we’ll focus on the challenges of finding gratitude in the LGS journey. Has it been possible for you? Our caregiver community is here to listen, share, and support one another because together we ARE stronger!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - November Support Group Meeting
2023-11-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, November 15th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - November Support Group Meeting
2023-11-27 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, November 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Foundation @ AES 2023
2023-12-01 - 2023-12-05 | Orange County Convention Center, 9800 International Dr, Orlando, FL, 32819, United States
Join us at AES in Orlando, Florida
Are you attending the American Epilepsy Society Annual Meeting in Orlando, Florida in December?
Visit us in the Epilepsy Resource Area of the Exhibit Hall. Here, our team will be available to answer questions and provide support.
More information coming soon.

Standing Together. Stronger Together - December Support Group Meeting
2023-12-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, December 12th at 8 pm ET.
Topic: The Power of Finding Your Tribe
What do Christmas, Hanukkah and Kwanzaa have in common other than the fact that they all occur in December? COMMUNITY!
This month we focus on the LGS community and the power of finding your tribe. So whether you light a candle on the Menorah or the Kinara, or whether you jingle all the way, you’re always welcome here. The LGS caregiver community will be your second home where you can share freely and confidentially with others who know you.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - January Support Group Meeting
2024-01-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, January 16th at 8 pm ET.
Topic: The LGS Resolution(s)
January is when we set our goals and plan for the year ahead. So what are the goals when you’re caring for someone with LGS?
Is it time to order new equipment? Try a new medication? Focus on your own needs? Focus on your other children’s needs? Begin future-planning? Is there something you’ve been putting off because you don’t know where to begin?
Bring your goals to our January Support group and let’s help one another get organized for another busy year because we’re Stronger Together!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - January Support Group Meeting
2024-01-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, January 17th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - January Support Group Meeting
2024-01-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, January 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - February Support Group
2024-02-13 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, February 13th at 8 pm ET.
Topic: February is the month of LOVE!
When your loved one has LGS it can often feel like you’re having to share his/her shortcomings, flaws, failures, deficits, etc. So isn’t it a relief when someone asks you “What do you LOVE about this person?”
Come to our February support group and share all the wonderful stuff. Boast about their beautiful smile, hilarious quirks, new skill, and that thing he/she did that had you laughing so hard.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - February Support Group
2024-02-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, February 21st at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - February Support Group
2024-02-26 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, February 26th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - March Support Group Meeting
2024-03-12 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, March 12th @ 8 pm ET
Topic: The Power of Your LGS Story
We all have a story to tell and it’s compelling and heart-wrenching. As we raise our voices as one community to support, empower, educate, and advocate for our loved ones with LGS and their families, come join our March support group and share your LGS story.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - March Support Group Meeting
2024-03-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, March 20th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - March Support Group Meeting
2024-03-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, March 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - April Support Group Meeting
2024-04-09 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, April 9th at 8 pm ET.
Topic: The “Business” of Caring for Someone with LGS.
From accessing services and securing Medicaid waivers to battling with insurance over denials, caring for someone with LGS can be a full-time job when you may already have a full-time job.
In the April support group, we’ll share tips on how we’re making it work, offer helpful resources to one another, or just vent!
Come join your fellow caregivers as we support, educate, and empower one another because nobody can do this alone.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - April Support Group Meeting
2024-04-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, April 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Savannah Walks a Mile for LGS Research
2024-04-20 08:00 - 09:30 (America/Los_Angeles) | Vista Grande Elementary School, 5606 Antigua Blvd, San Diego, CA, 92124, United States
Join Savannah and friends
on Saturday, April, 20th at 8 am PT.
Come walk a mile with Savannah, have some fun, eat some donuts, and raise funds for a great cause!
See Savannah’s Walk Page
RSVP NOW

Walk 'n' Roll for LGS Research
2024-04-20 10:00 - 12:00 (America/Denver) | Fountain Creek Regional Park, 211 Duckwood Road, Fountain, CO, 80817, United States
Come walk ‘n’ roll with our LGS warriors as we help raise awareness!
Walk, run, or roll around the park! This event is a great way for families to meet other LGS families! There will be food, face painting, music, games, and more!

Florida - Walk for LGS Research
2024-04-20 10:00 - 14:00 (America/New_York) | All People’s Community Park & Life Center, 6105 E. Sligh Ave., Tampa, FL, 33617, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
Saturday, April 20, 2024 | 10:00am ET | Tampa, FL
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Splash Pad
Face Painting
Door Prizes
Family Picnic
Character Visits
Games
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

JOIN US IN Florida

North Carolina - Walk for LGS Research
2024-04-20 10:30 - 14:00 (America/New_York) | Village Park, 700 W C St, Kannapolis, NC, 28081, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
April 20, 2024 | 10:30am ET | Kannapolis, NC
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Train Rides
Carousel
Face Painting
Door Prizes
Family Picnic
Character Visits
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

Join Us in North Carolina

Caregiver of Adults with LGS - April Support Group Meeting
2024-04-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, April 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - May Support Group Meeting
2024-05-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, May 14th @ 8 pm ET
Topic: The Superhero Caregiver
How many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember, you are not alone and we are Stronger Together!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - May Support Group Meeting
2024-05-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, May 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – May Support Group Meeting
2024-05-27 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, May 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – June Support Group Meeting
2024-06-11 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, June 11th at 8 pm ET.
Topic: Laughter
Can you laugh when every day is filled with the devastation of LGS? Is it okay to laugh?
They say laughter is the best medicine so where can you find it amidst all the chaos? What makes you laugh even when you’re crying on the inside?
Join us this month as we attempt to seek the lighter moments that give us the strength to keep going.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – June Support Group Meeting
2024-06-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, June 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Add to calendar

2024 Annual Swing "FORE" the Cures
2024-06-23 12:30 - 19:00 (America/New_York) | Golf Club of Dublin, 5805 Eiterman Rd, Dublin, OH, 43016, United States
Join us in Dublin, Ohio on Sunday, June 23, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for Lennox-Gastaut Syndrome (LGS).
LGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​
You can help us by participating in or donating to Swing “FORE” the Cures!
REGISTER NOW!

Caregiver of Adults with LGS – June Support Group Meeting
2024-06-24 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, June 24th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

9th International LGS Family & Professional Conference
2024-07-12 09:00 - 2024-07-14 17:00 (America/New_York) | Sheraton Grand at Wild Horse Pass, 5594 W. Wild Horse Pass, Phoenix, AZ, 85226, United States
9th International Family & Professional Conference
July 12-14, 2024
Sheraton Grand at Wild Horse Pass
5594 W. Wild Horse Pass Blvd.
Phoenix, AZ 85226
REGISTER TO ATTEND NOW!

Standing Together. Stronger Together. – July Support Group Meeting
2024-07-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, July 16th @ 8 pm ET
Topic: Conference Recap!
Thank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways, answer your questions, and check in to see how everything is going with YOU!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
