LGS Foundation

Walk 'n' Roll for LGS Research
2024-04-20 10:00 - 12:00 (America/Denver) | Fountain Creek Regional Park, 211 Duckwood Road, Fountain, CO, 80817, United States
Come walk ‘n’ roll with our LGS warriors as we help raise awareness!
Walk, run, or roll around the park! This event is a great way for families to meet other LGS families! There will be food, face painting, music, games, and more!

Florida - Walk for LGS Research
2024-04-20 10:00 - 14:00 (America/New_York) | All People’s Community Park & Life Center, 6105 E. Sligh Ave., Tampa, FL, 33617, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
Saturday, April 20, 2024 | 10:00am ET | Tampa, FL
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Splash Pad
Face Painting
Door Prizes
Family Picnic
Character Visits
Games
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

JOIN US IN Florida

North Carolina - Walk for LGS Research
2024-04-20 10:30 - 14:00 (America/New_York) | Village Park, 700 W C St, Kannapolis, NC, 28081, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
April 20, 2024 | 10:30am ET | Kannapolis, NC
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Train Rides
Carousel
Face Painting
Door Prizes
Family Picnic
Character Visits
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

Join Us in North Carolina

Caregiver of Adults with LGS - April Support Group Meeting
2024-04-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, April 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - May Support Group Meeting
2024-05-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, May 14th @ 8 pm ET
Topic: The Superhero Caregiver
How many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember, you are not alone and we are Stronger Together!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - May Support Group Meeting
2024-05-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, May 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – May Support Group Meeting
2024-05-27 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, May 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – June Support Group Meeting
2024-06-11 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, June 11th at 8 pm ET.
Topic: Laughter
Can you laugh when every day is filled with the devastation of LGS? Is it okay to laugh?
They say laughter is the best medicine so where can you find it amidst all the chaos? What makes you laugh even when you’re crying on the inside?
Join us this month as we attempt to seek the lighter moments that give us the strength to keep going.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – June Support Group Meeting
2024-06-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, June 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

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2024 Annual Swing "FORE" the Cures
2024-06-23 12:30 - 19:00 (America/New_York) | Golf Club of Dublin, 5805 Eiterman Rd, Dublin, OH, 43016, United States
Join us in Dublin, Ohio on Sunday, June 23, 2024 for an afternoon of fun at our 3rd Annual Swing “FORE” the Cures for Lennox-Gastaut Syndrome (LGS).
LGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​
You can help us by participating in or donating to Swing “FORE” the Cures!
REGISTER NOW!

Caregiver of Adults with LGS – June Support Group Meeting
2024-06-24 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, June 24th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

9th International LGS Family & Professional Conference
2024-07-12 09:00 - 2024-07-14 17:00 (America/New_York) | Sheraton Grand at Wild Horse Pass, 5594 W. Wild Horse Pass, Phoenix, AZ, 85226, United States
9th International Family & Professional Conference
July 12-14, 2024
Sheraton Grand at Wild Horse Pass
5594 W. Wild Horse Pass Blvd.
Phoenix, AZ 85226
REGISTER TO ATTEND NOW!

Standing Together. Stronger Together. – July Support Group Meeting
2024-07-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, July 16th @ 8 pm ET
Topic: Conference Recap!
Thank you for waiting an extra week for the support group so we could share some feedback on the conference while it was still fresh in our minds. Join us as we highlight the important takeaways, answer your questions, and check in to see how everything is going with YOU!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – July Support Group Meeting
2024-07-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, July 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – July Support Group Meeting
2024-07-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, July 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - August Support Group Meeting
2024-08-13 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 13th @ 8 pm ET
Topic: Self-Blame – It’s not your fault!
Does any of this sound familiar? You missed a silent seizure and found your daughter in a postictal heap on the floor; you slept through a nighttime tonic-clonic and your son fell out of bed; your son wasn’t wearing his helmet, fell onto the coffee table, and broke his nose. There are endless stories of accidents in our community and the first person responsible is always you, the caregiver. But listen to this one truth – It’s not your fault! You blame yourself and other family members may blame you, but you know who doesn’t blame you? Your caregiver brothers and sisters. Join us at our August meeting. Share your stories of self-blame and be absolved of your guilt.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - August Support Group Meeting
2024-08-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, August 21st @ 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregivers of Adults with LGS - August Support Group Meeting
2024-08-26 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, August 26th @ 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Sept. Support Group Meeting
2024-09-17 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, September 17th at 8 pm ET.
Topic: Back to Support Groups. Back to school. Back to routines. Back to YOU!
Was summer relaxing or stressful? Did you miss the routines? Did the heat bring more seizures and behaviors?
Join us as we check in with one another and get ready for fall.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Sept. Support Group Meeting
2024-09-18 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, September 18th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Sept. Support Group Meeting
2024-09-23 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, September 23rd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Oct. Support Group Meeting
2024-10-15 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, October 15th at 8 pm ET.
Topic: Friendship!
Whether you have a large tribe of good pals or just one special person in your life, everyone needs a confidante. When your child has LGS, you need that person who can see inside your heart and know the struggles and the joys of raising that wonderful person with LGS. Let’s talk about THAT person! He/She/They need to be acknowledged for helping us survive.
Let’s stop to celebrate the friends in our lives who provide moments of normalcy in a chaotic LGS world.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Oct. Support Group Meeting
2024-10-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, October 16th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Oct. Support Group Meeting
2024-10-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, October 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

International LGS Awareness Day
2024-11-01
Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!
On November 1st, International LGS Awareness Day, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS).
LGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent, often daily, debilitating seizures, cognitive impairment, developmental regression, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP).
There are currently no cures, but there is a hopeful path forward with increased awareness of the devastating disorder!

Together, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.
Click here to learn more about how YOU can get involved with our awareness efforts!

LGS Foundation Annual Awareness Dinner
2024-11-02 18:00 - 21:30 (America/Los_Angeles) | Harbor View Loft, 1880 Harbor Island Drive, San Diego, CA, 92101, United States
Tickets are now available for the biggest night of the year!
The 2024 LGS Foundation Annual Awareness Dinner will be held on Saturday, November 2nd at the Harbor View Loft in San Diego, California. The evening will feature a silent auction and cocktail reception, seated dinner, inspirational program, exciting live auction, live entertainment, and more.
This memorable night brings us together to celebrate while raising funds to change the future for those impacted by LGS.

Click Here to Register Now

Standing Together. Stronger Together. - Nov. Support Group Meeting
2024-11-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, November 12th at 8 pm ET.
Topic: The Holiday Season is Here!
This time of year can stir up a lot of feelings. Are you stressed out about having to deal with comments from family members who don’t get it? Are you struggling with ideas for gift-giving when your full-grown son/daughter with LGS still prefers toddler toys? Are you conflicted over how to support the siblings while just wanting to call the whole thing off and hide under your blankets? Or, is this a time of year that gives you great comfort and joy?
Join us as we talk it out, share, and support one another at this family-focused time of year.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - Nov. Support Group Meeting
2024-11-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, November 20th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza - Reunión del grupo de apoyo de noviembr
2024-11-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Thursday, November 21st at 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - Nov. Support Group Meeting
2024-11-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, November 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
