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X-WR-CALDESC:Events for LGS Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260717T170820
CREATED:20260325T172253Z
LAST-MODIFIED:20260325T172315Z
UID:10000287-1782158400-1782162000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260709
DTEND;VALUE=DATE:20260712
DTSTAMP:20260717T170820
CREATED:20250523T173020Z
LAST-MODIFIED:20260210T165015Z
UID:10000223-1783555200-1783814399@www.lgsfoundation.org
SUMMARY:10th International Family & Professional Conference
DESCRIPTION:Save the Date! | July 9–11\, 2026\n📍 Orlando\, Florida\nJoin us for the LGS Foundation’s 10th International Family & Professional Conference\, a powerful three-day event that brings together hundreds of families\, caregivers\, and epilepsy professionals from around the globe. \nHeld every two years\, this comprehensive conference explores the latest in Lennox-Gastaut Syndrome (LGS) research\, treatments\, services\, and strategies to improve quality of life. Whether you’re looking for expert talks\, practical resources\, or community connection\, this event is for you. \n✨ Don’t miss this special opportunity to connect\, learn\, and grow with the global LGS community. \nMore details and registration coming soon! \nLearn More
URL:https://www.lgsfoundation.org/event/10th-international-family-professional-conference/
LOCATION:Caribe Royale Orlando\, 8101 World Center Drive\, Orlando\, FL\, 32821\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.3612508;-81.4917908
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Caribe Royale Orlando 8101 World Center Drive Orlando FL 32821 United States;X-APPLE-RADIUS=500;X-TITLE=8101 World Center Drive:geo:-81.4917908,28.3612508
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260714T200000
DTEND;TZID=America/New_York:20260714T210000
DTSTAMP:20260717T170820
CREATED:20260706T170231Z
LAST-MODIFIED:20260706T170231Z
UID:10000292-1784059200-1784062800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – July Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s recap the LGS Conference \nThe LGS Foundation’s 10th International Family & Professional Conference just wrapped up. For those who were unable to attend\, please join us as we share some highlights. And\, for those who participated in the conference\, please join our group and offer your impressions of this beloved event. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260716T200000
DTEND;TZID=America/New_York:20260716T210000
DTSTAMP:20260717T170820
CREATED:20260706T180412Z
LAST-MODIFIED:20260706T180412Z
UID:10000295-1784232000-1784235600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Julio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nCada reunión ofrece la oportunidad de compartir experiencias\, hacer preguntas\, encontrar apoyo y conectar con otras familias que comprenden este camino. Juntos construimos una comunidad donde todos son escuchados y acompañados. \nYa sea que desee participar en la conversación o simplemente escuchar\, siempre será bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-julio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260721T200000
DTEND;TZID=America/New_York:20260721T210000
DTSTAMP:20260717T170820
CREATED:20260706T181010Z
LAST-MODIFIED:20260706T181010Z
UID:10000298-1784664000-1784667600@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260727T200000
DTEND;TZID=America/New_York:20260727T210000
DTSTAMP:20260717T170820
CREATED:20260706T181639Z
LAST-MODIFIED:20260706T181639Z
UID:10000301-1785182400-1785186000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T200000
DTEND;TZID=America/New_York:20260811T210000
DTSTAMP:20260717T170820
CREATED:20260706T171425Z
LAST-MODIFIED:20260706T171425Z
UID:10000293-1786478400-1786482000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Everything Happens For A Reason (Yikes!) \n“God only gives special challenges to special people.”You’re so strong. I could never do what you do.” Sound familiar? \nFor caregivers navigating the relentless realities of LGS\, well-meaning words can sometimes land like a punch to the gut. \nThe people who love us often reach for comfort and come up with a cliché instead\, and the gap between what they mean and what we hear can be enormous. \nJoin us for our next gathering as we unpack the phrases that make us cringe\, cry\, or want to flip a table. What are the words that stop you in your tracks? How do you respond\, or wish you could? \nBring your most triggering phrases\, your most gracious comebacks\, and your most honest reactions. \nThis is a safe space to say the things you can’t always say out loud. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260818T200000
DTEND;TZID=America/New_York:20260818T210000
DTSTAMP:20260717T170820
CREATED:20260706T181138Z
LAST-MODIFIED:20260706T181138Z
UID:10000299-1787083200-1787086800@www.lgsfoundation.org
SUMMARY:Dad to Dad – August Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T200000
DTEND;TZID=America/New_York:20260820T210000
DTSTAMP:20260717T170820
CREATED:20260706T180558Z
LAST-MODIFIED:20260706T180558Z
UID:10000296-1787256000-1787259600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Agosto
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio seguro y solidario para familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nEstas reuniones son una oportunidad para compartir vivencias\, intercambiar recursos\, aprender unos de otros y fortalecer los lazos con una comunidad que entiende los desafíos y las alegrías de este recorrido. \nNo importa si es su primera reunión o si nos acompaña desde hace tiempo; será un gusto contar con su participación. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-agosto/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260824T200000
DTEND;TZID=America/New_York:20260824T210000
DTSTAMP:20260717T170820
CREATED:20260706T181845Z
LAST-MODIFIED:20260706T181845Z
UID:10000302-1787601600-1787605200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – August Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T200000
DTEND;TZID=America/New_York:20260908T210000
DTSTAMP:20260717T170820
CREATED:20260706T172126Z
LAST-MODIFIED:20260706T172126Z
UID:10000294-1788897600-1788901200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – September Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: My Favorite Resource \nCaregiving for someone with LGS means constantly learning\, adapting\, and discovering. Some of the most valuable finds come not from doctors or textbooks\, but from each other. \nJoin us for this month’s gathering as we share the resources that have made a real difference in our daily lives. Whether it’s a piece of equipment that finally solved a safety challenge\, a go-to website\, a DIY project you rigged up out of sheer necessity\, or an app that brought a little order to the chaos. We want to hear about it. \nCome ready to share\, learn\, and maybe leave with your next favorite resource. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-september-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260915T200000
DTEND;TZID=America/New_York:20260915T210000
DTSTAMP:20260717T170820
CREATED:20260706T181319Z
LAST-MODIFIED:20260706T181319Z
UID:10000300-1789502400-1789506000@www.lgsfoundation.org
SUMMARY:Dad to Dad – September Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-september-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260717T170820
CREATED:20260706T180728Z
LAST-MODIFIED:20260706T180728Z
UID:10000297-1789675200-1789678800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Septiembre
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio dedicado a brindar apoyo\, comprensión y conexión a familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nCada encuentro es una oportunidad para conversar\, compartir experiencias y recordar que nadie tiene que recorrer este camino solo. Nuestra comunidad está aquí para apoyarse mutuamente en cada etapa del proceso. \nLo invitamos a unirse a nosotros\, ya sea para compartir su historia o simplemente para escuchar y conectar con otras familias. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-septiembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260928T200000
DTEND;TZID=America/New_York:20260928T210000
DTSTAMP:20260717T170820
CREATED:20260706T182906Z
LAST-MODIFIED:20260706T182906Z
UID:10000303-1790625600-1790629200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – September Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-september-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T190000
DTEND;TZID=America/New_York:20261005T203000
DTSTAMP:20260717T170820
CREATED:20260406T154825Z
LAST-MODIFIED:20260406T154825Z
UID:10000291-1791226800-1791232200@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR