LGS Virtual Valentine's Dance Party
2023-02-11 20:00 - 21:00 (America/New_York)
Join the LGS Foundation and DJ’s Kara & Tayla for an LGS Virtual Valentine’s Dance Party!
Meet up with friends virtually for dancing and socializing! You might even make some new friends!
Have some snacks and drinks ready.
Dress Up and/or Decorate and show off your favorite room in your house!
The LGS Virtual Valentine’s Dance Party is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS: Standing Together. Stronger Together. – Monthly Support Group
2023-02-13 20:00 - 21:00 (America/New_York)
Topic: Using Your Voice for your loved one with LGS
How do you feel about advocacy? Are you stuck trying to communicate with the school, the doctor, and your community?
Join our monthly support group as we share stories of advocacy and help support those who are feeling ‘stuck’.
As we near Rare Disease Day, what do we want the world to know about people with LGS and the families who love and care for them?

This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad Support Group
2023-02-15 20:00 - 21:00, 2023-03-15 20:00 - 21:00 (America/New_York)
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!
This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS Support Group
2023-02-27 20:00 - 21:00 (America/New_York)
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.
This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

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Behind the Mystery of LGS on Lifetime TV
2023-02-28 07:30 - 08:00 (America/New_York)
“Rare Disease doesn’t come with a manual, it comes with a mother who never gives up!”

Tune In – February 20 & 28, 2023
For A Special Segment Of Behind The Mystery
Featuring LGS Foundation Executive Director, Tracy Dixon-Salazar, PhD

Learn More

LGS: Standing Together. Stronger Together. – Monthly Support Group
2023-03-14 20:00 - 21:00 (America/New_York)
Topic: Care Provider Shortages
Is your loved one eligible for in-home nursing? Do you receive respite or other services that could either lighten your load a bit or improve your loved one’s quality of life?
Once you become eligible for these services, are you even able to locate a provider?
Or do you just end up on a waiting list?
Share your story. Listen to the stories of others who’ve had this experience.

Together we might even come up with some creative solutions to this growing problem. At the very least, you might feel a little less alone.

Remember, we’re STRONGER TOGETHER!

This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS Support Group
2023-03-27 20:00 - 21:00 (America/New_York)
Guest Speaker: Dr. Pete Crino, MD
Topic: Transitioning to Adulthood
Parents of teens and adults with LGS!
Did you know there is such a thing as an ADULT EPILEPTOLOGIST? If you want to meet one of these special unicorns of neurology, please join us on Monday, March 27 at 8 pm Eastern.
Our guest speaker will be Dr. Peter Crino from the University of Maryland. He is an internationally recognized physician scientist with expertise in developmental and epileptic encephalopathies.
This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS: Standing Together. Stronger Together. – Monthly Support Group
2023-04-11 20:00 - 21:00 (America/New_York)
Topic: Celebrating Siblings
The LGS siblings have seen it all from an early age – The seizures, the ER visits, the behaviors, the special occasions ruined by LGS,…and more.
But most of them seem to possess a level of maturity, a capacity for love, and a fierce protective quality, that inspires us.
Let’s gather to celebrate the siblings and share our thoughts/fears/hopes for their futures in honor of National Siblings Day, April 10th.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad Support Group
2023-04-19 20:00 - 21:00 (America/New_York)
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS Support Group
2023-04-24 20:00 - 21:00 (America/New_York)
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

San Diego LGS Walk with Team Savannah's Bananas
2023-05-06 08:00 - 09:30 (America/Los_Angeles) | Vista Grande Elementary School, 5606 Antigua Blvd, San Diego, CA, 92124, United States
Come Walk a Mile with Savannah!

Saturday, May 6, 2023 I 8:00am – 9:30am PT

Vista Grande Elementary School I 5606 Antigua Blvd, San Diego, CA 92124

Join us as Savannah walks a mile to end LGS! We will enjoy donuts, water, and then walk, walk, walk!
Please RSVP to TJSalazar2@gmail.com so we have enough donuts!!

This event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event, please complete the Submit an Event form.

Team Matthew Bake Sale
2023-05-06 08:00 - 12:00 UTC | Viking Village Grocery Store, 150 Viking Dr, Reedsburg, WI, 53959, United States
Join Team Matthew in Reedsburg, WI!

Saturday, May 6, 2023 I 8:00am – 12:00pm CT

Viking Village Grocery Store I 150 Viking Dr Reedsburg, Wi 53959

We are going to be at our local grocery store (Viking Village) from 8am-12pm.
All proceeds will go to Team Matthew’s fundraiser to support the LGS Foundation!

Walk 'n Wheel for Sarah
2023-05-06 09:00 - 12:00 UTC | Grant Woods Forest Preserve, Grant Woods Forest Preserve, Lake Villa, IL, 60046
A Local Walk in Honor of Sarah!

Saturday, May 6, 2023 I 9:00am – 12:00pm CT

Grant Woods Forest Preserve I Lake Villa, IL

This is a walk for my daughter who has LGS. We are going to walk in Grant Woods in Lake County, IL.

SF Bay Area Walk with Team Teagan's Tenacious Titans
2023-05-06 10:00 - 11:30 UTC
Come Walk ‘n’ Wheel with Teagan in South San Francisco!

Saturday, May 6, 2023 I 10:00am – 11:30am PT
Buri Buri Park I Picnic Area #4

Join us as Teagan walks & wheels to end LGS!

We will enjoy LGS awareness games, music, walking & wheeling, and refreshments afterwards!

This event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event, please complete the Submit an Event form.

2023 Walk 'n' Wheel for Lennox-Gastaut Syndrome Research in Florida
2023-05-06 10:00 - 14:00 (America/New_York) | All People’s Community Park & Life Center, 6105 E. Sligh Ave., Tampa, FL, 33617, United States
Join us in Tampa, FL at our 8th Annual Walk ‘n’ Wheel for LGS as we Step Towards a Cure, Together!
Each year, hundreds of community members come together in person and virtually to raise funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives cutting-edge research to find disease-modifying therapies and treatments for LGS. The only way we can fund patient-led research is by raising the funds ourselves, so that’s what we’re doing!

Featuring a 10,000 SqFt Accessible Playground, Splash Pad, Face Painting, Balloon Twister, DJ, Door Prizes, Silent Auction, and more!

All People’s Community Park & Life Center
6105 E. Sligh Ave. Tampa, FL 33617
10:00am – 2:00pm
REGISTER TO ATTEND

Thank You

Updated 04/27/2023

2023 Walk ‘n’ Wheel for Lennox-Gastaut Syndrome Research in North Carolina
2023-05-06 10:00 - 14:30 UTC | Village Park, 700 W C St, Kannapolis, NC, 28081, United States
Join Us in Kannapolis, NC at our
8th Annual Walk ‘n’ Wheel for LGS.
Every year hundreds of community members come together in person and virtually to raise awareness and funds for the LGS Foundation’s “Finding the Cures, Together” Research Program. This vital program drives research to find disease-modifying therapies and treatments for LGS.

Family friendly fun packed day featuring:
Train Rides, Face Painting, Family Picnic, Silent Auction, and more!

Kannapolis, North Carolina
Village Park
700 W C St, Kannapolis, NC 28081
REGISTER TO ATTEND
Learn More

Thank You to Our Amazing Partners & Supporters

Walk 'n' Wheel for LGS at Belmont Lake State Park
2023-05-06 12:00 - 14:00 UTC | Belmont Lake State Park, 625 Belmont Ave., West Babylon, New York, 11704
Come Walk ‘n’ Wheel with Family Ambassador Jackie in New York!

Saturday, May 6, 2023 I 12:00pm – 2:00pm ET
Belmont Lake State Park I 625 Belmont Ave. West Babylon, NY 11704

Local walk at Belmont Lake State Park for anyone who would like to join the Villatoro family!

Standing Together. Stronger Together - Monthly Support Group
2023-05-09 20:00 - 21:00 (America/New_York)
Necessity is the Mother of Invention in the DIY world of LGS.
Do you have a clever invention? A household go-to tip? Or do you need some cost-effective ideas on how to solve a challenge? Bring your homespun ideas to our group and share!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Walk ‘n’ Wheel for LGS - Walking With Hanna
2023-05-13 09:00 - 10:00 (America/Chicago) | Rock City Park, Rock City, IL, 61070, United States
Come Walk With Hanna!

Saturday, May 13, 2023 I 9:00am – 10:00am CT

Rock City Park I Rock City, IL 61070

Join us and Walk With Hanna to raise money for LGS Awareness and Research!
Donate Now

Dad to Dad - Monthly Support Group
2023-05-17 20:00 - 21:00, 2023-06-21 20:00 - 21:00 (America/New_York) | Virtual

Caregiver of Adults with LGS - Monthly Support Group
2023-05-22 20:00 - 21:00 (America/New_York) | Virtual

Standing Together. Stronger Together – Monthly Support Group
2023-06-13 20:00 - 21:00 (America/New_York) | Virtual
Save the Date & Join us on June 13th, 2023 @ 8pm ET
TOPIC: Making the Most of Summer
School’s out and summer has begun… How do you involve your loved one with LGS in summer activities? Can he/she attend camp? Summer school? Can the family take a nice vacation? Share your summer plans or just come to talk.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregivers of Adults with LGS - Monthly Support Group
2023-06-26 20:00 - 21:00 (America/New_York) | Virtual

Standing Together. Stronger Together. - July Support Group Meeting
2023-07-11 20:00 - 21:00 (America/New_York) | Virtual
Topic: Be Kind to Your Mind
Please join this monthly support group and our special guest who will share some tips on mindfulness and lead us all in a guided meditation. Prepare to treat yourselves and make some space for calm in the midst of all the LGS chaos.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Swing "FORE" a Cure
2023-07-15 12:30 - 17:00 (America/New_York) | Golf Club of Dublin, 5805 Eiterman Rd, Dublin, OH, 43016, United States
Join Us In Dublin, Ohio On Saturday, July 15, 2023 For An Afternoon Of Fun As We
Swing FORE A Cure
For Lennox-Gastaut Syndrome (LGS).

About This Event:
Format: 4 Person Scramble
Registration Opens: 12:30 pm ET
Shotgun Start: 2:00 pm ET
Awards Given: 1st, 2nd, and Last Place Foursomes
Special Contests: Longest Drive, Closest to the Pin, Longest Putt
Costs: $125 per Golfer / $500 per Foursome / $5 Mulligans (max 2 per player)
Learn More

Dad to Dad - July Support Group Meeting
2023-07-19 20:00 - 21:00 (America/New_York) | Virtual

Caregivers of Adults with LGS - July Support Group Meeting
2023-07-24 20:00 - 21:00 (America/New_York) | Virtual
Living with LGS is a marathon, not a sprint.

July 24, 2023, 8:00 pm – 9:00 pm ET

Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - Monthly Support Group Meeting
2023-08-08 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 8th at 8 pm ET.
Topic: The Long, Hot Summer – How are you Managing?
With record-high temperatures hitting most of the world, how have our loved ones with LGS been handling this long, hot summer? Have any of them been able to attend a program or a camp that meets their needs?
Come to our monthly group and share everything from your strategies and tips for staying cool and having fun – to your woes and worries about how to support someone with LGS and their siblings!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
