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X-WR-CALDESC:Events for LGS Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250513T200000
DTEND;TZID=America/New_York:20250513T210000
DTSTAMP:20260410T074137
CREATED:20250327T192811Z
LAST-MODIFIED:20250327T192901Z
UID:10000210-1747166400-1747170000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us on Tuesday\, May 13th at 8 pm ET.\nTopic: Your Favorite Things!\nWhat’s that thing that you need to get through the day? Is it your morning coffee? The 10-minute afternoon nap? The fully-charged iPad that will keep your loved one occupied so you can drink that coffee\, or quietly close your eyes? \nIt’s always the little things in life that can be the BIGGEST things in life.  We always hear “I don’t know how you do it”. \nJoin us and let us know\, how do you do it?!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250515T200000
DTEND;TZID=America/New_York:20250515T210000
DTSTAMP:20260410T074137
CREATED:20250327T202257Z
LAST-MODIFIED:20250327T202257Z
UID:10000216-1747339200-1747342800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de Mayo
DESCRIPTION:Únase a nosotros el jueves 15 de mayo a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250519T200000
DTEND;TZID=America/New_York:20250519T210000
DTSTAMP:20260410T074137
CREATED:20250327T210358Z
LAST-MODIFIED:20250429T211448Z
UID:10000219-1747684800-1747688400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS - May Support Group Meeting
DESCRIPTION:Join us Monday\, May 19th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250520T200000
DTEND;TZID=America/New_York:20250520T210000
DTSTAMP:20260410T074137
CREATED:20250327T195300Z
LAST-MODIFIED:20250327T195300Z
UID:10000213-1747771200-1747774800@www.lgsfoundation.org
SUMMARY:Dad to Dad - May Support Group Meeting
DESCRIPTION:Join us Tuesday\, May 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250610T200000
DTEND;TZID=America/New_York:20250610T210000
DTSTAMP:20260410T074137
CREATED:20250327T193528Z
LAST-MODIFIED:20250327T193528Z
UID:10000211-1749585600-1749589200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us on Tuesday\, June 10th at 8 pm ET.\nTopic: Managing the Business of LGS!\nLGS is tough. Navigating all of the ‘systems’ shouldn’t have to be. But it is!!. It can often feel like you’re running a small business. Appointments\, insurance denials\, specialists\, therapists\, day programs\, IEPs!! And who manages it all? YOU! Join all of the other ‘small business owners’ also known as ‘LGS Caregivers’\, and let’s talk about it. Share your strategies\, tips\, and self-care ideas for when it gets to be too much! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T200000
DTEND;TZID=America/New_York:20250617T210000
DTSTAMP:20260410T074137
CREATED:20250327T195515Z
LAST-MODIFIED:20250327T195548Z
UID:10000214-1750190400-1750194000@www.lgsfoundation.org
SUMMARY:Dad to Dad - June Support Group Meeting
DESCRIPTION:Join us Tuesday\, June 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250619T200000
DTEND;TZID=America/New_York:20250619T210000
DTSTAMP:20260410T074137
CREATED:20250327T203207Z
LAST-MODIFIED:20250327T203207Z
UID:10000217-1750363200-1750366800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de junio
DESCRIPTION:Únase a nosotros el jueves 19 de junio a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250623T200000
DTEND;TZID=America/New_York:20250623T210000
DTSTAMP:20260410T074137
CREATED:20250327T211352Z
LAST-MODIFIED:20250327T211352Z
UID:10000220-1750708800-1750712400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us Monday\, June 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-june-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250708T200000
DTEND;TZID=America/New_York:20250708T210000
DTSTAMP:20260410T074137
CREATED:20250625T175642Z
LAST-MODIFIED:20250625T175642Z
UID:10000225-1752004800-1752008400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - July Support Group Meeting
DESCRIPTION:Join us on Tuesday\, July 8th at 8 pm ET.\nTopic: Summer’s Here! Is That A Good Thing?\nHow will your family be spending the summer? Extended School Year (ESY)? Summer Camp? Are you able to create a fun\, safe\, and relaxing summer for your LGS loved one and their siblings\, or does this big break in the routine add chaos to your lives? Join a group of like-minded caregivers as we unwind\, unload\, listen\, and support one another.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250715
DTEND;VALUE=DATE:20250815
DTSTAMP:20260410T074137
CREATED:20250523T163645Z
LAST-MODIFIED:20250721T203724Z
UID:10000222-1752537600-1755215999@www.lgsfoundation.org
SUMMARY:Your Story. Your Session.
DESCRIPTION:Your Story. Your Session. is a free\, live\, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience\, this is a space for you to learn\, connect\, and feel supported. \n💜 Live Sessions – Choose the Time That Fits Your Life:\n\nTuesday\, July 15 @ 6:00 PM ET\nThursday\, August 1 @ 1:00 PM ET\nWednesday\, August 14 @ 4:00 PM ET\n\n🧠 What to Expect:\n\nExpert insights from pediatric neurologists and epilepsy specialists\nReal caregiver stories and strategies\nPractical tools for navigating daily challenges and transitions in care\nOpportunities to ask questions or simply listen in\n\n🎤 You decide how to participate—share your experience\, ask a question\, or just take it all in. All voices are welcome. \n📍 Where: Online via Zoom\n⏰ Duration: 1 Hour💲 Cost: FREE \nReserve Your Spot Today
URL:https://www.lgsfoundation.org/event/your-story-your-session/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/05/Your-Story-Your-Session-Iridum-Project-Featured-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250715T200000
DTEND;TZID=America/New_York:20250715T210000
DTSTAMP:20260410T074137
CREATED:20250625T182115Z
LAST-MODIFIED:20250625T182115Z
UID:10000228-1752609600-1752613200@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join us Tuesday\, July 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250717T200000
DTEND;TZID=America/New_York:20250717T210000
DTSTAMP:20260410T074137
CREATED:20250625T195624Z
LAST-MODIFIED:20250625T195624Z
UID:10000231-1752782400-1752786000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de julio
DESCRIPTION:Únase a nosotros el jueves 17 de julio a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-julio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250721
DTEND;VALUE=DATE:20250723
DTSTAMP:20260410T074137
CREATED:20250103T193347Z
LAST-MODIFIED:20250521T165048Z
UID:10000204-1753056000-1753228799@www.lgsfoundation.org
SUMMARY:2025 LGS Research Meeting of the Minds
DESCRIPTION:Save the Date | July 21 – 22\, 2025\nAdvancing Evidence-Based LGS Care Across the Lifespan\nThis bi-annual Meeting of the Minds research conference brings together hundreds of researchers\, healthcare providers\, clinical trialists\, scientists\, advocates\, caregivers\, and industry partners to push the conversation about research beyond only treating the symptom of seizures\, but also finding treatments that target the whole syndrome. \nLearnings from the Meeting of the Minds help guide the LGS Foundation’s research strategy and efforts. \nLearn More
URL:https://www.lgsfoundation.org/event/2025-lgs-research-meeting-of-the-minds/
LOCATION:The Logan Hotel\, Philadelphia\, PA\, 19103\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/11/2025-Meeting-of-the-Minds-updated-1225-1.png
ORGANIZER;CN="LGS Foundation (Research Dep.)":MAILTO:Research@LGSFoundation.org
GEO:39.9569323;-75.1702705
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250728T200000
DTEND;TZID=America/New_York:20250728T210000
DTSTAMP:20260410T074137
CREATED:20250625T203421Z
LAST-MODIFIED:20250625T203421Z
UID:10000234-1753732800-1753736400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250812T200000
DTEND;TZID=America/New_York:20250812T210000
DTSTAMP:20260410T074137
CREATED:20250625T180416Z
LAST-MODIFIED:20250625T180416Z
UID:10000226-1755028800-1755032400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting
DESCRIPTION:Join us on Tuesday\, August 12th at 8 pm ET.\nTopic: What’s The Title of Your LGS Story? \nIf you could write a book about your family’s LGS journey\, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning\, or maybe you’ve been doing this for a long time. We want to hear it all!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T200000
DTEND;TZID=America/New_York:20250819T210000
DTSTAMP:20260410T074137
CREATED:20250625T183402Z
LAST-MODIFIED:20250625T183402Z
UID:10000229-1755633600-1755637200@www.lgsfoundation.org
SUMMARY:Dad to Dad – August Support Group Meeting
DESCRIPTION:Join us Tuesday\, August 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T200000
DTEND;TZID=America/New_York:20250821T210000
DTSTAMP:20260410T074137
CREATED:20250625T200308Z
LAST-MODIFIED:20250625T200308Z
UID:10000232-1755806400-1755810000@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
DESCRIPTION:Únase a nosotros el jueves 21 de agosto a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-agosto/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250825T200000
DTEND;TZID=America/New_York:20250825T210000
DTSTAMP:20260410T074137
CREATED:20250625T203806Z
LAST-MODIFIED:20250625T203806Z
UID:10000235-1756152000-1756155600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – August Support Group Meeting
DESCRIPTION:Join us Monday\, August 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-august-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T183000
DTEND;TZID=America/New_York:20250828T193000
DTSTAMP:20260410T074137
CREATED:20250820T132217Z
LAST-MODIFIED:20250820T132217Z
UID:10000239-1756405800-1756409400@www.lgsfoundation.org
SUMMARY:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
DESCRIPTION:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care\nDate & Time:📅 Thursday\, August 28\, 2025⏰ 6:30 PM ET \nDescription:Join us for a free\, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care. \nOur expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS. \nThis session is: \n\n🎓 Non-accredited\n💜 Caregiver-focused\n💻 Virtual and free to attend\n\nRegistration:👉 Click here to register \nPartners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.
URL:https://www.lgsfoundation.org/event/setting-up-for-a-successful-future-in-lennox-gastaut-syndrome-preparing-for-adult-care/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T200000
DTEND;TZID=America/New_York:20250909T210000
DTSTAMP:20260410T074137
CREATED:20250625T181043Z
LAST-MODIFIED:20250625T181043Z
UID:10000227-1757448000-1757451600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – September Support Group Meeting
DESCRIPTION:Join us on Tuesday\, September 9th at 8 pm ET.\nTopic: Back To School So Soon?\n\nThe school year has begun. Is this a good thing? Is your loved one attending a new school? Perhaps they’re no longer in school and you find yourself wistfully remembering the “good ol’ days” of IEPs and school activities. Or maybe your loved one (or you) feels anxious and nervous about the coming year. \nPlease join us as we wind down from the summer and begin to rev up to a new routine and all of the emotions that come with that. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250916T200000
DTEND;TZID=America/New_York:20250916T210000
DTSTAMP:20260410T074137
CREATED:20250625T183745Z
LAST-MODIFIED:20250625T183745Z
UID:10000230-1758052800-1758056400@www.lgsfoundation.org
SUMMARY:Dad to Dad – September Support Group Meeting
DESCRIPTION:Join us Tuesday\, September 16th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T200000
DTEND;TZID=America/New_York:20250918T210000
DTSTAMP:20260410T074137
CREATED:20250625T201347Z
LAST-MODIFIED:20250625T201347Z
UID:10000233-1758225600-1758229200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Septiembre
DESCRIPTION:Únase a nosotros el jueves 18 de septiembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-septiembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250922T200000
DTEND;TZID=America/New_York:20250922T210000
DTSTAMP:20260410T074137
CREATED:20250625T204031Z
LAST-MODIFIED:20250625T204140Z
UID:10000236-1758571200-1758574800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – September Support Group Meeting
DESCRIPTION:Join us Monday\, September 22nd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-september-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251007T190000
DTEND;TZID=America/New_York:20251007T203000
DTSTAMP:20260410T074137
CREATED:20250818T150428Z
LAST-MODIFIED:20250820T163613Z
UID:10000237-1759863600-1759869000@www.lgsfoundation.org
SUMMARY:New Family Orientation Meeting
DESCRIPTION:New Family Orientation Meeting\nDate: Tuesday\, October 7th\, 2025Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom) \nAre you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation\, this meeting is designed to welcome and support you. \n\nWhat to Expect\n\nLearn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)\nExplore the LGS Foundation website and resources.\nDiscover how to participate in the Learn from Every Patient Database to help advance science.\nFind out about family-focused programs\, including the 2026 International Family & Professional Conference.\nAccess helpful toolkits and resources created for families navigating the LGS journey.\nConnect with other caregivers in a safe\, supportive group chat.\n\nWhy Attend?\nThis orientation is a chance to learn\, ask questions\, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources\, connections\, and a sense of community. \n👉 RSVP today to reserve your spot!
URL:https://www.lgsfoundation.org/event/new-family-orientation-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251014T200000
DTEND;TZID=America/New_York:20251014T210000
DTSTAMP:20260410T074137
CREATED:20250925T175052Z
LAST-MODIFIED:20250925T175119Z
UID:10000240-1760472000-1760475600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – October Support Group Meeting
DESCRIPTION:Join us on Tuesday\, October 14th at 8 pm ET.\nTopic: I’m not okay – So many emotions!  \n\nLGS caregivers have been expressing a lot of feelings lately\, like pain\, anger\, hopelessness\, and depression. It’s an ongoing struggle to care for our loved ones while attempting to care for ourselves\, and sometimes we feel like we’re failing at both. \nPlease join us this month as we focus on how to bring the healing into the hurt places. \nIt can’t be repeated enough\, “Nobody should have to do this alone!” \nLGS Caregivers\, you are not alone!❤️ \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251016T200000
DTEND;TZID=America/New_York:20251016T210000
DTSTAMP:20260410T074137
CREATED:20250925T183847Z
LAST-MODIFIED:20250925T183847Z
UID:10000246-1760644800-1760648400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Octubre
DESCRIPTION:Únase a nosotros el jueves 16 de octubre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation \n 
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-octubre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T200000
DTEND;TZID=America/New_York:20251021T210000
DTSTAMP:20260410T074137
CREATED:20250925T181051Z
LAST-MODIFIED:20250925T181241Z
UID:10000243-1761076800-1761080400@www.lgsfoundation.org
SUMMARY:Dad to Dad – October Support Group Meeting
DESCRIPTION:Join us Tuesday\, October 21st at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251027T200000
DTEND;TZID=America/New_York:20251027T210000
DTSTAMP:20260410T074137
CREATED:20250925T192005Z
LAST-MODIFIED:20250925T192118Z
UID:10000249-1761595200-1761598800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – October Support Group Meeting
DESCRIPTION:Join us Monday\, October 27th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-october-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T074137
CREATED:20250925T175755Z
LAST-MODIFIED:20250925T180030Z
UID:10000241-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – November Support Group Meeting
DESCRIPTION:Join us on Tuesday\, November 11th at 8 pm ET.\nTopic: The Perfect Day\n\nLet’s drift into fantasy land and design the perfect day. Perhaps it doesn’t exist in the ‘real’ world\, and it’s ultra-rare when your child has Lennox-Gastaut Syndrome\, but if you could design the perfect day\, what would that look like? \nJoin the November Support Group as we fix the broken things\, get a good night’s sleep\, hear our nonverbal child say their first word\, and have a seizure-free day\, among other things. The sky’s the limit! \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-november-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T200000
DTEND;TZID=America/New_York:20251111T210000
DTSTAMP:20260410T074137
CREATED:20250925T190910Z
LAST-MODIFIED:20250925T191529Z
UID:10000247-1762891200-1762894800@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR