LGS Foundation

Standing Together. Stronger Together. – October Support Group Meeting
2023-10-10 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, October 10th at 8 pm ET.
Topic: The LGS entourage!
Caring for someone with LGS is not a one-person job and yet, many caregivers are wearing MANY hats! These include chauffeur, doctor, nurse, equipment manager, administrative assistant, and many more. What’s your LGS caregiver job description? Are you getting any help or doing it all by yourself? Come join our monthly support group as we discuss this topic and anything else of importance because nobody should do this alone!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – October Support Group Meeting
2023-10-18 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, October 18th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – October Support Group Meeting
2023-10-30 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, October 30th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Halloween Dance Party
2023-10-31 18:00 - 20:00 (America/Denver) | Disneyland Hotel, 1150 W Magic Way, Anaheim, CA, 92802, United States
Epilepsy Alliance America is hosting the Second Annual
HALLOWEEN DANCE PARTY
Tuesday, October 31, 2023 from 6:00pm – 8:00pm PT
in the Magic Kingdom Ballroom at the Disneyland Hotel in Anaheim, California.
(Capacity is limited to 600 attendees so it is essential that you RSVP.)
RSVP HERE.

ABOUT THE EVENT
Join us for FUN, DANCING, GAMES, PRIZES, GIVEAWAYS and our COSTUME PARADE as we celebrate Halloween 2023!
DJ Kara will be spinning the tunes and leading dances for those of all ABILITIES!

Costumes Encouraged
Costumes for ALL are encouraged but not required. Please refrain from monsters and other scary costumes, costume weapons, gore, or other items that may frighten children.
We will provide masks, capes, and other costuming props free at the door to ensure everyone who wants to be dressed up is included.
Learn More @ www.epilepsyallianceamerica.org/event/halloween-dance-party

International LGS Awareness Day: Kicking-Off Epilepsy Awareness Month
2023-11-01 08:00 - 2023-11-30 17:00 UTC
November 1st is annual International LGS Awareness Day!
Each year, the LGS Foundation organizes a social media campaign and in-person events around the world in recognition of LGS Day in an effort to raise awareness and bring LGS families together. Numerous landmarks and locations will Illuminate for LGS by lighting up in purple and green. In addition, the LGS Foundation holds a Signature Themed Event around November 1st to raise critical funds for LGS research.
Learn More

Special Needs Awareness Day - "Don't Stare, Say Hi"
2023-11-04 15:00 - 17:00 (America/Denver) | Good Shepherds Church, 1201 Leta Drive, Colorado Springs, CO, 80911, United States
Join us for a day of fun, awareness, and inclusion!
Girl Scout Troop 46312 is bringing awareness to Colorado Springs, Colorado!
November 4th, 2023

Girl Scout Troop 46312 in Colorado Springs Co is hosting a Special Needs awareness day for all to come!

The girls have all taken a few months to learn about a disability that either they were interested in or a family member or themselves have. We asked them to make a trifold board to be able to present it at the awareness day! We have many non profit organizations and companies coming to help show what they do and how they help the special needs community!

Our main focus for this event is to teach everyone “Don’t stare, Say Hi”. People with disabilities are human and still want to be involved. Inclusion is everything and we hope you walk away from this event with more understanding and love in your hearts!

Come check it out at:
1201 Leta Drive
Colorado Springs, Co 80911

LGS Foundation Anniversary Dinner
2023-11-04 18:00 - 20:30 (America/Los_Angeles) | Harbor View Loft, 1880 Harbor Island Drive, San Diego, CA, 92101, United States
You’re Invited!
Join us as we celebrate our 15th Anniversary of service to the LGS Community! For 15 years, with your help, we have improved the lives of those impacted by LGS through advancing research, awareness, education, and family support.

GET YOUR TICKETS NOW

Want to Give Hope for the Future? Consider Sponsoring the Event or Donate to the Silent Auction.
Please email us at Giving@LGSFoundation.org.
Individuals and families impacted by LGS can email info@lgsfoundation.org to request the Family Discount Code prior to purchasing tickets.

Thank You to Our International LGS Awareness Day Partners

Standing Together. Stronger Together. - November Support Group Meeting
2023-11-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, November 14th at 8 pm ET.
Topic: Finding gratitude in the LGS journey
With Thanksgiving approaching, it’s that time of year where we gather with our loved ones to give thanks. Please join our November support group where we’ll focus on the challenges of finding gratitude in the LGS journey. Has it been possible for you? Our caregiver community is here to listen, share, and support one another because together we ARE stronger!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - November Support Group Meeting
2023-11-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, November 15th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - November Support Group Meeting
2023-11-27 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, November 27th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Foundation @ AES 2023
2023-12-01 - 2023-12-05 | Orange County Convention Center, 9800 International Dr, Orlando, FL, 32819, United States
Join us at AES in Orlando, Florida
Are you attending the American Epilepsy Society Annual Meeting in Orlando, Florida in December?
Visit us in the Epilepsy Resource Area of the Exhibit Hall. Here, our team will be available to answer questions and provide support.
More information coming soon.

Standing Together. Stronger Together - December Support Group Meeting
2023-12-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, December 12th at 8 pm ET.
Topic: The Power of Finding Your Tribe
What do Christmas, Hanukkah and Kwanzaa have in common other than the fact that they all occur in December? COMMUNITY!
This month we focus on the LGS community and the power of finding your tribe. So whether you light a candle on the Menorah or the Kinara, or whether you jingle all the way, you’re always welcome here. The LGS caregiver community will be your second home where you can share freely and confidentially with others who know you.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - January Support Group Meeting
2024-01-16 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, January 16th at 8 pm ET.
Topic: The LGS Resolution(s)
January is when we set our goals and plan for the year ahead. So what are the goals when you’re caring for someone with LGS?
Is it time to order new equipment? Try a new medication? Focus on your own needs? Focus on your other children’s needs? Begin future-planning? Is there something you’ve been putting off because you don’t know where to begin?
Bring your goals to our January Support group and let’s help one another get organized for another busy year because we’re Stronger Together!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - January Support Group Meeting
2024-01-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, January 17th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - January Support Group Meeting
2024-01-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, January 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - February Support Group
2024-02-13 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, February 13th at 8 pm ET.
Topic: February is the month of LOVE!
When your loved one has LGS it can often feel like you’re having to share his/her shortcomings, flaws, failures, deficits, etc. So isn’t it a relief when someone asks you “What do you LOVE about this person?”
Come to our February support group and share all the wonderful stuff. Boast about their beautiful smile, hilarious quirks, new skill, and that thing he/she did that had you laughing so hard.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - February Support Group
2024-02-21 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, February 21st at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - February Support Group
2024-02-26 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, February 26th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - March Support Group Meeting
2024-03-12 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, March 12th @ 8 pm ET
Topic: The Power of Your LGS Story
We all have a story to tell and it’s compelling and heart-wrenching. As we raise our voices as one community to support, empower, educate, and advocate for our loved ones with LGS and their families, come join our March support group and share your LGS story.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - March Support Group Meeting
2024-03-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, March 20th at 8 pm ET
Dad’s and our Male caregivers are the centers of the LGS Family.
Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - March Support Group Meeting
2024-03-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, March 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - April Support Group Meeting
2024-04-09 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, April 9th at 8 pm ET.
Topic: The “Business” of Caring for Someone with LGS.
From accessing services and securing Medicaid waivers to battling with insurance over denials, caring for someone with LGS can be a full-time job when you may already have a full-time job.
In the April support group, we’ll share tips on how we’re making it work, offer helpful resources to one another, or just vent!
Come join your fellow caregivers as we support, educate, and empower one another because nobody can do this alone.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - April Support Group Meeting
2024-04-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, April 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Savannah Walks a Mile for LGS Research
2024-04-20 08:00 - 09:30 (America/Los_Angeles) | Vista Grande Elementary School, 5606 Antigua Blvd, San Diego, CA, 92124, United States
Join Savannah and friends
on Saturday, April, 20th at 8 am PT.
Come walk a mile with Savannah, have some fun, eat some donuts, and raise funds for a great cause!
See Savannah’s Walk Page
RSVP NOW

Walk 'n' Roll for LGS Research
2024-04-20 10:00 - 12:00 (America/Denver) | Fountain Creek Regional Park, 211 Duckwood Road, Fountain, CO, 80817, United States
Come walk ‘n’ roll with our LGS warriors as we help raise awareness!
Walk, run, or roll around the park! This event is a great way for families to meet other LGS families! There will be food, face painting, music, games, and more!

Florida - Walk for LGS Research
2024-04-20 10:00 - 14:00 (America/New_York) | All People’s Community Park & Life Center, 6105 E. Sligh Ave., Tampa, FL, 33617, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
Saturday, April 20, 2024 | 10:00am ET | Tampa, FL
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Splash Pad
Face Painting
Door Prizes
Family Picnic
Character Visits
Games
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

JOIN US IN Florida

North Carolina - Walk for LGS Research
2024-04-20 10:30 - 14:00 (America/New_York) | Village Park, 700 W C St, Kannapolis, NC, 28081, United States
9th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome
April 20, 2024 | 10:30am ET | Kannapolis, NC
Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation’s “Finding the Cures, Together” Research Program.
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one’s lifetime. We are here to change that!
Join us for a day of family fun, community, and awareness!
$25 Registration includes a T-Shirt, Walk Bag, Lunch, and Family Fun listed below.
Family Fun Includes:

Train Rides
Carousel
Face Painting
Door Prizes
Family Picnic
Character Visits
Music … and more!

All proceeds benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you’ll join us!

Join Us in North Carolina

Caregiver of Adults with LGS - April Support Group Meeting
2024-04-22 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, April 22nd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - May Support Group Meeting
2024-05-14 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, May 14th @ 8 pm ET
Topic: The Superhero Caregiver
How many times have you heard these words? “I don’t know how you do it! I could never do what you do! You’re a superhero! Only Special people are given Special children.” How do those words really make you feel? Are you comforted? Angry? Inspired to keep going? Some of us might feel like it’s all the other caregivers who are special, but not ME. Come to our May support group and join the other caregivers as we unpack those well-meaning but often triggering words. Remember, you are not alone and we are Stronger Together!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - May Support Group Meeting
2024-05-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Wednesday, May 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation
