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BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220712T200000
DTEND;TZID=America/Kentucky/Louisville:20220712T210000
DTSTAMP:20260404T050750
CREATED:20220525T181343Z
LAST-MODIFIED:20220525T181343Z
UID:10000082-1657656000-1657659600@www.lgsfoundation.org
SUMMARY:De-Stress Fest Support Group
DESCRIPTION:Living with LGS can be stressful. \nJoin us for real talk on caregiver burden\, stress\, and self-care solutions — Yes\, Self Care!\nCome to De-stress as we support each other on this journey. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-2/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220720T200000
DTEND;TZID=America/Kentucky/Louisville:20220720T210000
DTSTAMP:20260404T050750
CREATED:20220525T182144Z
LAST-MODIFIED:20220525T182409Z
UID:10000084-1658347200-1658350800@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n  \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220723T120000
DTEND;TZID=UTC:20220723T200000
DTSTAMP:20260404T050750
CREATED:20220513T194204Z
LAST-MODIFIED:20220524T230913Z
UID:10000078-1658577600-1658606400@www.lgsfoundation.org
SUMMARY:Swing FORE A Cure
DESCRIPTION:Join Us For The First-Ever Swing FORE A Cure For LGS\nSaturday\, July 23\, 2022\nDublin\, Ohio\nLGS is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Children with LGS experience frequent\, uncontrollable seizures and suffer from many different types of seizures. Some children with LGS survive into adulthood and the majority are completely dependent on others for their daily care. \nLGS may be treated with drugs\, diets\, neural stimulating devices\, brain surgery\, and/or alternative therapies\, but of the more than 30 therapies that exist to treat seizures\, no specific therapy is effective to stop the seizures in LGS. For most patients\, the odds of achieving seizure freedom are less than 15% and the odds of having typical intellectual ability are less than 5%. \nOur goal at the LGS Foundation is to end the devastation and suffering caused by LGS.​ You can help us by participating in or donating to Swing FORE A Cure! \nSpace is limited. Register your team early!\n 
URL:https://www.lgsfoundation.org/event/swing-fore-a-cure/
LOCATION:Golf Club of Dublin\, 5805 Eiterman Rd\, Dublin\, OH\, 43016\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/2022-Swing-FORE-a-Cure-Event-Banner-4.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:40.0874409413;-83.173546793
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Golf Club of Dublin 5805 Eiterman Rd Dublin OH 43016 United States;X-APPLE-RADIUS=500;X-TITLE=5805 Eiterman Rd:geo:-83.173546793,40.0874409413
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20220727T200000
DTEND;TZID=America/Kentucky/Louisville:20220727T210000
DTSTAMP:20260404T050750
CREATED:20220525T184215Z
LAST-MODIFIED:20220525T184215Z
UID:10000083-1658952000-1658955600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-2/
LOCATION:FL
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220809T200000
DTEND;TZID=America/New_York:20220809T210000
DTSTAMP:20260404T050750
CREATED:20220701T170850Z
LAST-MODIFIED:20220806T004209Z
UID:10000085-1660075200-1660078800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. - Monthly Support Group
DESCRIPTION:Topic: LGS Safety- Beyond the Seizures \nPlease join us for an in-depth discussion on issues facing the LGS caregiver when trying to keep their loved ones safe. \nFrom head injuries\, elopement\, choking hazards\, and more\, caregivers are invited to share their challenges and tips for protecting all family members from harm. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/de-stress-fest-support-group-3/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T200000
DTEND;TZID=America/New_York:20220817T210000
DTSTAMP:20260404T050750
CREATED:20220701T171239Z
LAST-MODIFIED:20220701T171239Z
UID:10000086-1660766400-1660770000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly meetup is available exclusively to LGS male caregivers and Dad’s who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-2/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220822T200000
DTEND;TZID=America/New_York:20220822T210000
DTSTAMP:20260404T050750
CREATED:20220806T180206Z
LAST-MODIFIED:20220806T180540Z
UID:10000088-1661198400-1661202000@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS Support Group
DESCRIPTION:Caregivers of Adults with LGS Support Group\n\nLiving with LGS is a marathon\, not a sprint. Adult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Support Group. \nTo join our online support group and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-support-group-3/
LOCATION:FL
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220913T200000
DTEND;TZID=America/New_York:20220913T210000
DTSTAMP:20260404T050750
CREATED:20220825T204649Z
LAST-MODIFIED:20220825T204828Z
UID:10000090-1663099200-1663102800@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Respite & Self-Care- What does that look like for YOU?\n  \n\nRespite can be defined as “a short period of rest or relief from something difficult or unpleasant.” but how does that really look for each of us individually? Come to our next meeting and share your respite story with others and learn how to better provide that ‘short period of rest’ so you can recharge and resume caregiving with a full tank.\n  \n\n\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220921T200000
DTEND;TZID=America/New_York:20220921T210000
DTSTAMP:20260404T050750
CREATED:20220825T205006Z
LAST-MODIFIED:20220825T205006Z
UID:10000091-1663790400-1663794000@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-3/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220926T200000
DTEND;TZID=America/New_York:20220926T210000
DTSTAMP:20260404T050750
CREATED:20220825T194526Z
LAST-MODIFIED:20220825T194526Z
UID:10000089-1664222400-1664226000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-2/
LOCATION:FL
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221011T200000
DTEND;TZID=America/New_York:20221011T210000
DTSTAMP:20260404T050750
CREATED:20220928T175009Z
LAST-MODIFIED:20221009T055257Z
UID:10000092-1665518400-1665522000@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: IEPs & Back to School – Is Everything Going As Expected?\n\n  \n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221019T200000
DTEND;TZID=America/New_York:20221019T210000
DTSTAMP:20260404T050750
CREATED:20220928T175323Z
LAST-MODIFIED:20221009T055326Z
UID:10000093-1666209600-1666213200@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family. \nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221024T200000
DTEND;TZID=America/New_York:20221024T210000
DTSTAMP:20260404T050750
CREATED:20220928T175645Z
LAST-MODIFIED:20221009T055355Z
UID:10000094-1666641600-1666645200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint. \nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221031T180000
DTEND;TZID=UTC:20221031T200000
DTSTAMP:20260404T050750
CREATED:20221009T054309Z
LAST-MODIFIED:20221009T054846Z
UID:10000096-1667239200-1667246400@www.lgsfoundation.org
SUMMARY:Halloween Masquerade Ball
DESCRIPTION:Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland\nMonday\, October 31\, 2022 | 6:00pm PT\nDisneyland Hotel Conference Center – Anaheim\, CA  \nJoin us for the FIRST-EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland\, co-hosted by Sofie’s Journey and the LGS Foundation. \nThis event is free to all registered Expo guests. Make sure to register for the Expo; you’ll get an email back with the hotel and ticket link! \nThe Halloween Masquerade Ball is free to the first 1\,500 guests (max capacity\, sorry). No need to RSVP! Just show up to the Expo. \nLEARN MORE
URL:https://www.lgsfoundation.org/event/halloween-masquerade-ball/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/10/Halloween-Masquerade-Ball-Calendar-of-Events-Image.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221101T110000
DTEND;TZID=America/Los_Angeles:20221101T120000
DTSTAMP:20260404T050750
CREATED:20221011T181225Z
LAST-MODIFIED:20221012T221427Z
UID:10000098-1667300400-1667304000@www.lgsfoundation.org
SUMMARY:LGS & DEE Caregiver Meetup Hosted by the LGS Foundation
DESCRIPTION:Epilepsy Awareness Day at Disneyland\nSleeping Beauty Pavilion\n\nTuesday\, November 1\, 2022 | 11:00am – 12:00pm PT\n  \nThe LGS Foundation welcomes ALL caregivers from the Developmental Epileptic Encephalopathies (DEEs) Community as we gather to build our caregiver support network\, share resources\, and learn from one another. \n  \nRegister to Attend
URL:https://www.lgsfoundation.org/event/dee-caregiver-meetup-hosted-by-the-lgs-foundation/
LOCATION:Disneyland Hotel\, 1150 W Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/10/MeetUp-at-EADDL-Calendar-of-Events-Image.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel 1150 W Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 W Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20221101T170000
DTEND;TZID=America/Denver:20221101T190000
DTSTAMP:20260404T050750
CREATED:20221011T063119Z
LAST-MODIFIED:20221028T044646Z
UID:10000097-1667322000-1667329200@www.lgsfoundation.org
SUMMARY:"one\, one thousand..." Photo Exhibition Reception with Discussion
DESCRIPTION:Join us in person or online to view “one\, one thousand…” and hear talks by the artist/photographer and her sister Lori\, mother of David\, who is diagnosed with Lennox-Gastaut Syndrome. \n“one\, one thousand…” is an unconventional documentary and a different kind of love story. It exposes the impact that Lennox-Gastaut Syndrome has on a mother and son’s experiences of life-long care. Debe Arlook’s intimate photos depict the inner and outer worlds of the relationship between the artist’s nephew and sister. The title references counting the length of a seizure. \n  \nUniversity of Colorado Anschutz Medical Campus\nFulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave. Aurora\, CO 80045\n  \nClick Here to Learn More \nDonate to the “one\, one thousand…” fundraiser to benefit the LGS Foundation \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/one-one-thousand-photo-exhibition-reception-with-discussion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
GEO:39.7454093;-104.8353839
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=University of Colorado 13080 E. 19th Ave. Aurora CO 80045 United States;X-APPLE-RADIUS=500;X-TITLE=13080 E. 19th Ave.:geo:-104.8353839,39.7454093
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221105T103000
DTEND;TZID=America/New_York:20221105T170000
DTSTAMP:20260404T050750
CREATED:20221028T042844Z
LAST-MODIFIED:20221028T044135Z
UID:10000102-1667644200-1667667600@www.lgsfoundation.org
SUMMARY:Cooking for a Cure for LGS
DESCRIPTION:This year for LGS awareness\, I am hosting “Cooking for a Cure for LGS”! I have rented the pop-up shop at Borden Bargains. We’ll have chili\, vegetable soup\, and chicken and dumplings\, as well as a bake sale and snack items. All proceeds will go to the LGS Foundation to help families like mine!! \nCome visit Borden Bargains on Saturday\, November 5th from 10:00am – 5:00pm ET and shop their great inventory and enjoy some of my delicious food! \nBorden Bargains \n555 E Water Street Borden\, IN 47106\n  \nClick Here to Learn More \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/cooking-for-a-cure-for-lgs/
LOCATION:Borden Bargains\, 555 E Water St\, Borden\, Indiana\, 47106
ORGANIZER;CN="Tayla S.":MAILTO:taylashoultz@gmail.com
GEO:38.4648599;-85.9397511
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Borden Bargains 555 E Water St Borden Indiana 47106;X-APPLE-RADIUS=500;X-TITLE=555 E Water St:geo:-85.9397511,38.4648599
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221105T180000
DTEND;TZID=America/Los_Angeles:20221105T220000
DTSTAMP:20260404T050750
CREATED:20221009T052328Z
LAST-MODIFIED:20221009T055149Z
UID:10000095-1667671200-1667685600@www.lgsfoundation.org
SUMMARY:Every Moment Matters Awareness Dinner Event
DESCRIPTION:Every Moment Matters Awareness Dinner Event\nSaturday\, November 5\, 2022 | 6:00pm PT\nBirch Aquarium – San Diego\, CA  \nJoin us for an evening of making every moment matter. Celebrate with us as we raise funds to help families impacted by LGS\, share advances in LGS research and care\, and remember that happiness lives inside life’s moments. \n\nSunset Happy Hour\nDinner by The French Gourmet\nShort Program featuring Dr. Scott Baraban & Cronutt the Sea Lion and Tracy Dixon-Salazar\, PhD\nSpecial Performance by Christina Apostolopoulos\nVIP Aquarium Experience\n\n  \nLearn More
URL:https://www.lgsfoundation.org/event/every-moment-matters-awareness-dinner-event/
LOCATION:Birch Aquarium\, 2300 Expedition Way\, 92037\, La Jolla\, CA\, 92037\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/10/Birch-Dinner-Event-Calendar-of-Events-Image-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:32.8658617;-117.250613
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Birch Aquarium 2300 Expedition Way 92037 La Jolla CA 92037 United States;X-APPLE-RADIUS=500;X-TITLE=2300 Expedition Way\, 92037:geo:-117.250613,32.8658617
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221108T200000
DTEND;TZID=America/New_York:20221108T210000
DTSTAMP:20260404T050750
CREATED:20221027T165303Z
LAST-MODIFIED:20221027T165303Z
UID:10000099-1667937600-1667941200@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:The LGS Support Community- We Are Stronger Together\nThe LGS community is growing rapidly\, and we couldn’t be happier that\, finally\, our families are finding us.\nNot all that long ago\, this wasn’t the case for LGS caregivers. We longed to be a little less ‘rare’ and find others who understood the struggles\, the love\, and the heartache\, spoke the language of LGS\, and offered up valuable tips\, resources\, and comfort.\nWith an online family community approaching 8\,000 members from around the world\, we finally have a tribe of active\, compassionate individuals who are there to lift one another on the dark days and celebrate the small victories when they come (and they DO come).\nAnd now\, we have a monthly support group that all our caregivers are welcome to join. Here\, we can come together virtually\, get to know one another\, and share our stories. Tears are shed\, but laughter is not far behind. We’re resilient\, we’re never giving up\, and we’re STRONGER TOGETHER! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-3/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221116T200000
DTEND;TZID=America/New_York:20221116T210000
DTSTAMP:20260404T050750
CREATED:20221027T165635Z
LAST-MODIFIED:20221027T165635Z
UID:10000100-1668628800-1668632400@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-5/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221128T200000
DTEND;TZID=America/New_York:20221128T210000
DTSTAMP:20260404T050750
CREATED:20221027T170020Z
LAST-MODIFIED:20221027T170020Z
UID:10000101-1669665600-1669669200@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-4/
LOCATION:FL
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221202T110000
DTEND;TZID=UTC:20221202T143000
DTSTAMP:20260404T050750
CREATED:20220804T185212Z
LAST-MODIFIED:20221011T195340Z
UID:10000087-1669978800-1669991400@www.lgsfoundation.org
SUMMARY:LGS Research Roundtable @ AES
DESCRIPTION:Advancing Clinical Research In LGS\, Starting The Conversation\nFriday\, December 2\, 2022 | 11:00am CT\nOne21 at Johnny Cash’s Bar & BBQ – Nashville\, TN  \nEvery year\, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s (AES) annual meeting in an effort to #FreeTheData. Join us to learn about how we are working to advance clinical research in LGS as we prepare for the upcoming 2023 LGS Meeting of the Minds on Advancing LGS Clinical Research. Visit our website to view the full Research Roundtable agenda. \nIn-Person and Virtual Opportunities to Attend.  \nLearn More
URL:https://www.lgsfoundation.org/event/lgs-research-roundtable-aes/
LOCATION:One21 @ Johnny Cash’s Bar & BBQ\, 121 3rd Ave S.\, Nashville\, TN\, 37201\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/06/LGS-Foundation.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:36.1607047;-86.7757672
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=One21 @ Johnny Cash’s Bar & BBQ 121 3rd Ave S. Nashville TN 37201 United States;X-APPLE-RADIUS=500;X-TITLE=121 3rd Ave S.:geo:-86.7757672,36.1607047
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221211T163000
DTEND;TZID=UTC:20221211T210000
DTSTAMP:20260404T050750
CREATED:20221109T220227Z
LAST-MODIFIED:20221109T221107Z
UID:10000103-1670776200-1670792400@www.lgsfoundation.org
SUMMARY:The Santa Express BELIEVE Expedition
DESCRIPTION:Join us for a full night of family fun! \nGrab your kids and bring them along on an expedition to find the spirit of Christmas. The little ones already believe in the magic of Christmas\, but this expedition is so full of magic and Christmas spirit that once you travel this journey/expedition\, there is no way you can doubt that Santa really exists! Challenge those to take the journey! As you travel through our Winter Wonderland\, your train will make four stops where our crew members will help you uncover the clues that will lead you to the station where the Magic will really begin. You will find concessions that will include Hot Chocolate\, Coffee\, and other snacks that will warm your bones while enjoying the Movie Polar Express. \nLGS Warrior\, Nash\, is an Honorary Guest and his Mother\, Candice\, will be sharing their LGS story with guests. \nTicket Info: Tickets are $25 per family which includes your golden tickets\, the clues along with a few magical surprises along the way\, the movie and to top it off\, each will leave with a shiny silver bell! \nThe hunt is all within 10 miles of our offices so no need to worry about the holiday traffic or driving halfway across town. Your route will all be on well-known\, well-traveled\, and well-lit locations. \n  \nLearn More \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member.  \nTo submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/the-santa-express-believe-expedition/
LOCATION:Hillview Police Department\, 283 Crestwood Rd\, Louisville\, KY\, 40229\, United States
ORGANIZER;CN="Candice Hester":MAILTO:chester@spalding.edu
GEO:38.0755728;-85.6753513
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Hillview Police Department 283 Crestwood Rd Louisville KY 40229 United States;X-APPLE-RADIUS=500;X-TITLE=283 Crestwood Rd:geo:-85.6753513,38.0755728
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221213T200000
DTEND;TZID=America/New_York:20221213T210000
DTSTAMP:20260404T050750
CREATED:20221123T193837Z
LAST-MODIFIED:20221123T212140Z
UID:10000104-1670961600-1670965200@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:The Holidays! Making Merry in an LGS World- Is that even possible?\nNow that Thanksgiving has passed\, we jump into our holiday planning for Hanukkah\, Christmas\, & Kwanzaa but LGS is always looming\, threatening to wreak havoc on the festivities.\n\nPlease join us as we share our stories (both joyful and agonizing)\, tips\, gift ideas\, fears (seizures\, behaviors\, ‘well-meaning’ family comments\, etc.)\, and maybe even a secret family recipe.\n\nAll are welcome so if you don’t celebrate any of these festive occasions\, you’re never excluded from this awesome caregiver group!\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-4/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230110T200000
DTEND;TZID=America/New_York:20230110T210000
DTSTAMP:20260404T050750
CREATED:20230103T233341Z
LAST-MODIFIED:20230103T233341Z
UID:10000105-1673380800-1673384400@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. - Monthly Support Group
DESCRIPTION:The Power of Community\nThe holidays are over and January gloom is settling in. \nMany of us are stuck at home without adequate support or contact with others. It’s a lonely time of year made more challenging by the complexities of caring for someone with LGS. \nBut the LGS Community is here\, STRONGER THAN EVER! Let’s not face it alone. Consider attending our January support group! You can share\, cry\, vent\, and yes\, maybe even laugh. \nOur families are Stronger Together because nobody should have to do this alone. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-5/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/07/Copy-of-Support-Group-MeetUps-1.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230118T200000
DTEND;TZID=America/New_York:20230118T210000
DTSTAMP:20260404T050750
CREATED:20230103T234354Z
LAST-MODIFIED:20230103T234354Z
UID:10000106-1674072000-1674075600@www.lgsfoundation.org
SUMMARY:Dad to Dad Support Group
DESCRIPTION:Dad’s and our Male caregivers are the centers of the LGS Family.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-support-group-6/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2022/05/LGS-DADS-Group-Twitter-Header.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230123T200000
DTEND;TZID=America/New_York:20230123T210000
DTSTAMP:20260404T050750
CREATED:20230103T235841Z
LAST-MODIFIED:20230103T235841Z
UID:10000107-1674504000-1674507600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS Support Group
DESCRIPTION:Living with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS.  (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Tracy host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation \n\n\n\n\n Add to calendar
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-support-group-5/
LOCATION:FL
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20230207T120000
DTEND;TZID=America/Denver:20230207T133000
DTSTAMP:20260404T050750
CREATED:20230114T005528Z
LAST-MODIFIED:20230114T011505Z
UID:10000113-1675771200-1675776600@www.lgsfoundation.org
SUMMARY:Revealing: Art\, Disability\, Stigma and Compassion
DESCRIPTION:Join us for a panel discussion about enhancing interactions with the healthcare system and society through art.  View the exhibit\, “one\, one thousand… Photographs by Debe Arlook” on display in the Fulginiti Pavilion lobby. \nPANEL DISCUSSION: \nDebe Arlook\nPhotographer\, Artist & Lori’s Sister\nDebe Arlook is a visual artist based in Santa Monica\, California. She received a B.A. in film and media and a minor in psychology from American University in Washington D.C. Her work is exhibited nationally and internationally including the Lishui Art Museum\, Museum of Art and History Lancaster\, Griffin Museum of Photography\, Center for Fine Art Photography\, and the San Diego Art Institute.  Learn more about Arlook’s work and view the “one\, one thousand…” exhibit. \nTracy Dixon-Salazar\, PhD\nNeuroscientist\, Geneticist\, Patient Advocate & Executive Director\, LGS Foundation\nTracy Dixon-Salazar’s desire to get her Ph.D. was inspired by her daughter\, Savannah\, who developed intractable seizures at the age of 2\, which evolved into Lennox-Gastaut Syndrome (LGS) by the age of 5. She did her Ph.D. and postdoctoral work at UC\, San Diego and it was during her research tenure\, and after 16 years of watching daily\, unrelenting seizures in her child\, that she uncovered the driver of her daughter’s illness and identified a novel precision therapy that improved her child’s life. \nGayla Elliott\, MA\, ATR\, CBIS\nCreative Arts Therapy Program Manager\, Marcus Institute for Brain Health\nGayla Elliott has almost 40 years of providing art therapy services in many clinical settings. In 2017 she began providing art therapy to active-duty military through the federally-funded program\, Creative Forces\, and in 2018 to veterans with mild brain injuries at the Marcus Institute for Brain Health. Gayla is also the parent of an adult daughter who is on the autism spectrum due to Di George syndrome. \nLori Sandler\nLife Coach\, Motivational Speaker\, Writer & David’s Mother and Primary Caregiver\nLori Sandler is a writer\, life coach and devoted caregiver of her adult son\, David. David has autism and Lennox-Gastaut Syndrome\, a rare type of epilepsy that is difficult to control and causes severe neurological impairment. In the early 2000’s\, the intensity of David’s condition and the challenges of his care spurred Lori onto a path of personal growth and spiritual inquiry. In her words\, “The lessons of surrender\, trust\, compassion\, self-knowledge and levity have been the greatest gifts I have received from walking this path with him.” \nJulie Thompson-Dobkin\, DO\nNeurologist\, President & Co-founder of the Hidden Truths Project\nDr. Julie Thompson-Dobkin is a Board-certified neurologist\, currently residing in San Francisco\, California. She previously served as an Assistant Professor in the Department of Neurology at the University of Pittsburgh and was clinical faculty at Washington University in St. Louis. She founded Hidden Truths Project in 2012\, which is dedicated to engaging and empowering individuals impacted by visible and invisible disabilities through the arts.  Dr. Thompson-Dobkin has an adult son who has lived with epilepsy for 18 years\, the inspiration for much of her work. \nHYBRID:\nIn-person at the Fulginiti Pavilion for Bioethics and Humanities\n13080 E. 19th Ave.  Aurora\, CO  80045\nClick for directions & parking information. \nor via ZOOM:\nhttps://ucdenver.zoom.us/j/97023996853 \n  \n\nThis event is not hosted by the LGS Foundation. This event was submitted to the LGS Foundation’s Calendar of Events by a community member. To submit your LGS-related event\, please complete the Submit an Event request form.
URL:https://www.lgsfoundation.org/event/revealing-art-disability-stigma-and-compassion/
LOCATION:University of Colorado\, 13080 E. 19th Ave.\, Aurora\, CO\, 80045\, United States
ATTACH;FMTTYPE=image/gif:https://www.lgsfoundation.org/wp-content/uploads/2023/01/Revealing-Art-Disability-Stigma-and-Compassion.gif
ORGANIZER;CN="Lori S.":MAILTO:lori@lorisandler.com
GEO:39.7454093;-104.8353839
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=University of Colorado 13080 E. 19th Ave. Aurora CO 80045 United States;X-APPLE-RADIUS=500;X-TITLE=13080 E. 19th Ave.:geo:-104.8353839,39.7454093
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230211T200000
DTEND;TZID=America/New_York:20230211T210000
DTSTAMP:20260404T050750
CREATED:20230104T010753Z
LAST-MODIFIED:20230104T011859Z
UID:10000109-1676145600-1676149200@www.lgsfoundation.org
SUMMARY:LGS Virtual Valentine's Dance Party
DESCRIPTION:Join the LGS Foundation and DJ’s Kara & Tayla for an LGS Virtual Valentine’s Dance Party! \nMeet up with friends virtually for dancing and socializing! You might even make some new friends! \nHave some snacks and drinks ready.\nDress Up and/or Decorate and show off your favorite room in your house! \nThe LGS Virtual Valentine’s Dance Party is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/valentines-dance-party/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Valentines-Dance.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230213T200000
DTEND;TZID=America/New_York:20230213T210000
DTSTAMP:20260404T050750
CREATED:20230116T195659Z
LAST-MODIFIED:20230116T213957Z
UID:10000114-1676318400-1676322000@www.lgsfoundation.org
SUMMARY:LGS: Standing Together. Stronger Together. – Monthly Support Group
DESCRIPTION:Topic: Using Your Voice for your loved one with LGS\nHow do you feel about advocacy? Are you stuck trying to communicate with the school\, the doctor\, and your community?\nJoin our monthly support group as we share stories of advocacy and help support those who are feeling ‘stuck’.\nAs we near Rare Disease Day\, what do we want the world to know about people with LGS and the families who love and care for them?\n\nThis monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-standing-together-stronger-together-monthly-support-group-6/
LOCATION:FL
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
END:VEVENT
END:VCALENDAR