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X-WR-CALDESC:Events for LGS Foundation
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260426T044530
CREATED:20251217T221122Z
LAST-MODIFIED:20260123T203528Z
UID:10000253-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:2026 Walk for LGS Research
DESCRIPTION:Together for a Breakthrough\nApril 2026 is Walk Month for Lennox-Gastaut Syndrome\, a month-long movement that expands the Walk beyond just one day—giving families\, advocates\, and supporters everywhere more ways to walk\, wheel\, and make an impact. \nWalk your way. In your community. Together for a breakthrough. \n\n\nGet Involved\nWalk for LGS Research takes place throughout April—on your own\, with others\, in your community\, or virtually—bringing people together to raise awareness\, build connection\, and fuel critical LGS research. \nWhether you participate in an existing walk\, join virtually\, or walk on your own\, every step moves the mission forward. \n➕ Add Walk for LGS Research to your calendar\nStay connected to Walk Month moments\, stories\, and ways to participate throughout April. \n📍 Host a local Walk for LGS Research event \n\n\nHost a Walk in Your Community\nHosting a Walk for LGS Research event is a powerful way to bring families and supporters together\, increase visibility for LGS\, and help accelerate research. \nNo large event required.No set distance.Just your community—showing up together. \nApply to host a local Walk  \n\nWhy We Walk\nEvery step taken during Walk for LGS Research helps support the LGS Foundation’s Finding the Cures\, Together research program\, advancing collaborative research that could lead to real breakthroughs for the LGS community. \nJoin the global movement this April.
URL:https://www.lgsfoundation.org/event/2026-walk-for-lgs-research/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research.png
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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260426T044530
CREATED:20260318T170315Z
LAST-MODIFIED:20260318T170315Z
UID:10000275-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:Neurelis Walk for LGS Research - Private Event
DESCRIPTION:About This Walk\nThis April\, Nuerelis is joining the global movement for Lennox-Gastaut Syndrome (LGS) by hosting a private\, month-long Walk for LGS Research initiative. \nAs an industry partner\, their team is coming together throughout April to raise awareness\, support families\, and help drive critical research forward. \nWhile this is a private\, internal event\, the impact reaches far beyond their organization — contributing to a collective effort happening across communities worldwide. \n\nSupport Their Impact\nEven though this is a private event\, you can still be part of the movement. \nSupport the LGS Foundation’s Walk for LGS Research Campaign
URL:https://www.lgsfoundation.org/event/neurelis-walk-for-lgs-research-private-event/
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DTSTART;TZID=America/New_York:20260420T190000
DTEND;TZID=America/New_York:20260420T203000
DTSTAMP:20260426T044530
CREATED:20260406T153903Z
LAST-MODIFIED:20260406T154241Z
UID:10000289-1776711600-1776717000@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
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