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X-WR-CALDESC:Events for LGS Foundation
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DTSTART;VALUE=DATE:20250715
DTEND;VALUE=DATE:20250815
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LAST-MODIFIED:20250721T203724Z
UID:10000222-1752537600-1755215999@www.lgsfoundation.org
SUMMARY:Your Story. Your Session.
DESCRIPTION:Your Story. Your Session. is a free\, live\, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience\, this is a space for you to learn\, connect\, and feel supported. \n💜 Live Sessions – Choose the Time That Fits Your Life:\n\nTuesday\, July 15 @ 6:00 PM ET\nThursday\, August 1 @ 1:00 PM ET\nWednesday\, August 14 @ 4:00 PM ET\n\n🧠 What to Expect:\n\nExpert insights from pediatric neurologists and epilepsy specialists\nReal caregiver stories and strategies\nPractical tools for navigating daily challenges and transitions in care\nOpportunities to ask questions or simply listen in\n\n🎤 You decide how to participate—share your experience\, ask a question\, or just take it all in. All voices are welcome. \n📍 Where: Online via Zoom\n⏰ Duration: 1 Hour💲 Cost: FREE \nReserve Your Spot Today
URL:https://www.lgsfoundation.org/event/your-story-your-session/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/05/Your-Story-Your-Session-Iridum-Project-Featured-Image.png
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DTSTART;TZID=America/New_York:20250728T200000
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UID:10000234-1753732800-1753736400@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us Monday\, July 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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