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UID:10000184-1730419200-1730505599@www.lgsfoundation.org
SUMMARY:International LGS Awareness Day
DESCRIPTION:Join Us In raising awareness for the more than one million children and adults worldwide living with LGS!\nOn November 1st\, International LGS Awareness Day\, communities from around the globe come together to raise awareness for Lennox-Gastaut Syndrome (LGS). \nLGS is a rare and severe form of epilepsy that usually begins in early childhood and persists into adulthood. Individuals living with LGS suffer from frequent\, often daily\, debilitating seizures\, cognitive impairment\, developmental regression\, and an increased risk of Sudden Unexpected Death in Epilepsy (SUDEP). \nThere are currently no cures\, but there is a hopeful path forward with increased awareness of the devastating disorder! \n\n\n\n\nTogether\, we can get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.\nClick here to learn more about how YOU can get involved with our awareness efforts!
URL:https://www.lgsfoundation.org/event/international-lgs-awareness-day/
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ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
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