The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning
Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.
We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org
A Clinical Trial Open to Those With Seizures Associated with LGS
The Skyway Study is a Phase 3 clinical research study of an investigational medication for children, teens, and adults diagnosed with Lennox-Gastaut Syndrome (LGS) who are currently using 0-3 anti-seizure medications to manage symptoms and are still experiencing seizures. The…
A Clinical Trial Open to Those With Seizures
The STARS (Stand Together Against pRolonged Seizures) Research Study is a clinical trial for a drug called Alprazolam, which is sometimes used to treat seizures. Alprazolam is the active ingredient in Xanax, a commonly known drug. This study is a…
New Treatment for Seizures in CDKL5 Deficiency Disorder (a genetic cause of seizures that can lead to LGS)
What is Ganaxolone? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Ganaxolone (the…
New Treatment for Seizure Clusters
What Is Midazolam Nasal Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
What is Cannabidiol? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cannabidiol (the…
New Treatment for Seizure Clusters
What is Diazepam Nasal (Valtoco) Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other treatments for LGS. We hope you find this information useful as you navigate your LGS journey. Diazepam…
What is Felbamate? Felbamate (the generic name), also known as Felbatol (the brand name), is an anti-epileptic drug that was approved by the Food and Drug Administration (FDA) for the management of focal seizures (previously called partial seizures) and seizures…
What is Lamotrigine? Lamotrigine (the generic name), also known as Lamictal (the brand name), is a medication used to treat epilepsy and stabilize mood in bipolar disorder. For epilepsy, this includes focal seizures, tonic-clonic seizures, and seizures in Lennox-Gastaut syndrome….
LGS is a lifelong developmental brain disorder and frequent, debilitating seizures are the main feature. Therapies may help, however, in most cases, they do not completely stop seizures. Seizures often change in children with LGS as they grow and develop….
This page offers a list of FDA- approved treatments often used in those with LGS. Not all medications used in LGS are listed here. This list reflects U.S. FDA-approved medications. For info on epilepsy treatments in the U.K. visit this…
