About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
Newly Diagnosed
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
- - Information for the Newly Diagnosed
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For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
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- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Research Conferences

Research Conferences

LGS Research Roundtable

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s annual meeting in an effort to #FreeTheData and share research updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear about the amazing…

LGS Foundation Meeting of the Minds

The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…

Patient Focused Drug Development (PFDD) Meeting

On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…