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© 2019 LGS FOUNDATION

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November 1 annually is International LGS Day, the official awareness day for Lennox-Gastaut Syndrome around the world.

 

The LGS Foundation kicks off epilepsy awareness month every November with International LGS Day by engaging the LGS community, organizing events, and leading awareness activities on or around November 1. 

 

In 2019, we hosted a number of events throughout the weekend, beginning October 31st.  Click on each of the events to learn more. And stay tuned for our events in 2020! 

HERE ARE HIGHLIGHTS FROM 2019:

THURSDAY, OCTOBER 31:

Family & Professional Reception / PFDD kick-off

1. We hosted a reception in College Park, MD to kick off our first patient-focused drug development meeting on October 31st for those who traveled into town to be with us. 

2. On Halloween, hundreds of our families raised awareness of LGS by passing out cards produced by the LGSF that introduced them while explaining what LGS is. We offered two versions: one for those who are non-verbal and one that's universal. 

FRIDAY, NOVEMBER 1:

LGS Awareness Day | PFDD Meeting | Awareness Gala | Illuminate for LGS

1.November 1st is LGS Awareness Day! Click below to see our activities on this day. 

2. Patient-Focused Drug Development Meeting (PFDD). This was a once in a lifetime opportunity to bring together patients, physicians, advocates, and caregivers with the FDA to explain what living with LGS is like. Click here for more information on why a PFDD is important. A live stream is now available for those who couldn't attend in person. Click here to view it. 

3.LGS Awareness Celebration. Every year, the LGS Foundation hosts an awareness reception in Baltimore, MD for families, friends, and supporters of the LGS Foundation. This year, the event was held at the Baltimore Zoo. We proudly "showed our stripes" as we raised awareness of LGS. 

4.Illuminate for LGS. Dozens of landmarks, parks, and buildings were illuminated in LGS awareness colors, green and purple on or around November 1. Click here for more information.

SATURDAY, NOVEMBER 2:

Illuminate for LGS continues | MeetUps Planned

1.Illuminate for LGS continued at numerous landmarks around the world

2.LGS Family MeetUps were organized across the United States throughout the entire weekend. You can see photos and event descriptions here