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© 2020 LGS FOUNDATION

This website is not intended to serve as medical advice. Please read our full disclaimer

ABOUT THE LGS FOUNDATION

 

The LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and support for individuals living with LGS and their families.

The LGS Foundation is based in New York and provides services and information to  thousands of members across the world. To learn more about our programs and services, click here.

Natalie Gilmore

President

Hanover, PA

John Currier, MBA

Vice President 

Somerville, MA

Karen Groff

Secretary

Columbus, OH

Christopher Mitchell, JD

Board Member

Washington, DC 

Dale Todd

Board Member

Cedar Rapids, IA 

Elizabeth Terry, MA

Board Member

St. Louis, MO

 

 

LGSF Board of Directors

LGSF Professional Advisory Board

Anup Patel, MD *Chair

Nationwide Children's Hospital

Columbus, OH 

 

Susan Masino, PhD

Trinity College

Hartford, CT 

Brenda Porter, MD

Stanford University

Stanford, CA

 

Zach Grinspan, MD

Weill Cornell Medicine

New York, NY 

 

Tim Benke, MD, PhD

Children's Hospital Colorado

Denver, CO  

 

 

 

 

 

 

Jeanne Paz, PhD

University of California, San Francisco

Heather Mefford, MD, PhD

University of Washington

Seattle, WA

 

Eric Marsh, MD, PhD

Children's Hospital of Philadelphia

Philadelphia, PA 

 

 

 

 


 

 

 

 

LGSF Staff

 

Christina SanInocencio, MS 

Executive Director

Long Island, NY 

Tracy Dixon-Salazar, PhD

Director of Research and Strategy

San Diego, CA

Kathy Leavens

Program Support Specialist &

Director of Ambassador Program

Port Richey, FL 

Jennifer Griffin

Director of Family Support Services

Santa Barbara, CA

Contact Us:

 

LGS Foundation

80 Orville Dr.

Suite 100

Bohemia, NY 11716

(718) 374-3800

info@lgsfoundation.org