Darla Davison

Darla Davison and her husband Dan make their home in western New York. Parents to Aaron, age 31, who was diagnosed with LGS at age 19. Darla enjoys connecting with LGS families near and far and has great compassion for…

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Lesa McLeod

Lesa has been actively involved with events for the LGS Foundation for the past few years.  Her son, Deven experienced Infantile Spasms before transitioning to LGS by the age of 5. Lesa shared “We have learned more than we’ve ever…

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Tayla Shoultz

Tayla Shoultz lives in southern Indiana with her son Brian and their 2 dogs. Brian is a wind-n-crazy full of life 17 year old, who loves girls, dogs, and playing outside. Brian does not let the daily seizures hold him…

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Christy Wall

Christy Wall mom to Abbey. Abbey at 10 years old is the youngest of three: Austin-16, Aubrey-13, Abbey-10. Christy has a longstanding career as a Paramedic/Firefighter. She transitioned to RN 14 years ago and still works full-time while raising her…

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