MELINDA HARTSOOK
Melinda's goal in working with LGS Foundation is to provide support and education to
other parents and caregivers, as well as raise awareness about Lennox-Gastaut
Syndrome.
Melinda is the mother of an amazing young man, Christian "Tyler" who has battled with
intractable seizures since infancy. Tyler was diagnosed with Infantile Spasms at the age
of 10 months and as he grew older the diagnosis progressed to Lennox Gastaut
Syndrome.
Through the years Melinda has felt fear and shed many tears. She spent many years
thinking her son was the only one going through the nightmare of LGS. So many
questions were left unanswered for her family and there was little support offered to her.
Melinda wants to serve as the voice she wished she would have had when her world
crumbled. She wants to help answer many questions new and veteran parents have.
Melinda wants to be the support that makes other parents feel comfortable sharing their
fears and tears with. And finally, she wants to be a part of an organization that focuses
on making life better for those who suffer the same fate as her son and her family.
other parents and caregivers, as well as raise awareness about Lennox-Gastaut
Syndrome.
Melinda is the mother of an amazing young man, Christian "Tyler" who has battled with
intractable seizures since infancy. Tyler was diagnosed with Infantile Spasms at the age
of 10 months and as he grew older the diagnosis progressed to Lennox Gastaut
Syndrome.
Through the years Melinda has felt fear and shed many tears. She spent many years
thinking her son was the only one going through the nightmare of LGS. So many
questions were left unanswered for her family and there was little support offered to her.
Melinda wants to serve as the voice she wished she would have had when her world
crumbled. She wants to help answer many questions new and veteran parents have.
Melinda wants to be the support that makes other parents feel comfortable sharing their
fears and tears with. And finally, she wants to be a part of an organization that focuses
on making life better for those who suffer the same fate as her son and her family.