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Since the young age of seven years old, Christina has played the role of a sister,
caregiver, and advocate to a person with LGS. Her younger brother Michael was
diagnosed with epilepsy at only thee years old and received the diagnosis of
Lennox-Gastaut syndrome at age five. Christina watched Michael have endless
seizures day after day, year after year, and grew up explaining what LGS was to
her peers, teachers, and relatives. Living with a sibling with LGS has given
Christina the unique ability to help other families who have a loved one in the
same position.
caregiver, and advocate to a person with LGS. Her younger brother Michael was
diagnosed with epilepsy at only thee years old and received the diagnosis of
Lennox-Gastaut syndrome at age five. Christina watched Michael have endless
seizures day after day, year after year, and grew up explaining what LGS was to
her peers, teachers, and relatives. Living with a sibling with LGS has given
Christina the unique ability to help other families who have a loved one in the
same position.
After graduating Magna Cum Laude with a BFA in Communications, Christina started a career
in television working on many national television shows from ABC to E! Entertainment to the
SPEED Network. Although she enjoyed her work, she felt empowered to use her life experience
along with her professional experience to further her mission of raising awareness about LGS
through media platforms. After planning to produce a documentary about LGS, Christina grew
quite frustrated when she discovered the lack of resources and information available to those
who are living with the disorder.
That was when, in 2007, she enlisted her mother to help her form a national organization
dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide much
needed information and to help families connect with each other and share stories. The LGS
Foundation was born in November of 2007 and has grown to be an international network of
individuals who are looking for support, information, guidance, and answers.
Christina has many goals in mind for the foundation, one of which still includes producing the
documentary on Lennox-Gastaut syndrome. Other goals include raising money for research in
epilepsy and LGS, and continuing to reach even more families who are affected. She makes it
her priority to answer every single e-mail that is received, and to put LGS families in touch with
each other who have similar experiences or live in the same area.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until then,
she will continue to help raise awareness about LGS and offer support to the thousands of
families who face this devastating disorder every day.
in television working on many national television shows from ABC to E! Entertainment to the
SPEED Network. Although she enjoyed her work, she felt empowered to use her life experience
along with her professional experience to further her mission of raising awareness about LGS
through media platforms. After planning to produce a documentary about LGS, Christina grew
quite frustrated when she discovered the lack of resources and information available to those
who are living with the disorder.
That was when, in 2007, she enlisted her mother to help her form a national organization
dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide much
needed information and to help families connect with each other and share stories. The LGS
Foundation was born in November of 2007 and has grown to be an international network of
individuals who are looking for support, information, guidance, and answers.
Christina has many goals in mind for the foundation, one of which still includes producing the
documentary on Lennox-Gastaut syndrome. Other goals include raising money for research in
epilepsy and LGS, and continuing to reach even more families who are affected. She makes it
her priority to answer every single e-mail that is received, and to put LGS families in touch with
each other who have similar experiences or live in the same area.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until then,
she will continue to help raise awareness about LGS and offer support to the thousands of
families who face this devastating disorder every day.