CHRISTINA SANINOCENCIO
Since the young age of seven years old, Christina has played the role of a sister, caregiver and advocate to a person with LGS. Her younger brother Michael was diagnosed with epilepsy at three years old and received the diagnosis of Lennox-Gastaut syndrome at age five. Christina watched Michael have endless seizures day after day, year after year, and grew up explaining what LGS was to her peers, teachers, and relatives. Living with a sibling with LGS has given Christina the unique ability to help other families who have a loved one in the same position.
After graduating Magna Cum Laude with a BFA in Communications in 2004, Christina started a career in television working on many national television shows from ABC to E! Entertainment to the SPEED Network. Although she enjoyed her work, she felt empowered to use her life experience along with her professional experience to further her mission of raising awareness about LGS through media platforms. After planning to produce a documentary about LGS, Christina grew quite frustrated when she discovered the lack of resources and information available to those who are living with the disorder.
That was when, in 2007, she enlisted her mother to help her form a national organization dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide much needed information and to help families connect with each other and share stories. The LGS Foundation was born in November of 2007 and has grown to be an international network of individuals who are looking for support, information and guidance.
Currently, Christina works on a freelance basis for the LGS Foundation and within the television industry. In addition, she is planning to pursue her PhD degree in Media & Health Communications.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until then, she will continue to help raise awareness about LGS and offer support to the thousands of families who face this devastating disorder every day.
That was when, in 2007, she enlisted her mother to help her form a national organization dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide much needed information and to help families connect with each other and share stories. The LGS Foundation was born in November of 2007 and has grown to be an international network of individuals who are looking for support, information and guidance.
Currently, Christina works on a freelance basis for the LGS Foundation and within the television industry. In addition, she is planning to pursue her PhD degree in Media & Health Communications.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until then, she will continue to help raise awareness about LGS and offer support to the thousands of families who face this devastating disorder every day.
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